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equinn
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26 Apr 2008, 5:11 pm

3 questions:

How many of evaluations have you had?
How many of these eval. confirmed or did not confirm your ASD?
How many of you would consider another evaluation for further confirmation?

(considering further evaluation for my son in a year or two)
thx,

equinn



craola
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26 Apr 2008, 5:18 pm

Im undergoing my first now, I do wonder though how long an evaluation is as from peoples posts here I thought it would be one session however mine is going to be five or six which means its 5 or 6 hours long which im really pleased about as I cannot understand how someone can decide in such a short amount of time. If she says no...I think I will believe her.



Norah_W
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26 Apr 2008, 8:01 pm

equinn wrote:
3 questions:

How many of evaluations have you had?
How many of these eval. confirmed or did not confirm your ASD?
How many of you would consider another evaluation for further confirmation?

(considering further evaluation for my son in a year or two)
thx,

equinn


I've had 4, all as an adult. One was a psychologist, one a psychiatrist, one a neurologist, and one a neuropyschologist. All of them except for the neurologist took 3 or more sessions. The neurologist didn't feel he could say one way or the other if I had AS, but he referred me to the neuropsychologist. All of the other 3 (psychologist, psychiatrist and neuropsychologist) did not confirm my suspicions of having an ASD. However. when I first started this I was 44 and am now 51 and may have learned to "act NT" in a clinical setting, and also my fear of being diagnosed with a disability and also probably having OCD with an obsession about whether or not I have AS may have played some part in what parts of my diagnoses the doctors may have actually shared with me. And there was no other person, like a spouse or parent, that I could bring with me to 1. Describe how I really act/acted in non-clinical settings and 2. Share my full diagnosis with. If the doctor felt it wasn't wise to let me know, he or she may have been able to share it with a parent or spouse if I signed waivers allowing him/her to do so.

I will see at least one more psychiatrist next month and try to leave off some of the baggage that I feel may have possibly caused a doctor to judiciously not share my full diagnosis with me. If they say I don't have an ASD, I'll be better able to believe them if there aren't other issues in the way.

Sorry for such a long post! I'm sure that your son doesn't have all the backstory crap I do, and if you do take him in to be evaluated there won't be anything clouding the issue.



equinn
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26 Apr 2008, 8:35 pm

OKay--I'm still here--glad to see picture was removed.

I couldn't resist. I really rely on everyone's comments. I can't stay away for long. I guess I overreacte to such things. But, as previous posters have pointed out, this is one person. To scare me away is what he's aiming for, I suppose. That's the first time I've seen anything like that on a forum. I don't belong to any others--just this one.

Thanks for the reponses.

You would be surprised to see my son's file. He's only eight and has 3 evaluations so far. One major one that got him the ASD Dx. last year.

He is up for another psych evaluatoin/observation--just for a couple of hours and review of records. I'm wary, but school wants to have their own psych evaluate due to my son's intrusive thinking. He brought it to school one day and admitted his difficulties. Before this, he was doing wonderfully.

This evaluation is merely an evaluation by an outside psych that the school claims to really trust so we'll see.

I'm just wondering if, at some point in time, I should have my son's dx confirmed once again by another autism specialist. First dx was a reputable center and their speciality is ASD's, so I did trust this particular place and chose it because I was sure he was somewhere on the spectrum-- after my own research and school's dealings with him since kindergarten.

thx again.



Smelena
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26 Apr 2008, 8:56 pm

At a seminar I attended last year, Tony Attwodd stated that 75% of children with Asperger's also have a profile indicative of ADD.

We are lucky to live in Brisbane. We had our sons assessed at Minds + Hearts, Tony Attwood's clinic. Not by Tony, but by another fantastic psychologist.

Helen



Danielismyname
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26 Apr 2008, 9:19 pm

1. 2; general psychiatrist and an ASD specialist
2. Both confirmed (one autistic disorder, another Asperger's disorder; the latter was from those who lump AS and "HFA" together)
3. No need



Norah_W
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27 Apr 2008, 1:40 am

equinn wrote:
OKay--I'm still here--glad to see picture was removed.

I couldn't resist. I really rely on everyone's comments. I can't stay away for long. I guess I overreacte to such things. But, as previous posters have pointed out, this is one person. To scare me away is what he's aiming for, I suppose. That's the first time I've seen anything like that on a forum. I don't belong to any others--just this one.

Thanks for the reponses.

You would be surprised to see my son's file. He's only eight and has 3 evaluations so far. One major one that got him the ASD Dx. last year.

He is up for another psych evaluatoin/observation--just for a couple of hours and review of records. I'm wary, but school wants to have their own psych evaluate due to my son's intrusive thinking. He brought it to school one day and admitted his difficulties. Before this, he was doing wonderfully.

This evaluation is merely an evaluation by an outside psych that the school claims to really trust so we'll see.

I'm just wondering if, at some point in time, I should have my son's dx confirmed once again by another autism specialist. First dx was a reputable center and their speciality is ASD's, so I did trust this particular place and chose it because I was sure he was somewhere on the spectrum-- after my own research and school's dealings with him since kindergarten.

thx again.


