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Hello, my name is Esther and writing from Spain, wanted to tell what is happening to my daughter Andrea, if someone had come up the same, or sounded the case because we are very concerned and doctors do not know what's going on.
Sorry if the translation is bad because English is not writing.
Andrea has five and a half years, has a diagnosis of autism, is nonverbal, for more than a year ago, has cyclical changes, with skipper, mood and behavior during this year of 2014/15 will have undergone many trials, many analytical, also including genetic, metabolic study in blood and urine spinal tap, polysomnography an EEG, ultrasound scan tac .. abdomen, fundus study of neurotransmitters and so many more.
All results are within normal limits, and no longer know what to do or where to go, Andrea can not tell us what happens .. I hope someday I can tell, now I'll tell you what happens every month on time.
We know triggers, this always happens the same way, one day rises, and is irritable, hyperactive, with anguish / vital anxiety, nothing seems to soothe, you self-injure .. moves constantly, raise the stereotypes, all goes awry, excessive urination, overeating .. everything is turned upside down, seems to find calm, when you get to find something that is calm for short moments, as you leave the activity we are ever alike, puts his heart pounding, and its activity It is abysmal. Lasts about 10 days or so, from there .. It seems that the activity goes down .. until two days, and rises and is different each time in conjunction with the same dates and lies, then, not it moves at all, stop eating, except some fruit or juice .. some yogurt, the first thing you notice are her dark circles and pallor, and does not do any type of activity goes from hyposensitive to the contrary, having some photophobia , phonophobia, is all day sitting or lying in bed, seems to have some sensation in the mouth, inner cheeks bites, it leaves virtually to urinate and evacuate ultimately your body for all, this sad and with an expression of feeling fear, not to be alone at any time, and whatever you do not want any activity, game .. anything, and so is nearly two weeks, until one day he gets up and is well again, when recovering is well for a week, we know when recovered, because it begins to brown, to eat something else, to evacuate etc .. While in this underactive state, is aware of everything, does strange movements, we see nothing out of the ordinary unless like I have very great depression, and much much sleep, just you want to sleep, and keep company with sadness .. does not improve with ibuprofen or any pain medication ..
For me it is difficult to explain all the symptoms, but abysmal mood change, fulfilling a cyclic pattern each month of date and duration. He is subordinating life loses much for school, therapies, all ... and whatever you do nothing seems to work.
Summarizing are cyclical mood swings irritability / decontrol everything to be like a depression. :cry:
She is taking Risperdal, two years ago 0.25 a day very little, I began to give because he did not sleep at all.
If someone please sounds this case or has any idea that may be, tell me please, we're very concerned about Andrea and every month, whatever we do same thing happens.
Thanks for listening to this desperate mother who wants to know what happens to your small,
A hug,
Esther.

Let's see if i got all this:

Your daughter has mood swings and pains around the same date every month, that last for about 10 days, with no apparent cause, right?

This might sound a bit strange, but isn't that the same frequency as a menstrual cycle? I suspect she is already experiencing the hormonal effects of her period (even without the physical effects, like bleeding) which strongly increases her sensory issues, ending up too strong for her to handle.

I realise the is a bit young (5.5 years i think you said), but the frequency is too much of a coincidence for me not to consider this option.

I know that some of my female autistic friends have a harder time coping with their sensory issues while menstruating, so it is not all that far fetched...

Thank you for your answer, in the analytics are also looked at hormonal issue, in case there is alteration, and went well, it's a very small girl of five years to think something like
goes from one extreme to another, from euphoria brutal activity then stay in bed without moving anything or play or eat anything .. for two weeks until he recovers from nothing.

sorry for my traducccion hope you understand well what I tell you, I am desperate to help my daughter

since they can not do, really, I found this forum and I hope someone can tell us know ..
fusses around his body, and then falls down and can do nothing but wait for him to recover as every month, hopefully she could tell us happens

Do they have special schools for autism in Spain?

Is she in some kind of special program already?

Sounds like you should get her evaluated by someone familiar with autism

Is she already seeing a psychiatrist/psychologist?

If not (though it's likely that she is), then get her to a psychiatrist/psychologist quickly.

Think about the autism specialist. Think about calling the Autism Society or whatever it's called in Spain.

Where do you live in Spain?

Andrea is controlled by doctors, and for a year I did all kinds of tests,
By neurologists specialists in the field of autism and so on, but nobody knows happens
Physically there is no problem or abnormality diagnosis of autism was given to him when he was two and a half
So I wanted to write here if someone was famiiar what happens to my daughter, we are desperate, because nothing seems to work, and something fulfilling a cyclical pattern.
State changes are cyclical mood, happens to be at a high level of hyperactivity, irritability, lack of control of sphincters, then move to another state without moverse..etc underactive

If anyone is familiar with this issue I would appreciate you tell me please, she does not speak and even give you alternative media do not know it can be.

