Describing ASD Autiism Aspergers from our point of view

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sharkattack
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23 Apr 2014, 4:31 pm

In this thread I am trying to get our description of communication difficulties.

The so called professionals like the say people with Autism see the world in a different way.
I think the last sentence is untrue in large part.

My part of the spectrum is what use to be known as Aspergers and I am very aware of my communication difficulties.
People tend to think of Aspies as rude as they mistake our bad communication for rudeness.
I am convinced people with more severe Autism are mistaken for stupid because they are not given the chance to communicate by the so called professionals.

I have had a life of people getting angry with me because they have misunderstood me.
People have been fast to right me off as rude rather then ask me for clarification.

As you can see my poor communication is showing in this very post.

What I am looking for is a short to the point explanation of what communication misunderstandings feel like from the point of view with people with Autism that can explained quickly to NT people.

I am sure we can do better then we see the world in a different way.



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23 Apr 2014, 9:59 pm

You could go with the wrong planet idea or something similar. It feels like you were dropped off in another country without bieng told and were just expecteed to understand thier language and culture


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EzraS
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24 Apr 2014, 4:10 am

This is what I said to someone recently:

What I'm saying is that if I seem reserved or whatever you find different from others, is because that's how autism works. I'm not able to socialize in whatever way you are used to. That is me being myself. Most people take it the wrong way and think I am brushing them off or being rude or cold and distant or whatever. Not much I can do about that I'm afraid.



sharkattack
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24 Apr 2014, 4:21 am

I am an adult now I am thinking of how Autism is described in young kids.

I hope they are given more of a voice then all of us got.



sharkattack
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24 Apr 2014, 4:24 am

EzraS wrote:
This is what I said to someone recently:

What I'm saying is that if I seem reserved or whatever you find different from others, is because that's how autism works. I'm not able to socialize in whatever way you are used to. That is me being myself. Most people take it the wrong way and think I am brushing them off or being rude or cold and distant or whatever. Not much I can do about that I'm afraid.


From our perspective I think NTs seem rude and pushy because they have no patience with slow communication.
People take up one thing wrong and they don't just write you off they tell a load of people too.



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24 Apr 2014, 10:46 am

I like my humorous approach.

"Okay, wanna know what Autism's like? Imagine Nicolas Cage. Now imagine everyone's Nicolas Cage. You'd have a tough time communicating, because you don't know if he's happy or being threatening- he's waving his arms about and his eyes are bugging, you don't know what it means; and now you've noticed everyone's doing it, making their very presence a grate upon your existence."



CWA
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24 Apr 2014, 11:20 am

Teyverus wrote:
I like my humorous approach.

"Okay, wanna know what Autism's like? Imagine Nicolas Cage. Now imagine everyone's Nicolas Cage. You'd have a tough time communicating, because you don't know if he's happy or being threatening- he's waving his arms about and his eyes are bugging, you don't know what it means; and now you've noticed everyone's doing it, making their very presence a grate upon your existence."


I like it. It's accurate and says a lot about Nicks acting abilities :P

My daughter (I asked her, she's 6) says on top of having no #$%$ing clue what anyone really means most of the time she also has a lot of "Stuff" in her head that makes it hard for her to remember things or pay attention. She was unable to specify what "stuff" was in her head. My personal guess is that she has special interest stuff going on in there, or repetitive thoughts, but I don't know. Anyone have "stuff" in their head or have a theory on what that is??



Sethno
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24 Apr 2014, 12:56 pm

If, as I suspect (along with two professionals) I'm on the spectrum, I'd say it's like there's several instruments in the orchestra that I can't hear.

Certain variations in the tune that those instruments are playing are beyond my range of hearing. I hear the basic tune, and can hum it back, but other people are hearing a far richer version of the orchestra, and can repeat back an imitation of the tune that exceeds my ability to reproduce it.

Another way of putting it is that it's like I'm color blind, and am oblivious to the differences between certain colors, colors that to others are obviously VERY different from each other. The difference here is that this "color blindness" involves elements that make up human communication. I can't perceive some of the subtle things that make that up, and so may reply in a way that seems inappropriate or inattentive. It may annoy the people I'm interacting with, but their expecting me to understand and perceive something beyond my brain's ability to deal with is maybe even more annoying, if not hurtful, to me.


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24 Apr 2014, 2:44 pm

sharkattack wrote:
From our perspective I think NTs seem rude and pushy because they have no patience with slow communication.
People take up one thing wrong and they don't just write you off they tell a load of people too.


^THIS. And this is why a short, pithy explanation probably won't work any better than a longer, slower explanation. It doesn't really matter how well you explain it. They are just looking for that one thing they can latch on to and make assumptions about.



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24 Apr 2014, 3:34 pm

how i describe it to adults and people my age:

im just not born with social rules, i had to figure it out on my own, im also sensitive, sounds are louder and lights are brighter, and i cant be around people for too long or i meltdown and become depressed. i get stressed easy so to calm myself down i have a Special Interest and sometimes, i forget that if i talk about it too much i bore people.

how i describe it to children.

show them this video


https://www.youtube.com/watch?v=s9eATBV-_lg


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sharkattack
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24 Apr 2014, 3:44 pm

dianthus wrote:
sharkattack wrote:
From our perspective I think NTs seem rude and pushy because they have no patience with slow communication.
People take up one thing wrong and they don't just write you off they tell a load of people too.


^THIS. And this is why a short, pithy explanation probably won't work any better than a longer, slower explanation. It doesn't really matter how well you explain it. They are just looking for that one thing they can latch on to and make assumptions about.


