High functioning Autism and sensory issues

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Terry21
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16 Feb 2014, 2:28 pm

This is my first post. I am new to this group and new to Austim. My son is 12 years old with a severe learning disability along with sensory issues. My Sons Cousin also has full blown Autism. Do any of you with hugh functioning children deal with sensory issues?



Willard
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16 Feb 2014, 3:05 pm

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Last edited by Willard on 17 Feb 2014, 3:31 pm, edited 2 times in total.

Lumi
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16 Feb 2014, 3:22 pm

My sensory issues are Severe-Moderate. It slows down my fine motor skills and sometimes I lose how to sequence movement.


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16 Feb 2014, 3:46 pm

Willard wrote:
IMHO autism is sensory issues, no matter what your functional level is. Anyone with autism who thinks they don't have sensory issues simply doesn't fully understand their condition and is so used to dealing with sensory issues, they don't recognize them for what they are.

Current research indicates that the autistic brain actually has more neural sensory receptors than the neurotypical brain. It's the resultant sensory hyper-stimulation that creates the difficulties in and developing natural social skills, as well as the ability to process perception and react at a normal rate and the resultant tendency to live in a state of elevated anxiety.

For instance, when the sensory experience of making "normal" eye contact is so overwhelming and uncomfortable that it causes a person to look away, they will automatically miss nonverbal signals and facial expressions, immediately increasing the likelihood of misunderstanding and miscommunication.

I came to understand these things gradually, studying the condition after being diagnosed at age 49. While I had always known that my life experience was not the same as that of my peer group, simply because they were clearly more functionally capable than I, in virtually every aspect of life, the ultimate realization of just how radically different my perceptions of everyday life were than theirs was staggering. When you've spent five decades in a world where Life itself is constantly "turned up to 11," you have no idea that it can be any different, much less can you even imagine what life must feel like at a normal Sensory Volume Level of say, 6 or 7.

So sensory issues for the High Functioning are generally ever-present, though of course they vary from individual to individual. Food and clothing textures are very common sensitivities, sound, light and color are problematic for some.

Personally, doorbells and car horns are physically painful to me - not to my ears - to my nervous system as a whole - they register as an electric shock. If I find a clothing item in a fabric that feels particularly comfortable to me, I will often buy several of them, perhaps in different colors, and wear them until they disintegrate. When I was a child, I was especially sensitive to food textures and couldn't abide anything that felt "too squishy" in my mouth. :eew:


Willard, I never been really able to understand the concept of a cure, but I have always thought that if my sensory overload problems could be cured, I would be much more able to function in life. I would still be me, but it would be not under constant physical and emotional stress brought on my overload. What you said about things being painful to you nervous system, instead of just the normally affected body part is the key. These overloads take over our entire bodies.



Terry21
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16 Feb 2014, 4:20 pm

THANK YOU to each of you who have replied. I hope I am replying back properly as I am new to this forum. Thank you to Willard for your reply. It kinda really hit home what you said. My Son is 12 and here is what I am going through.
He does not like change in his room
Still has toddler boarder that I cannot change
Does not like his room cleaned feels things will get broken
Does not like to get baths does not like water on him
Once his fingers get wrinkly from water he will not use them until they are back to normal
Certain shirts are ITCHY
does not like tags or sweat shirt material
does not like to have clothes on period
will not eat left overs
does not like certain looks or textures of food
has a learning disability in school
has had an IEP since K-7
had all pull out classes in elemenrty
lower end IQ score
low pain tolerance
hates to get finger nails cut
sensative to loud noises
all homework and tests done with a tutor
all school work is modified
Can anyone HELP me does this sound like Austism?
Other then that he looks normal and acts normal for the most part. He also cannot handle more then 3 tasks at a time without getting upset.
We have all become a custom to this way of life and the rest of his life style is noraml.
We get tested NEXT week!! !! In denial even thou in my heart I know.
Can anyone who already replied or who has not shed some inside on your thoughts from your exsperience?



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16 Feb 2014, 7:04 pm

Terry21, I am the parent of a high functioning amazing and wonderful child with ASD and an equally wonderful child with a learning disability. I was diagnosed with ASD after my child started showing signs of this.

I am a person, not a label. I see differences between me and others, yes. But to me they seem like they are minor. Every experience I have can be related to by neurotypical people in isolation, though they may not share, don't probably share, the totality of my experience. And at the same time, I understand that what seems to me to be minor isn't minor sometimes in the minds of the people who find me to be unintentionally strange, awkward or disturbing.

Denial isn't always a bad thing, maybe I need some denial to live. Which is hard enough. Don't take what I am saying the wrong way, if your child has autism, that will be very hard, for you, for your child, for your family. And if as a parent you can soak up some of that pain, if your child does have ASD, your child may have a very much easier life than those of us who grew up alone with our struggle.

I hope someone can help your child. If you are asking whether your child has ASD, we can't answer, but what I can tell you is that I understand the need to try to prepare yourself with information, and that is a good thing, and can only help your child. Also, sensory problems are not unique to children with ASD. Children who are stressed as for example by a severe learning disability can start engaging in a lot of rigid, isolating behaviors, can flap and react strongly to sensory stimuli. Try to wait this out. I saw the same kinds of behavior and reactions in my learning disabled child as my child with ASD, they're just not as deep, and they go away when the stress stops.

I hope you get answers, and help with the evaluation. Whatever happens, don't give up. You can help your child through this and you need to and will do just that.



