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FedUpAsp
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30 Nov 2014, 2:30 pm

Neither am I self-diagnosed or pleased to be diagnosed with autism. I went from being a Gifted but messed up NT to being a broken mutant whose giftedness does not matter. Is there anyone else here who reacted with horror rather than relief to an Aspergers/ASD diagnosis?



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30 Nov 2014, 3:38 pm

I honestly don't see the difference between being gifted and NT, and gifted and Aspie. You're still gifted. Asperger's Syndrome is just a neurological difference, really.

If someone came up with the ultimate cure for cancer, would it make a difference whether the person is NT or autistic? I sure wouldn't care about the person's neurological status!



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30 Nov 2014, 4:55 pm

With kraftie on this one: if you were gifted before the diagnosis, you're still gifted afterwards.

My first reaction was relief, but the initial relief I felt wore off quite quickly. I didn't feel horrified, but I did feel despondent and sad that at the realisation that I would never be "normal". There didn't seem any point in even trying any longer: I wasn't going to change, so what was the point? My strongly negative thoughts about my "failed" life didn't get any better either; I felt just as bad about my life before the diagnosis as I did afterwards.

You may be messed up, topic creator, but you're certainly not a "mutant". Try not to think of the diagnosis as having fundamentally changed you; it hasn't changed you at all, it's just a confirmation of what you have always had - a neurological disorder.



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30 Nov 2014, 5:04 pm

Truly, the question "What is normal?" is most applicable. I've known many "normal" people whose personal life is a holy mess.



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30 Nov 2014, 5:13 pm

I just meant "normal" as in being able to have a conversation with people :-/

But yeah, I take your point. Not all NTs are sterling successes, that's for sure.



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30 Nov 2014, 6:09 pm

FedUpAsp wrote:
Neither am I self-diagnosed or pleased to be diagnosed with autism. I went from being a Gifted but messed up NT to being a broken mutant whose giftedness does not matter. Is there anyone else here who reacted with horror rather than relief to an Aspergers/ASD diagnosis?


Let me re-word your statement.

"I went from being a Gifted but messed up person with ASD, who was unaware that I wasn't NT, to being the exact same person, though I now know I have ASD and I feel like a broken mutant whose giftedness does not matter."

Isn't this more accurate?
You always have had ASD, you simply did not know.
You matter as much as you ever have, only your self-knowledge has changed.



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30 Nov 2014, 6:19 pm

Factually speaking, nothing changed except your/my perspective. There were many feelings which I had about this change of self-perspective, and they were different feelings at different stages of processing the change of perspective. The change of perspective was permanent, an addition to my self-perception. The feelings were transient experiences, which reoccur sometimes depending on what is going on or not.



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30 Nov 2014, 8:42 pm

FedUpAsp wrote:
... I went from being a Gifted but messed up NT to being a broken mutant whose giftedness does not matter...
You are implying that anyone with an official diagnosis of an ASD is "... a broken mutant whose giftedness does not matter...".

Why do you insult us in such a slanderous way?


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30 Nov 2014, 8:57 pm

http://www.aspennj.org/pdf/information/ ... ith-as.pdf

Here is a moving letter, beautifully written, from a man who realised that he was on the spectrum after his son was diagnosed. It may resonate with some of the older members here who had the same experience of self-recognition when younger members of the family were diagnosed.



FedUpAsp
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30 Nov 2014, 10:25 pm

Fnord wrote:
FedUpAsp wrote:
... I went from being a Gifted but messed up NT to being a broken mutant whose giftedness does not matter...
You are implying that anyone with an official diagnosis of an ASD is "... a broken mutant whose giftedness does not matter...".

Why do you insult us in such a slanderous way?


I should have been more clear. This is my own experience, I don't speak for others. Your experience might be totally different from mine. I don't mean to say that people with AS are mutants, only to say that this has been my own personal experience regarding only myself. When people don't know about my diagnosis, they treat me totally differently then if they know. This is even professionals, and in general I don't disclose to anyone. My experience has overall been bad.

My diagnosis was after a psych evaluation by a psychiatrist to see if I had ADHD/Bi-polar/AS/OCD/hyperactivity/I forget what else. I didn't even want to be there but my GP wanted it done because he didn't know how to help me.

In my heart I know it's all a matter of perspective, that I had this ASD and was gifted, and after the diagnosis I'm still gifted and have this ASD. It's difficult to accept, and I've probably alienated the board with these comments...



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30 Nov 2014, 10:29 pm

I doubt it; you haven't alienated me, FUA - I understood you to be describing your own experience, not projecting it on to others.



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01 Dec 2014, 3:15 am

As an obsessed fan of the X-Men, I take the term "mutant" to be a compliment; it refers to individuals who have gifts and talents far beyond those of boring, average "homo sapiens". Being a mutant can be a curse as much as a gift sometimes, as Rogue demonstrated through her inability to touch other people due to her mutant power; the ability to absorb life out of things. However, there were times when Rogue's power was used to benefit others as well, such as the time she was able to drain Magneto just enough to render him unable to complete his nefarious plot involving Manhattan Island, a gigantic magnet, and a huge panel of state senators.

Anyway, the convoluted and highly geeky point I'm trying to make is that being different is neither good or bad, it's what you do with it that determines your success or failure. Yes, we have challenges that NTs don't have to face, but we also have gifts that far surpass their abilities, and you, as a gifted person, exceed NT abilities all the more for your second mutant power. You're like Jean Grey, who had the ability to move objects via telekinesis, and also to read peoples' minds the way Professor Xavier did. Not many mutants are lucky enough to have two super powers at once :D


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FedUpAsp
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01 Dec 2014, 4:06 am

StarTrekker wrote:
As an obsessed fan of the X-Men, I take the term "mutant" to be a compliment; it refers to individuals who have gifts and talents far beyond those of boring, average "homo sapiens". Being a mutant can be a curse as much as a gift sometimes, as Rogue demonstrated through her inability to touch other people due to her mutant power; the ability to absorb life out of things. However, there were times when Rogue's power was used to benefit others as well, such as the time she was able to drain Magneto just enough to render him unable to complete his nefarious plot involving Manhattan Island, a gigantic magnet, and a huge panel of state senators.