I think you have hit the nail on the head.

It does not matter how you explain it if people don't want to take it in.



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24 Apr 2014, 3:56 pm

Well one aspect is being interrupted all the time because it takes you longer to put your thought into words before people move on, then when you can put it into words and attempt to get back in the conversation to do so before it moves on....people are annoyed because you're trying to 'interrupt' when they never let you finish what you were saying in the first place.

Or you think there is a stop in the conversation and go to say something only to realize no one heard you say anything. I also sometimes have people thinking I'm stupid because it might take me longer to put something into words or due to being somewhat oblivious people that aren't jerks just laugh with me when I have an oblivious moment.


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dianthus
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24 Apr 2014, 5:17 pm

sharkattack wrote:
I think you have hit the nail on the head.

It does not matter how you explain it if people don't want to take it in.


It may not even be a question of whether they want to or not. Maybe they just can't. It can make you feel like you communicated poorly, when that may not be the case at all.

Our communication is more informative. NT communication is more emotional. When they are looking for that one thing they can hold on to and understand, they are usually looking for something emotional.

If it feels good to them, they pretty much automatically think you are cool. They may not have really connected with you or understood you at all, they are just buzzing on that good feeling. They do this with each other, it's how they bond.

If it feels bad to them, they tend to overreact and it's like they are holding on to that one thing so hard they just can't hear anything else. Part of the reason why they go tell other people is they want someone to make them feel better. We all do this sometimes, or to some extent, but I think NTs do it more routinely.

If you are anything like me, I just have a knack for saying things that happen to trigger bad feelings in people. I don't intend to make people feel bad, but most of the time I probably don't intend to make them feel good either. I think I am just giving information in a neutral way, but they can't process "neutral" very well. It's like they need to emotionally code the information as good or bad before they can even begin to process it.

Anyway what I am getting at is this. When you want to explain something like Aspergers or autism, it almost goes against the grain of how NTs are wired to communicate. It is highly informational, and it is about a subjective perceptual experience that is very different from their own. Even if they really want to understand, it is not going to come naturally. They are going to look for something that resonates emotionally to them, which will distort everything you are intending to communicate.



sharkattack
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24 Apr 2014, 5:24 pm

The two of you before this post have really explained things perfectly and I can closely relate to the two posts.

The NT way of communicating seems Alien to me.



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24 Apr 2014, 7:16 pm

Here's how I explained it to my best friend, the (aggregated over several months) conversation went something like this:

Me: What I'm trying to tell you, if you'd let me get a word in edgewise, is that my brain is actually wired significantly differently from yours and because of that my perception of the world is significantly different from yours.

Her: That makes no sense, you're saying that our brains are so different, yet we can communicate. We're having this conversation about this right now, and if your brain were really that different from mine we wouldn't be able to do so.

Me: Listen, all I'm saying is that because my brain is different, my perspective is different. Not totally alien, just different. That's why I need you to believe me when I say I'm hypersensistive, because there is a real difference between how much sensory information I'm aware of, and how much you're aware of. It's not huge, but it's enough that everything is just a bit more intense for me.

Her: Now you're saying your senses are superior to mine!? I know that's not true!

Me: No, I'm saying that your brain is simply filtering out slightly more of it from your conscious awareness than mine, not that my senses actually pick up more or work better, just that my perception of the input is more intense, not even that it's more accurate or that I can perceive more because of it, just that it's more intense, and that's why I have trouble with certain sounds & such, and why I'm constantly making all those social faux pas that you keep correcting me on, which I appreciate.

Her: Oh... Well, I'm still not sure if I believe you, but that make some sense I guess, so I'll think about it.

----

Years later she became the first person I know to stop someone else from doing something which (unbeknownst to them) was causing me to bite myself.
Sometimes it takes them a while, and they're not always willing to try to understand, but some allistics do eventually get it, and then they can be our best allies & defenders.



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24 Apr 2014, 7:26 pm

Bodyles wrote:
Here's how I explained it to my best friend, the (aggregated over several months) conversation went something like this:

Me: What I'm trying to tell you, if you'd let me get a word in edgewise, is that my brain is actually wired significantly differently from yours and because of that my perception of the world is significantly different from yours.

Her: That makes no sense, you're saying that our brains are so different, yet we can communicate. We're having this conversation about this right now, and if your brain were really that different from mine we wouldn't be able to do so.

Me: Listen, all I'm saying is that because my brain is different, my perspective is different. Not totally alien, just different. That's why I need you to believe me when I say I'm hypersensistive, because there is a real difference between how much sensory information I'm aware of, and how much you're aware of. It's not huge, but it's enough that everything is just a bit more intense for me.

Her: Now you're saying your senses are superior to mine!? I know that's not true!

Me: No, I'm saying that your brain is simply filtering out slightly more of it from your conscious awareness than mine, not that my senses actually pick up more or work better, just that my perception of the input is more intense, not even that it's more accurate or that I can perceive more because of it, just that it's more intense, and that's why I have trouble with certain sounds & such, and why I'm constantly making all those social faux pas that you keep correcting me on, which I appreciate.

Her: Oh... Well, I'm still not sure if I believe you, but that make some sense I guess, so I'll think about it.

----

Years later she became the first person I know to stop someone else from doing something which (unbeknownst to them) was causing me to bite myself.
Sometimes it takes them a while, and they're not always willing to try to understand, but some allistics do eventually get it, and then they can be our best allies & defenders.

is "bite myself" an expression or do you really bite yourself? Just curious.