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EzraS
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23 Mar 2014, 6:03 am

Sorry if this is rambling. Just trying to sort it out a way to properly describe the effects autism has on me, in a brief way to people in other forums.

I always have trouble using the right terms describing my autism and has caused people to misunderstand.

Based on what I have been told:
Intellectually I'm very sharp and perceptive in the way I see things in what I post. I think a lot of that comes from reading lots of books and learning character traits. So it's easy for me to understand the character traits of people on forums in text, because of the character traits I've learned about in story characters in text. Like I will think of someone as being like so-in-so in a book I have read. So I'm able to read people and their situations and problems in text that way. So everyone is like "wow you are so sharp and perceptive"

But in appearance I'm told:
I don't talk (well know that one without being told).
Withdrawn.
Lack of eye contact.
Odd face, neck and body movements.
Look inattentive to the untrained eye.
Almost constantly rocking and other stims.
Basically what someone might describe as looking like a "basket case"

Also I have trouble with my senses in my perception of things, like keeping a sense of direction and noticing my surroundings properly. Like I will take in small details like an ant crawling on on the sidewalk but at the same time might step out into traffic and get run over.

Would "pronounced autism" be the right term for the way I am, or is that just another way of saying severe autism? Which I don't think is the right term for me.



Last edited by EzraS on 23 Mar 2014, 6:13 am, edited 1 time in total.

pensieve
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23 Mar 2014, 6:10 am

For some people in my family the only way they got to understand me more was though my blog. I'm never able to explain things that well face to face. Some people don't understand this and expect me to be as articulate face to face as I am through text.

I think you said you had moderate autism before. Does that seem to fit?

I have a lot of trouble seeing everything in my environment too. It's there but doesn't process.


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EzraS
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23 Mar 2014, 6:21 am

Well moderate is a term I have heard used about me before. But that is always laced with other terms which get jumbled in my head. But yeah, maybe I should do a blog with what I wrote above and then link it to what I write. Like moderate autism with the blog passage linked into that.



guzzle
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23 Mar 2014, 6:27 am

EzraS wrote:
Would "pronounced autism" be the right term for the way I am, or is that just another way of saying severe autism? Which I don't think is the right term for me.


I clicked on on this thread to see what was meant by 'pronounced'. At first I thought it read profound though.

http://thesaurus.com/browse/pronounced
http://thesaurus.com/browse/profound



EzraS
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23 Mar 2014, 7:40 am

guzzle wrote:
EzraS wrote:
Would "pronounced autism" be the right term for the way I am, or is that just another way of saying severe autism? Which I don't think is the right term for me.


I clicked on on this thread to see what was meant by 'pronounced'. At first I thought it read profound though.

http://thesaurus.com/browse/pronounced
http://thesaurus.com/browse/profound


The first synonym for pronounced that I saw was "noticeable". Which is what I am getting at. Not as noticeable in my writing but very noticeable in my behavior. So maybe noticeable autism in appearance and outward behavior. I think that works good.



Wind
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23 Mar 2014, 7:54 am

Generally a lot of ASD behaviour is seen by others anyway, as like others say, NT's just know something is up.

I'm always rocking back and forth in public, or rocking my legs up and down viciously, I don't want to stop, or I get very fidgety. My behaviours are seen by others, it's what makes me so weird, and I like being weird :D Maybe I wish I wasn't as weird as I am, but I like being different anyway. Being 'samey' is boring.

I wouldn't say it's pronounced Autism, as behaviours are usually already seen in most ASD anyway, with or without diagnosis. Even if you think you're hiding it all your life, you probably aren't. I thought I was, then I realised "wow, people really do think I'm so weird, I'm not hiding this am I?"


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Eloa
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23 Mar 2014, 9:18 am

EzraS wrote:
Sorry if this is rambling. Just trying to sort it out a way to properly describe the effects autism has on me, in a brief way to people in other forums.

I always have trouble using the right terms describing my autism and has caused people to misunderstand.

Based on what I have been told:
Intellectually I'm very sharp and perceptive in the way I see things in what I post. I think a lot of that comes from reading lots of books and learning character traits. So it's easy for me to understand the character traits of people on forums in text, because of the character traits I've learned about in story characters in text. Like I will think of someone as being like so-in-so in a book I have read. So I'm able to read people and their situations and problems in text that way. So everyone is like "wow you are so sharp and perceptive"

But in appearance I'm told:
I don't talk (well know that one without being told).
Withdrawn.
Lack of eye contact.
Odd face, neck and body movements.
Look inattentive to the untrained eye.
Almost constantly rocking and other stims.
Basically what someone might describe as looking like a "basket case"

Also I have trouble with my senses in my perception of things, like keeping a sense of direction and noticing my surroundings properly. Like I will take in small details like an ant crawling on on the sidewalk but at the same time might step out into traffic and get run over.

Would "pronounced autism" be the right term for the way I am, or is that just another way of saying severe autism? Which I don't think is the right term for me.


Did you ever read the books of Tito Rajarshi Mukhopadhyay, because he was diagnosed with severe low-functioning autism in early childhood, but he did write one part of a book age 8 and one part age 11, very intelligent writing, and the other books I haven't read yet, still is he having severe autistic symptoms, in spite of his intelligence.
Today I saw a double-page article in the newspaper about a book written by an Japanese boy, who is diagnosed with severe autism, he wrote the book age 13.
These books written by young people diagnosed with severe autism are crushing common myths about autism, for example that autistic people do not want to bond with people, but Tito was so attached to his therapist, that when she moved into another city, his mother had to move with him to the same city, so that he could be with her. But he could not show his attachment as non-autistic people can.