The only way he will improve is if he continues to go to therapy.

Sometimes, people don't show improvement right away. Sometimes, it takes too long--but it comes, eventually.

I was pretty much like your son when I was about 3 years old. By the time I was 6, I had improved very much.

I understand your frustration. I would be frustrated, too, if I were in your situation.

You should also research autism on your own. Learn about it on your own.

I should have told you this earlier. I apologize.

There's a subforum called "Parents' Discussion" where it's possible you will get better responses than mine.

I know it's frustrating when your son is having so much trouble.

All right....thanks for the clarification.

Hi Esther.

I hope I answer so that you can understand. I know it must not be easy if English isn't your language!

I wanted to say that it's probably best to think about each symptom you describe, separately. You might have to find different solutions for each issue that is troubling Andrea. For example, she could be getting headaches from the photo-sensitivity; and the pain and inability to express the pain to you might cause her to feel depressed, just quit trying to do anything and sit and think for a couple of weeks. Something like that might be helped by a simple fix like finding special dark sunglasses for her to wear if she wants them. But sunglasses might not help other things that are bothering her.

The reason I wanted to talk about that, is because, like Andrea, I've had digestive problems for many years, and never understood what was wrong with me.

This spring, I found myself feeling very nauseous and unwell, and finally asked my husband to take me to the hospital. It was discovered that I had numerous gall stones, and had to have my gall bladder removed surgically. Since then, my nausea has improved a great deal, and I'm very glad I had the surgery!

However, (and I apologize for the graphic language!) I noticed after a while, that I was still experiencing diarrhea pretty frequently. So, I knew that the diarrhea could not be caused by the gall bladder problem I had been having.

After I paid closer attention for a while, I started to suspect that orange juice was irritating my stomach. Shortly afterwards, I learned that some people are "fructose intolerant". It's not an allergy. It's just an intolerance, like some people are lactose intolerant. I stopped drinking orange juice (still surprised that something that is supposed to be healthy can cause so much intestinal distress!), and I'm feeling much better. I haven't gotten sick, since.

The reason I mention it, is because I noticed you said that Andrea is also having this sort of trouble, and that she is also drinking fruit juice. If you think there could be a connection between the two, it couldn't hurt to switch her fruit juice with something that doesn't contain fructose, and see if that one symptom improves for her. For myself, I am finding that tomato juice - I get low sodium 'v8 juice' in the smallest cans - settles my stomach, and makes me feel better instead of worse. Fruit juices won't actually list fructose in the ingredients, because it's not an additive. It occurs naturally in the fruit. But if it's added to foods, it will be on the label. Many sodas also have fructose as an additive, and it should be on the label. I have some brownies that list fructose on the label as an ingredient, but I seem to be able to eat them without suffering the same digestive distress that I get when I drink a whole glass of orange juice. So, if Andrea also turns out to be sensitive to fructose, she may still be able to have small amounts of it, here and there. It really would depend on how she felt afterward.

You can find lists of food that contain fructose, online.

If you try removing the fruit juice from Andrea's diet for a while, and find that she's still experiencing stomach upset that causes diarrhea, you can probably give her the fruit juice again, and be pretty sure it's something else that's bothering her digestive system.

I hope that you get lots of answers from people who have more experience with the symptoms you've described, than I do. And I hope Andrea can get some relief from some of the things that are bothering her! Best of luck!

I wonder if she is also getting very overstimulated by sensory stimuli, crashing, resting from the crash, recovering from the crash, and then getting way overstimulated again. She may be going through a cycle of Autistic burnouts and her body may also be reacting to some of the foods and drinks she is taking and making it worse. It might be a well timed routine because she is recovering and burning out over and over again. She might be more sensitive to stimuli than people realize so she pushes herself without understanding that she is pushing herself and then she crashes and does this cycle over and over again.

You might try to really limit her exposure to people and activities and to light and sounds and see how she does as well as maybe work with her diet to see if you can find out if certain foods or drinks are making her body more sensitive. Ask her if it makes her tired when people talk and move their arms or just move around in a room. Ask her if sounds or lights or touch hurt her or drain her physically and emotionally. Since she is nonverbal, if she still understands you, you can use pictures to ask her to point to you in the pictures how she feels. Or if she can draw pictures to show how she feels that might help as well.