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Mpregangel
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18 Apr 2014, 1:58 am

Does anyone here have autism and suffer seizures? I'm worried I'm having seizures but they're not the tonic-clinic kind. I kinda zone out or get spaced out. Sometimes I don't think I notice them but my buddies have a few times. I don't seem to frequent them but I'll probably call my doctor after the holiday. Can you be like semi-aware during a seizure? Are before or after headaches normal? How long? I wasn't super tired afterwards. My legs seems to twitch sometimes? I feel confused.



Aharon
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18 Apr 2014, 4:02 am

I had some severe seizures as a child, and was on phenobarbital for a few years. I haven't had any major seizures since, although I will occasionally get "flutters" when I'm really tired. I feel a wave pass through me that jolts all the muscles in my body and makes my head go back. It only lasts for a second. I have had a couple of instances where I blacked out and went rigid for a few seconds, but that hasn't happened in years now. Doctors have been unable to confirm or rule out that these are related to my childhood condition. It's never gotten worse so I don't take mine too seriously and just sort of pass it off as a robotic twitch, lol. If you feel concerned though, perhaps you should have it looked at.


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KingdomOfRats
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18 Apr 2014, 4:21 am

there are seizures; which refers to epilepsy, or NEA, which is non epileptic attacks, without an EEG of them happening its impossible to say whether will be having either epilepsy or NEA.
they used to call NEAs pseudo seizures which was very wrong as pseudo means fake and a lot of people take that to mean someones faking seizures,but they arent seizures to begin with,theyre attacks of a non epileptic origin, often they are mental distresses converted into physical symptoms such as these seizure like attacks, wasnt it sigmund freud that first wrote about how mental can become physical?

am severely lifelong epileptic [have been on all sorts of medications since a young toddler but since nineteen am on nearly two thousand mg of tegretol and PRN diazepam for status epilepticus] and have a special sensor pad under matress which has a device with the staff so that they can know instantly when am having a seizure as the alarm on it goes off and informs them in text, it costs hundreds of pounds but luckily got it on NHS, heres a photo had taken of it-
http://theresidentialautist.blogspot.co ... -tech.html

have also got abscence seizures,have a lot of these throughout the day.
a lot of challenging behaviors of mine were once thought to be products of epilepsy but was given EEGs and they were found to be a product of autism not epilepsy,coud of told them that if had been able to.


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EzraS
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18 Apr 2014, 6:47 am

I had seizures once in a while until I was about 7. I spent many years in a special school that's mostly autistic kids up to age 17 and I know a few of them had problems with seizures. Now as far as spacing out and kinda feeling paralyzed, that still happens to me at times. They call it me going catatonic.



adriantesq
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18 Apr 2014, 8:53 am

When I was a kid, I used to have melt downs into near-death comas, and was even pronounced dead on two separate occasions, and came back to life. This was because they weren't near-death comas at all - they were out-of-body trips to heaven to sit and talk with my mother's maternal grandfather, my #1 guru for the first three and a half years of my life. They didn't start happening until he died.

They continued happening until I had a traumatic head injury at fifteen and a half and forgot about all that stuff for about 35 years until a had a nervous breakdown at work for a variety of reasons, but one was that some of these memories had begun popping from my subconscious to my conscious making me wonder WTF had been going on in my infancy, childhood and early teens. So I had hypno regression therapy and was diagnosed and treated for autism and aspergers syndrome. I'm 69 now.

I've explained the first seven and half years of my life in my book, "Dafydd Bach: Death of Innocence: The Beginning", by David Adrian Thomas, Esq., which went viral last week and is now a #1 bestseller on Amazon.Co.UK and a #1 bestseller on Amazon.Com - its a Kindle book, the first in a trilogy about My Life of Autism and Asperger's Syndrome.

PS - these weren't seizures - they were deliberately and wilfully and consciously engineered by me - and I specialised professionally in highways and transportation for my 50 year career because I could do this - and I wasn't alone in being able to do it



Mpregangel
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18 Apr 2014, 2:05 pm

Thanks, I plan on calling my doctor after Easter just in case. I just am trying to get more information on the subject so I know what to talk about and what may or may not be concerning. I didn't know if there are seizure where you might be aware or more like semi-aware of your surrounding.