Study: 75 % of Aspies will no longer considered autistics

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06 Jun 2014, 3:04 am

http://www.jaacap.com/article/S0890-8567(12)00042-1/abstract

So the new diagnosis is more about filtering than merging diagnoses.

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06 Jun 2014, 3:53 am

That link doesn't seem to work ... but I suspect from what I've read elsewhere I suspect that your comment is correct - which means (in the UK at least) that the state won't have to fund their assessments or assisted work programmes anymore! How convenient.

LoveNotHate
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06 Jun 2014, 4:34 am

I found this ...

On March 31, 2013, The Sydney Morning Herald quoted Dr. Attwood, who lives in Queensland, Australia, saying, "At worst, 75 per cent of those with a current diagnosis of Asperger's will no longer meet the criteria for an autism spectrum disorder diagnosis under the new criteria." Dr. Attwood is cautioning the Australian government about using the APA's DSM-V criteria.

A new diagnosis is created called "Social Communication Disorder" for people who solely have trouble with social communication. Many AS people are expected to have their diagnosis changed from AS to SCD.

source, http://www.aspergersyndrome.org/Article ... NOSIS.aspx

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GGPViper
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06 Jun 2014, 4:43 am

I would like to draw attention to a previous post I made with somewhat different conclusions than the one in the OP (I fixed the link, BTW):

http://www.wrongplanet.net/postp5884024 ... t=#5884024

GGPViper wrote:

I thought some might find this interesting:

A new study was just released documenting the changes from DSM-IV to DSM-V in the prevalence of autism diagnoses based on a South Korean sample of 7-12 year old children (N=55,256).

The overall DSM-V prevalence of Autism Spectrum Disorder (ASD) was 2.2 percent in the sample (1 out of 45), increasing to 2.64 (1 out of 38) if individuals diagnosed with the new Social Communications Disorder (SCD) were included (see the first link below). The authors note that this is almost identical to the prevalence of autism and other persistent development disorders under DSM-IV.

A more detailed breakdown of the results (from the second link below):

Sciencedaily wrote:

Looking at these subtypes, Yale child psychiatrist and epidemiologist Young-Shin Kim and her colleagues found the following:

Of children previously diagnosed with PDD-NOS, 71 percent would now be diagnosed with ASD, 22 percent with SCD and 7 percent with another non-autism disorder.
Of those previously diagnosed with Asperger disorder, 91 percent would now be diagnosed with ASD, 6 percent with SCD and 3 percent with another non-autism disorder.
Of those previously diagnosed with autistic disorder, 99 percent would now be diagnosed with ASD and 1 percent with SCD.

This suggests that the changes from DSM-IV to DSM-V in the prevalence of autism may be somewhat minor.

Individuals with classical autism would see almost no changes with the new criteria, while 10 out of 11 individuals qualifying for Asperger's Disorder under DSM-IV would receive a diagnosis of Autism Spectrum Disorder under DSM-V.

However, a sizable minority of individuals who would receive the PDD-NOS diagnosis under DSM-IV would instead be diagnosed with SCD under DSM-V. Since SCD is a new diagnostic category, the consequences of this diagnostic shift will likely require additional studies.

Furthermore, a CDC report studying the same changes from DSM-IV to DSM-V was recently released as well. These results showed a larger decrease in the prevalence of autism under DSM-V. However, the CDC study only took into account the ASD diagnosis, and did not include individuals who would instead be diagnosed with SCD under DSM-V (also see the second link below for reasons why the results in the South Korean study might be more valid).

Sources:
http://www.sciencedirect.com/science/ar ... 6714000446
http://www.sciencedaily.com/releases/20 ... 101232.htm
http://archpsyc.jamanetwork.com/article ... id=1814891
http://www.cdc.gov/ncbddd/autism/featur ... -dsm5.html

Both these studies are more recent - and use much larger samples - than the one mentioned in the OP.

pensieve
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06 Jun 2014, 6:27 am

They're still diagnosing Asperger's syndrome over here. I mean, I can still get cover for AS when I fly overseas. My psychiatrist suggested I have it too, though I'm already diagnosed...by him.

I'd think I'd fit the new criteria. I watched quite a detailed video about the criteria. I do all the repetitive stuff and still need people to help me to do things. I'm probably a level 2, still requiring assistance but not round the clock assistance.

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Adamantium
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06 Jun 2014, 7:44 am

The paper is two years old:

Quote:

Accepted 18 January 2012. published online 16 March 2012.

The "proposed" changes came into effect last year.

The result has not been massive numbers of people with Aspergers diagnoses losing their diagnoses, but rather an official transition to the Autism Spectrum Disorder label that had already been in use for years.

There is no point in digging up past speculation about what has now become history.

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06 Jun 2014, 8:14 am

Yeah I tend to agree. With Adam

Honestly? The new criteria are actually significantly better!! Have you had the chance to read through them yet?

