CuddleHug wrote:
There is a bit in literature that 'extreme distress at small changes' and I was wondering what distress was? Not the dictionary definition of course but rather practical examples from personal experience.
Thank you
My best way of wording it is...when you have an ASD, basically it feels like early in life everybody got a rulebook except you. Life is very unpredictable for someone on the spectrum. So basically every change on top of that, no matter how small it is, can upset us, because it's one thing too much. Kind of like a glass of water that's too full, and on an uneven surface. A dash of water causes it to overspill, and sometimes knock it over i.e. distress, or a meltdown.
To explain: life in general is very unstable, but most importantly - people are very unpredictable. Most of life is governed by people. People surround us all the time, and they are unpredictable creatures. We can't tell *what* they are going to do next.
We don't have that rulebook that everyone else got, and yet we're forced to adjust to their ways. We can't do that very well, and we're blamed even though we do try, *really hard*, because to them we're just not trying hard enough. They
can't see that we're trying. It's like they expect us to try and see things that
aren't there. We find it very hard to pick up on hints, even if they're staring us in the face. And then, we're interpreted as selfish because it's assumed we're ignoring the needs of others.
To us, it seems everybody else just glides through life and we'll never be able to do that. Yet we're expected to, and we're under a lot of pressure for it. A lot of spectrumites put pressure on themselves or each other to just buckle up and get on with it. You see that a lot in this forum, for instance. It is one way of suppressing our emotions just so we can cope. To some, to admit that they're deeply suffering would be like ripping the plaster off a wound and letting it bleed. It's not like there's anyone there to comfort them anyway, because for a lot of them, they don't get any sympathy. Especially the men.
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I've left WP.