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16 Feb 2014, 9:04 pm

If it waxes and wanes (things always wax and wane, but let's say past a certain point), then there's some chance it might be a type of OCD.



cyberdad
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16 Feb 2014, 9:18 pm

Terry21 wrote:
Can anyone HELP me does this sound like Austism?
Other then that he looks normal and acts normal for the most part. He also cannot handle more then 3 tasks at a time without getting upset.
We have all become a custom to this way of life and the rest of his life style is noraml.
We get tested NEXT week!! !! In denial even thou in my heart I know.
Can anyone who already replied or who has not shed some inside on your thoughts from your exsperience?

Despite the list of problems your son has he also sounds like he has things going for him. Whatever his diagnosis next week you will have to (regardless) work on his strengths and build his confidence to help through school. The prognosis for high functioning kids is fairly good when they become adults.



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16 Feb 2014, 9:28 pm

In my own personal view, the Asperger's-Autism Spectrum is some or all of the following:

1) sensory issues (and possibly processing issues as well),

2) intense intellectual or artistic interests,

3) patchy social skills, perhaps even good in some areas,

4) stimming, and

5)  (maybe) meltdowns.  

========

DSM-4 is crap.

I just want to put it out there as bluntly as I can.  Being more charitable, it reads like the first pass of a committee.  It's autism from the outside looking in.  It is not autism from the inside looking out.

DSM-4 (and presumably 5) hardly pays attention to sensory issues at all.  It focuses almost entirely on social issues.  It's mainly a fancy way of saying, This client is just not very satisfying to interview.

Most professionals seem to view stimming as a symptom, and this blurs into viewing it as part of the problem.  When actually, stimming is part of the solution.  Stimming helps to deal with sensory issues, as well as helping to maintain concentration, as well as just adding joy to life.  Someone fiddling with a pen as they talk on the phone is stimming.  And professional baseball players stim in a variety of ways.  I know this is an embarrassing topic, but I'd really encourage you to make it a time and place kind of thing.  For example, Temple Grandin was not allowed to stim at the table during lunch, but she was allowed to stim during rest period after lunch.



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17 Feb 2014, 2:59 am

Wouldn't say I had a huge sensory issue. Loud noises are not nice, but then NT people don't like loud noises either, that's more of a human problem. i do seem to have some kind of noise filtering problem, any kind of small background noise and I am not hearing you at all.

Had lots of eating problems as a child and that was mainly to do with being uncomfortable with putting certain textures in my mouth



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17 Feb 2014, 3:14 am

Willard wrote:
IMHO autism is sensory issues, no matter what your functional level is. Anyone with autism who thinks they don't have sensory issues simply doesn't fully understand their condition and is so used to dealing with sensory issues, they don't recognize them for what they are. :


Do you have an opinion about the advice Dr. Grandin gives in many of her videos that a low dose of anti-depressives are helpful to autistic people ?

She says that they reduce anxiety, presumably caused by sensory overload.

Note: I find myself agreeing with everything you write, and marveling at the precision of your explanations.



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17 Feb 2014, 10:43 am

LoveNotHate wrote:
Willard wrote:
IMHO autism is sensory issues, no matter what your functional level is. Anyone with autism who thinks they don't have sensory issues simply doesn't fully understand their condition and is so used to dealing with sensory issues, they don't recognize them for what they are. :


Do you have an opinion about the advice Dr. Grandin gives in many of her videos that a low dose of anti-depressives are helpful to autistic people ?

She says that they reduce anxiety, presumably caused by sensory overload.

Note: I find myself agreeing with everything you write, and marveling at the precision of your explanations.


We should start a Willard fan club.
Low dose SSRIs?
Hrm.
I've tried SSRIs and did not like them, but they were normal therapuetic doses.
Maybe a lower dose would be effective and less aversive.



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17 Feb 2014, 10:53 am

Bodyles wrote:
LoveNotHate wrote:
Willard wrote:
IMHO autism is sensory issues, no matter what your functional level is. Anyone with autism who thinks they don't have sensory issues simply doesn't fully understand their condition and is so used to dealing with sensory issues, they don't recognize them for what they are. :


...Note: I find myself agreeing with everything you write, and marveling at the precision of your explanations...


We should start a Willard fan club.


How do I sign up? :)



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17 Feb 2014, 5:47 pm

Terry21 wrote:
This is my first post. I am new to this group and new to Austim. My son is 12 years old with a severe learning disability along with sensory issues. My Sons Cousin also has full blown Autism. Do any of you with hugh functioning children deal with sensory issues?


Has your son been diagnosed with an ASD, or with a learning disability and sensory issues only?

EDIT:
(Never mind that question. I see he's going to be evaluated soon.)


Willard wrote:
IMHO autism is sensory issues, no matter what your functional level is. Anyone with autism who thinks they don't have sensory issues simply doesn't fully understand their condition and is so used to dealing with sensory issues, they don't recognize them for what they are...


I've wondered about that recently. The sensory issue, that is. Mind you, my therapist ID'd autism as likely once hearing what going outside and running errands does to me fatigue-wise. I recently put two and two together and asked him if it was a sensory issue he suspected, and he said yes.

I'd thought it'd be a problem when I go for my first legit evaluation. Apparently not. Not if they accept what he says as valid.


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17 Feb 2014, 7:49 pm

Technically, the higher functioning one is, the less affected they are by sensory symptoms.

No, seriously. Read the medical literature (you'll find that people with AS aren't really supposed to have them at all).



Lumi
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17 Feb 2014, 8:17 pm

Dillogic wrote:
Technically, the higher functioning one is, the less affected they are by sensory symptoms.

No, seriously. Read the medical literature (you'll find that people with AS aren't really supposed to have them at all).

Severity tends to affect functioning...it does for me.


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Last edited by Lumi on 17 Feb 2014, 8:32 pm, edited 1 time in total.