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eggheadjr
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06 Jun 2014, 9:10 am

I'm of the impression you cannot "lose" your formal diagnosis. DSM-V applies to any new diagnoses going forward.

My doctor now lists my diagnosis as:

Autism Spectrum Disorder (High Functioning Autism - Asperger's subtype).

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MrGrumpy
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06 Jun 2014, 11:29 am

This thread confirms many of my own opinions about the Autism industry.

NONE of it can be confirmed - there are many and various professional opinions, and it is good that the search for understanding continues.

But it is madness for Auties to bemoan the 'loss' of an earlier diagnosis. It would make more sense to welcome a new perspective on the subject, given that most perspectives are, so far, more like a topic for discussion, rather than any kind of scientifically proven definition.

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06 Jun 2014, 11:52 am

The DSM 5 instructs that previous ASD diagnosis under the DSM IV continue in the DSM 5 with the new name of Autism Spectrum Disorder

Center for Disease Control DSM 5 Autism Spectrum Disorder Criteria listing
http://www.cdc.gov/ncbddd/autism/hcp-dsm.html

"Note: Individuals with a well-established DSM-IV diagnosis of autistic disorder, Asperger?s disorder, or pervasive developmental disorder not otherwise specified should be given the diagnosis of autism spectrum disorder. Individuals who have marked deficits in social communication, but whose symptoms do not otherwise meet criteria for autism spectrum disorder, should be evaluated for social (pragmatic) communication disorder."

The question remains valid for for people getting an assessment now or in the future. Are less people getting diagnosed now then would have been had the change not happened? Is there as intended less over diagnosis?. Are people not bieng diagnosed who should be diagnosed as feared? Anecdotal evidence is conflicting but strongly suggesting that "Aspergers" still being used as a colloquial name for diagnosis. I have not seen more people complaining of under and misdiagnois. We do know that minotities are diagnosed at a much lesser rate the the white majority. And there is widespread feeling that adults and especually females are bieng under and misdiagnosed.

It is my personal feeling that the change has increased negitivity towereds Aspergers and the Aspie terminolgy but that is something that is hard to prove and might have happened anyways.

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MrGrumpy
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06 Jun 2014, 12:07 pm

ASPartOfMe wrote:

I don't really do 'jargon' but the fact that the diagnostic procedures have progressed from DSM4 to DSM5 (presumably after DSM1-DSM3 were found wanting) without any significant change in the experience of the 'sufferers', suggests to me that the 'professionals' are floundering around in the dark just like the rest of us.

NicholasName
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06 Jun 2014, 1:54 pm

Am I the only one who thinks that the DSM-5 criteria are broader than the DSM-IV criteria and will lead to more people who slipped through the cracks getting diagnosed?

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ASPartOfMe
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06 Jun 2014, 2:34 pm

NicholasName wrote:

Am I the only one who thinks that the DSM-5 criteria are broader than the DSM-IV criteria and will lead to more people who slipped through the cracks getting diagnosed?

What must be understood is that NT psychs think differently. Aspie Pyschs would tend to strictly follow the criteria. Many NT psychs will decide after evaluating the person if said person is on the spectrum. The criteria will be a guideline, but also things like experience, there view of autism will and most importantly who is paying them will come into consideration. Having come to a conclusion if their client is on the spectrum the clinician will word the diagnostic report in a way to make his or her conclusion fit the criteria. That is why the percentage of patients getting diagnosed under the DSM IV varied greatly by location, psychs specialty etc. This should not have changed with the DSM 5. There are psychs who will not use the DSM 5 as a guideline but as a rulebook to be followed exactly. The changes will be noticed with these people. Also the debate around the DSM 5 might have convinced some Psychs that Autism particularly HFA/Aspergers was over diagnosed thus they might be less likely to come to a conclusion a client is ASD

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06 Jun 2014, 2:52 pm

ASPartOfMe wrote:

NicholasName wrote:

Am I the only one who thinks that the DSM-5 criteria are broader than the DSM-IV criteria and will lead to more people who slipped through the cracks getting diagnosed?

So it's mostly guesswork then?

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07 Jun 2014, 1:50 am

I think the people who write these diagnostic criteria are the ones with a communication disorder!

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07 Jun 2014, 2:33 am

MrGrumpy wrote:

ASPartOfMe wrote:

NicholasName wrote:

Am I the only one who thinks that the DSM-5 criteria are broader than the DSM-IV criteria and will lead to more people who slipped through the cracks getting diagnosed?

So it's mostly guesswork then?

Pretty much. I doubt we will ever know the effect of the DSM 5. We still don't conclusively know why the number of diagnosis went up massively after the DSM IV. Over-Diagnosis?, Better Diagnosis? The answer depends on who you ask.
19 years of research into Autism were wasted. What use is that data? Aspergers is officially gone and the criteria for Autism has changed

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