Will this happen!

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Will I eventually be forced to have a 'carer' go everywhere with me just because I have aspergers?


Isn't that usually the policy for people with autism in the UK?

No.

The usual policy in the UK is for people with disabilities, and even terminal illnesses, to be declared fit for work and then deprived of the means of supporting themselves when they can't work.

Thanks

jamesey,
just ask self why is it that need support staff when are a independant adult?

unless are assessed by social services to have 'substanshal or critical' care needs will not get access to funding for a carer in the first place.
aspies regulary do not meet the 'substanshal or critical' care needs criteria,aspies are in the 'high functioning' spectrum;which means their IQ is above 70.

this means they automaticaly dont meet criteria for being supported by the learning disability team,so the only way into support for them is by having comorbid severe mental illness that impacts on their ability to function day to day such as clinical depression or physical disabilities,or sensory impairment [blind or deaf,VI or HI].

No. I'm not even entitled to Disability Living Allowance, and I can't get the right support I need because I am too high-functioning (intellectually and physically).

~OUCH~

that's harsh

if have got some support needs then it is possible that meet at least low rate care DLA, and perhaps low rate mobility DLA.
itd be worth getting that looked at again,DIAL are good for sorting things like that- http://www.scope.org.uk/dial
theyre owned by the cerebral palsy charity;SCOPE but they work for people with all disabilities.


although it is a significant problem with UK benefits;thats a case by case basis and isnt a majority of claimants.
in recent months have personaly been transfered from DLA high rate care and high rate mobility to the PIP equivilent and from income support to ESA; support group-didnt have any issues.
however the shocking treatment of fellow disabled people,such as sheila holt; http://disabilitynewsservice.com/2014/0 ... e-reforms/ and the thousands of suicides and deaths directly resulting from disabled people being found fit for work is why had attended the manchester protest against ATOS last month,unfortunately sheila has still yet to come out of the coma; amazing they still hassled her to work when she was in a f-king coma,disgusting.

Wow. For some reason I always thought the UK was better about these things than America. I geuss I'm wrong as I'm very high functioning and have yet to be cut off from disability. Still sucks but since I dont have a job I have no choice.

Everybody is irritated at everything, even Europeans about their welfare states but in the civilized world medical care won't drive you into bankruptcy. That pleasure is reserved for the US where we try to pay for surgery with bake sales and fight insurance companies to cover 80 percent of our medical bills from our sick beds.

I imagine if your state of living gets bad enough you could end up being intervened by adult protective services if the UK has such a thing or perhaps if your mental state deteariated enough you could be by law placed in a mental hospital for observation and possible treatment that usually has time limits as to how long they can keep you however both scenarios are is highly unlikely. I think it takes a few incidents with the police before people start to pay attention to you and care. I think weather or not you retain or sign off your legal guardianship will have an impact as to weather or not your treated as an adult legally or more like a child.

I live in America, have a carer and aide until I gain a lot more daily living skills.

If you need an aide, then yeah, you'll have to get one to make sure you're safe when you go out. But many autistics don't need one. I don't, at least not for simple trips like going to the store or walking to school. I can even use the bus now. For more complicated things, I would need someone with me--I once nearly lost it on a long-distance bus ride--but simpler trips are easier and I can do those.

It's not your diagnosis that matters; it's whether you are able to be out on your own safely. Can you cross a street without risking getting hit? Can you communicate with people you meet? Can you find your way if you're lost? Can you identify and stay away from dangerous situations? Things like that.

There's a middle-ground option for some people--an autism service dog. A dog can be trained to do simple tasks like keeping you from thoughtlessly wandering into the road, or leaning against you when you are overloaded. If those simple things are all you need, then you might be able to go out alone with a service dog rather than an aide.

At my level of independence, the only thing I need is a cell phone so that I can call for help if I need it. So far, it's only happened a couple of times. I don't need an aide with me just to travel--I occasionally do, if whatever I'm doing at my destination is going to be tricky, but just getting there, I can do by myself. I can even drive, though I haven't done it in a while now. I really prefer walking--I'm not a very good driver because I just can't process all of that information so quickly. If I can, I'll live in the city when I finally get a job, so I don't have to have a car.

Callista. I enjoy reading your posts.

You said Asperger's, right?

I have no 'carer', so there you go. I am the engineer sort of Aspie, good at math and science, and struggles with all things social.