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sharkattack
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11 Apr 2014, 6:36 pm

I started a thread on here about two weeks ago about how I disliked threads with people crying about sensory issues.

The last two days in work particularity the first two or three hours people getting in my way and noise sent me into near meltdown.

Knowing now that I am on the spectrum I kept my inner turmoil to myself unlike the way I use to vent.

It is said people on the spectrum can not filter distractions and I have found this is not true a lot of the time my mind does filter it out.

However sometimes it does not filter it out and my stress levels rise and rise. :twisted:

I was wrong sorry. :oops:



Lumin
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11 Apr 2014, 6:58 pm

No worries. Life is one continuous learning experience. I hope all is well now!



sharkattack
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11 Apr 2014, 7:12 pm

:)



KingdomOfRats
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11 Apr 2014, 7:27 pm

stress will be making the sensory issues worse as it makes us have less tolerance overall in general.


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sharkattack
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11 Apr 2014, 7:30 pm

KingdomOfRats wrote:
stress will be making the sensory issues worse as it makes us have less tolerance overall in general.


Agreed.



Willard
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11 Apr 2014, 7:41 pm

It seems so strange to me that it's only recently you hear much about the "Intense World" concept of autism, because the first time I saw psychologists working with low functioning nonverbal autistic children back in 1982, and the reporter asked why they were rocking and stimming (though they didn't use that word), and the researcher said "We really don't know that yet," I was shocked to hear him say that, because I, who knew nothing about autism at the time, could see from my living room just watching on TV, exactly why they did it. I even said it out loud: "Ask me, I know why." In fact, I may have used the very phrase "They do it because life is too intense and it hurts."

I knew this because even though I was much higher functioning than those kids were (and wouldn't even hear the word "Asperger Syndrome" for another 20 years), I had been stimming like that every day of my life and I knew why I did it. Because, unlike all the people around me, who seemed to cope with day-to-day life rather calmly most of the time and only rarely stressed out much about anything, my life seemed to affect me very differently - as Christopher Guest said about his amp in 'This Is Spinal Tap': "This one goes to 11."

It wasn't just that sounds seemed louder to me than to others, or lights brighter - how would I know that? It was just...EVERYTHING - life itself just felt too intense. I don't know how else to describe it. Like I could never, ever, completely relax the way other people did. I felt constantly on my guard, like my 'Fight or Flight' response was turned on and somebody broke off the knob. Until that night I saw those autistic kids on television, I don't think I'd ever been able to articulate clearly what I'd been experiencing for (then) 22 years. Life was too intense.

Now, if that's they way you've been since the day you were born, you may not be consciously aware of why you feel the way you do, or why you react to the everyday circumstances of life they way you do, but not knowing doesn't change the fact that it affects you - it affects how you interact with others, it affects your decision making processes and in doing so, to a large degree, it serves to form your very personality.

I think the ability to learn how to "filter out" a lot of that extraneous sensory stimuli is part of what allows some of us to be High Functioning - if I couldn't ignore a lot of it most of the time, I'd just sit in a corner all day and bang my head against a wall - and that's exactly what a lot of Low Functioning Autistics do. Most of the time I manage to put it aside and focus on more practical things, so that the sensory stuff becomes background noise - not lower, per se, but like the loud banging mechanical noises that factory workers learn to ignore, so they can do their jobs yet still hear each other talk. But it never goes away.

In fact, I've gotten so good at ignoring it, that sensory stimuli by itself rarely sends me into meltdown territory, it usually takes something else on top of it to put me over the edge, like being bullied or pushed around and verbally abused. But that doesn't mean it can't stress me out and get me completely discombobulated and disoriented, or cause me to spontaneously shut down and become nonverbal.

But on a daily basis, there are still lots of little things that can make life a living hell. I live in a lower floor apartment and my neighbors tromping across my ceiling makes me so miserable I wish I could afford to move to nice little rent house in the country. Strangers unexpectedly starting conversations with me makes me feel like someone is slapping me about the head and expecting me to think clearly. Today is a beautiful day and I opened my windows for the breeze and the fresh smelling air - and every time my neighbor's air conditioner kicks on, it sounds like grinding gears in a truck, sends an electric pulse right up my spine and sets my teeth on edge. :shaking:

I'm just thankful I don't have a doorbell anymore. :roll:



sharkattack
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11 Apr 2014, 7:56 pm

Willard and KingdomOfRats you two have the ability to put into words beautifully what I have always felt and I suspect what many more have felt.

Willard I read your other thread describing what Autism felt like and it blew me out of the water.

As for KingdomOfRats you are like an autism encyclopedia.

KingdonOfRats your profile says severe autism and if it is like Willard described your sensory filter does not work at all my heart goes out to you.



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11 Apr 2014, 8:55 pm

sharkattack wrote:
I started a thread on here about two weeks ago about how I disliked threads with people crying about sensory issues.

The last two days in work particularity the first two or three hours people getting in my way and noise sent me into near meltdown.

Knowing now that I am on the spectrum I kept my inner turmoil to myself unlike the way I use to vent.

It is said people on the spectrum can not filter distractions and I have found this is not true a lot of the time my mind does filter it out.

However sometimes it does not filter it out and my stress levels rise and rise. :twisted:

I was wrong sorry. :oops:


I've found that often people find it hard to relate to sensitivity if they do not routinely experience it.

Or they relate it to something significantly less severe, as my family frequently does when I indicate that I am overloaded.



skibum
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11 Apr 2014, 10:46 pm

Big Hug SA!


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skibum
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11 Apr 2014, 10:50 pm

Like Willard said, the way I describe it is that I feel like my world spins too fast and I sometimes feel like I am drowning in the sensory whirlpool.


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daydreamer84
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11 Apr 2014, 11:20 pm

:lol: I'm full of it sometimes too. The fact that you'll make a whole thread to admit it to everyone on the forum is a point in your favour, IMO.



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11 Apr 2014, 11:31 pm

daydreamer84 wrote:
:lol: I'm full of it sometimes too. The fact that you'll make a whole thread to admit it to everyone on the forum is a point in your favour, IMO.
I agree. I think SA is one of the coolest most genuinely humble people here. I really think you are a wonderful person SA.


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12 Apr 2014, 1:03 am

Yes, sensory issues are awful, they're the worst part about having autism for me. They're even worse when they come out of nowhere and you're not expecting them, it's like electricity shooting through your whole body and you feel afraid and angry and in pain all at the same time. I'm sorry you had to find out what they're like SharkAttack :(


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13 Apr 2014, 6:54 am

I agree with Willard on this one - the Intense World Theory. For me, the sensory integration issues are at the core of my symptoms - the social and communication impairments. Some days, I'm just too tired out from dealing with sensory information overload to be able to participate effectively in social situations. I'm pretty good at filtering out stuff, especially when focused on something of deep interest to me, but there are times when it is simply just too much. Especially during stressful social events, such as conflict.

I wish you all the best in your workplace, sharkattack.