Anyway, the convoluted and highly geeky point I'm trying to make is that being different is neither good or bad, it's what you do with it that determines your success or failure. Yes, we have challenges that NTs don't have to face, but we also have gifts that far surpass their abilities, and you, as a gifted person, exceed NT abilities all the more for your second mutant power. You're like Jean Grey, who had the ability to move objects via telekinesis, and also to read peoples' minds the way Professor Xavier did. Not many mutants are lucky enough to have two super powers at once :D


This is an analogy that made me giggle--I used to be an X-Men fan myself! :)



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01 Dec 2014, 6:00 pm

It's not an experience I went through, but being upset like that isn't an unusual one. For some, its at diagnosis, for some, its not (because they were diagnosed young), but occurs as they age. Usually, people end up finding ways of self-acceptance.

You are yourself. Nothing more or less. You're not special because you're autistic. You're not broken because you're autistic. You have oddities that you've known about but now have a label for. You have things you struggle with more than the average person. You have things you are great at, and things you are poor at. You have things you love and things you hate. All of those are things people have. You just also have these sets of traits that are classed as autistic.

How people find self-acceptance varies. Some make themselves as just more people because there we are just more people. Some go into disability rights. Some go through a phase of "I'm better because of autism" and then settle into trying to make others understand that we aren't worse because of autism. Some just don't have it matter.

Can you be upset and frustrated? Absolutely. Can you hate that now you feel like you're broken and the giftedness doesn't matter? Absolutely.

Those parts do matter though. You haven't lost them either. You are still the same person. You just have another descriptor that can help you out if you need it to.

That doesn't mean you can't rage about the fact that people might overlook everything else for it now, that you can't rage about the fact that you feel like you've lost things by now being labeled with diagnoses, and you can't need to re-evaluate who you are.

In the end though - try to remember that you are the same person you were before the diagnosis. You just have more information about yourself now.


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FedUpAsp
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02 Dec 2014, 12:27 am

Tuttle wrote:
It's not an experience I went through, but being upset like that isn't an unusual one. For some, its at diagnosis, for some, its not (because they were diagnosed young), but occurs as they age. Usually, people end up finding ways of self-acceptance.

You are yourself. Nothing more or less. You're not special because you're autistic. You're not broken because you're autistic. You have oddities that you've known about but now have a label for. You have things you struggle with more than the average person. You have things you are great at, and things you are poor at. You have things you love and things you hate. All of those are things people have. You just also have these sets of traits that are classed as autistic.

How people find self-acceptance varies. Some make themselves as just more people because there we are just more people. Some go into disability rights. Some go through a phase of "I'm better because of autism" and then settle into trying to make others understand that we aren't worse because of autism. Some just don't have it matter.

Can you be upset and frustrated? Absolutely. Can you hate that now you feel like you're broken and the giftedness doesn't matter? Absolutely.

Those parts do matter though. You haven't lost them either. You are still the same person. You just have another descriptor that can help you out if you need it to.

That doesn't mean you can't rage about the fact that people might overlook everything else for it now, that you can't rage about the fact that you feel like you've lost things by now being labeled with diagnoses, and you can't need to re-evaluate who you are.

In the end though - try to remember that you are the same person you were before the diagnosis. You just have more information about yourself now.


Before my diagnosis I was recognized as quite intelligent by people I came into contact with either family or in the medical field. After my diagnosis? It's all about developmental disability and autism this, and autism that, no matter how intelligent I am, and it's upsetting.

If I have my facts right, I had quirks even as a baby but they weren't diagnosing AS when I was growing up--my mother thought I was autistic but the doctors I saw at the time said no I wasn't because I was capable of speech. Only much later was a diagnosis of AS made.

Coming to terms with it is also why I came to the forum--fed up about where my life is heading and needing to stop sticking my head in the sand. This is a community of like people; people like me. I never used to think there were any people like me.

Thank you for your compassionate posts everyone. It's given me a lot to think about. Even Fnord's post, which is a reminder I should be more careful how I express myself here.



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02 Dec 2014, 12:32 am

FedUpAsp wrote:
StarTrekker wrote:
As an obsessed fan of the X-Men, I take the term "mutant" to be a compliment; it refers to individuals who have gifts and talents far beyond those of boring, average "homo sapiens". Being a mutant can be a curse as much as a gift sometimes, as Rogue demonstrated through her inability to touch other people due to her mutant power; the ability to absorb life out of things. However, there were times when Rogue's power was used to benefit others as well, such as the time she was able to drain Magneto just enough to render him unable to complete his nefarious plot involving Manhattan Island, a gigantic magnet, and a huge panel of state senators.

Anyway, the convoluted and highly geeky point I'm trying to make is that being different is neither good or bad, it's what you do with it that determines your success or failure. Yes, we have challenges that NTs don't have to face, but we also have gifts that far surpass their abilities, and you, as a gifted person, exceed NT abilities all the more for your second mutant power. You're like Jean Grey, who had the ability to move objects via telekinesis, and also to read peoples' minds the way Professor Xavier did. Not many mutants are lucky enough to have two super powers at once :D


This is an analogy that made me giggle--I used to be an X-Men fan myself! :)


Yay! Another Marvelite :D


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Thanks to Olympiadis for my fantastic avatar!