As long as he is able to get the services he needs in school, it seems like the diagnoses he has now would be fine, especially if the new evaluation for his present difficulties is added to the file. Are they thinking he should be having a different type of help or working on different issues--is this the basis for their asking for the new evaluation? Do you have a choice as to whether he gets the evaluation, and could you have it done by someone else if for any reason you felt uncomfortable with the doctor trusted by the school?



RampionRampage
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27 Apr 2008, 2:05 am

equinn wrote:
3 questions:

How many of evaluations have you had?
How many of these eval. confirmed or did not confirm your ASD?
How many of you would consider another evaluation for further confirmation?

(considering further evaluation for my son in a year or two)
thx,

equinn


-having an iep, i was eval'd every three years after i was 12. but a mom-appointed psych dx'd me with chronic depression after one 50 min session and i had my very first Prozac rx within hours - and i was not quite eleven.
i had an iep eval at seven when my hearing loss was found but they decided i wasn't hard of hearing enough to be hard of hearing. or something. geniuses, really.

-no diagnosis ever came out of an eval. they came out of whatever psych my mother dredged up who wanted to be on her payroll. see also: never, ever dx'd with ASD. though, if mom were looking for an ASD, they probably would have found it. they tend to go where the money is.

-despite some nightmarish experiences, pursuing the ASD diagnosis - which was confirmed in feb - was the best thing i ever did. how i managed to overcome the angst of all the s**t psychs had given me prior is beyond me. i credit having a boyfriend and a relationship i wanted to save with that. it would have been nice to get a correct diagnosis ten years ago, but i can't really do anything about that. i can, however, look into ASD-appropriate help. and it's making all the difference.


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Brittany2907
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27 Apr 2008, 2:29 am

2 evaluations.
The first one I had when I was 14 (although I didn't know what it was for at the time) and the doctor told my mother that she thought that I had HFA. She left the country so I did not get a diagnosis.
The second one I had when I was 15 and I did know what it was for. The doctor said that I have AS and thats when I got the official diagnosis.

I was diagnosed at a clinic in NZ that specialized in adolescent mental health and learning disabilities.


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cooler8625
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08 Dec 2014, 9:22 pm

I have been through more evaluations than I can count since first grade. Even in kindergarten I had issues, but nothing was done. My grandmother told me that my teachers told her and my mother that I was going to have problems in school. My mother denied it, saying my grandmother was lying. I missed the year after kindergarten because we did not live in the city schools jurisdiction, and the school my parents wanted me to attend was less than a mile from our home. As it was at the time, I would have to ride the bus to a school farther away, but my parents did not want that. Therefore, they kept me out for a year. During that time, I learned to read and learned basic math, but I was grossly deficit in social skills. I did not know how to play with kids, even in kindergarten I felt strangely out of place and I probably acted up--I don't remember much now since that was over 50 years ago and my teachers are now dead. What little I remember about first grade, I was also disruptive and didn't know how to act with the other kids. The truth is, no one knew what was wrong with me. All my parents did was deny, deny, deny. They were angry when they had to take me to these appointments, saying if I would just behave myself, it wouldn't be necessary. When I asked why I had to see all these doctors, no one told me anything. My parents said they didn't know--it was the school that wanted me to see them. All they knew how to do was lie and deny. When I asked my mother why they lied to me, she offered no explanation.

I have been diagnosed with Major Depression, Schizoid Personality Disorder, Avoidant Personality Disorder, Simple Schizophrenia, and Residual Schizophrenia. A pediatric neurologist in Atlanta said that I had "some peculiar neurological and emotional disturbance", and that I was "very odd".

Several years ago, when I was transferring my records to my current doctor, my mother read my file. She laughed at and made fun of my psychological reports, calling them a load of bull. What she does not realize is that doctors and teachers are trained to recognize disturbing behavior in children. Any child that does not get along with his/her peers, does not want to participate in extracurricular activities, and who prefers to be alone is not normal and needs to be evaluated. On my last visit, I told my doctor how much this bothered me. He said that he tried to tell my mother that I had serious issues, but that she just didn't understand--I don't think she wanted to. When I was diagnosed with Asperger Syndrome, she told me she didn't want to hear about it.

In later years, during my college and technical school years, my teachers suspected something was wrong with me when I could not find suitable employment. When they saw how I interacted with my peers, they told me that unless I got some type of treatment or intervention, I would never get a job in my field of study. And they were right--I never got a job in my field of study. I have been fired from every job I have ever held since 1991. Every time I tried to get help, my mother stood in the way, saying I didn't need treatment. What was she thinking? The three times I tried to commit suicide, including my first one in 1978 while I was in college, I received no treatment or counseling. Why? Were my parents really trying to sabotage my life? Why did they not want anything done? My mother told me that psychologists and psychiatrists were not real doctors--but were quacks.

Years of therapy have failed to help me become employable. I am beginning to have doubts about psychiatry--first of all, because it is not an exact science. There are no medical tests to diagnose mental illness--X-Ray, blood tests, MRI, etc. It seems like using the DSM Manual to group behaviors and then guessing a diagnosis. I may be wrong, but that's the impression I get. I wish that I could just be a regular person and not need psychiatric drugs. These various diagnoses have ruined my life.

I don't know where to turn or what to do. True, the medicines keep me stable, but that's about it. I want to feel good about myself. I am a complete social outcast. No one ever calls me or comes to see me. I want to get a seasonal job, but I don't know based on my work history.

Anyone out there have any ideas