In this book-review I read today is written:
Quote:
What sticks out in particular is that behind this uncontrolled body and this greatly fragile communication lives a sensitive and sharp-witted mind. Someone who seems much more mature than his age and behavior may suggest.
This book is the proof that the classical definition of autism is wrong. A person with autism has too much of those things of which we usually think they are lacking. Naoki is clearly not insensitive, but highly sensitive and his typical lining up of toys is no sign of autism, but a way to defeat the endless stream of input.
Naoki puts an end to one of the most depressing common ideas about autism, in particular, that autistic people are maladjusted loners without any empathy.


EsraS, you can have a brilliant mind and severe autistic symptoms or a brilliant mind and some severe and some less severe autistic symptoms and other variations of it.


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23 Mar 2014, 9:44 am

The Reason I Jump by Naoki Higashida, I love it and own a copy...

I understand more about self than any other autism book I have read (several).
EzraS, it is very difficult for me to see how my autism affects me.


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Last edited by Lumi on 23 Mar 2014, 10:30 am, edited 2 times in total.

Eloa
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23 Mar 2014, 9:57 am

I did not know the English title, but in this country is got just published, therefore the book-review in the newspaper, and I really want to have it, and I am really glad, that there was this book-review in the newspaper, because people learn more about autism.


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EzraS
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23 Mar 2014, 10:02 am

Eloa wrote:
Did you ever read the books of Tito Rajarshi Mukhopadhyay, because he was diagnosed with severe low-functioning autism in early childhood, but he did write one part of a book age 8 and one part age 11, very intelligent writing, and the other books I haven't read yet, still is he having severe autistic symptoms, in spite of his intelligence.
Today I saw a double-page article in the newspaper about a book written by an Japanese boy, who is diagnosed with severe autism, he wrote the book age 13.
These books written by young people diagnosed with severe autism are crushing common myths about autism, for example that autistic people do not want to bond with people, but Tito was so attached to his therapist, that when she moved into another city, his mother had to move with him to the same city, so that he could be with her. But he could not show his attachment as non-autistic people can.

In this book-review I read today is written:
Quote:
What sticks out in particular is that behind this uncontrolled body and this greatly fragile communication lives a sensitive and sharp-witted mind. Someone who seems much more mature than his age and behavior may suggest.
This book is the proof that the classical definition of autism is wrong. A person with autism has too much of those things of which we usually think they are lacking. Naoki is clearly not insensitive, but highly sensitive and his typical lining up of toys is no sign of autism, but a way to defeat the endless stream of input.
Naoki puts an end to one of the most depressing common ideas about autism, in particular, that autistic people are maladjusted loners without any empathy.


EsraS, you can have a brilliant mind and severe autistic symptoms or a brilliant mind and some severe and some less severe autistic symptoms and other variations of it.


Have not read the book but will look at it.
I was diagnosed severe low functioning originally. I do a lot of stuff now they said I wouldn't be able to.



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23 Mar 2014, 10:49 am

I enjoy reading your threads because it you're an interesting person and I gain a lot of insight by reading them. You can be profound and very intelligent at the same time.


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sharkattack
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23 Mar 2014, 11:20 am

Your posts are always easy to understand.

Writing seems to be your best way of self expression.

As regards people not understanding you on other forums the answer could be this is a complex subject and most people have no experience of it.

I have been banned from a number of online forums.



EzraS
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23 Mar 2014, 8:06 pm

sharkattack wrote:
Your posts are always easy to understand.

Writing seems to be your best way of self expression.

As regards people not understanding you on other forums the answer could be this is a complex subject and most people have no experience of it.

I have been banned from a number of online forums.


It's just the way I have mentioned my autism in a sentence that gets misunderstood and then requires me to explain what I meant. But I have had amazing success in posting on forums to my surprise.



sharkattack
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24 Mar 2014, 12:26 am

EzraS wrote:
sharkattack wrote:
Your posts are always easy to understand.

Writing seems to be your best way of self expression.

As regards people not understanding you on other forums the answer could be this is a complex subject and most people have no experience of it.

I have been banned from a number of online forums.


It's just the way I have mentioned my autism in a sentence that gets misunderstood and then requires me to explain what I meant. But I have had amazing success in posting on forums to my surprise.


Forums on a topic like movies I am fine but general discussion forums I always get misunderstood and banned.



EzraS
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24 Mar 2014, 1:32 am

sharkattack wrote:
[quote="EzraS"
Forums on a topic like movies I am fine but general discussion forums I always get misunderstood and banned.


Yeah, that's understandable. One of my friends on a discussion forum is an aspie and I knew eventually they would ban him, which is what happened. And I had a funny thing happen a while ago where I went on a forum and it was an absolute disaster. I'm sure I would have been banned if I stayed on. They were all just such jerks in my opinion, and I came right out and told them so of course.

But for my main forum, I have done really well:

Image



sharkattack
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24 Mar 2014, 10:28 am

Well done I just avoid general discussion forums now.