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pi_woman
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23 Mar 2007, 6:54 pm

Food for thought:

I went to an Autism Awareness forum last night, where local experts discussed ASD issues, mostly addressed to parents of ASD kids: early intervention, behavior modification therapy, alternative medicine treatments, integrated treatment plans, etc.

I was happy to hear that much of the current research (some even federally funded) now takes into account the physical symptoms common to those of us on the Spectrum, particularly food sensitivities. There's just too strong a correlation with ASDs to ignore these issues; I think the Nobel-prize-winning question will be whether these co-morbid symptoms cause ASD or are caused by ASD. Or both are caused by the genetic or environmental factors alreay suspect.

As the director of our local autism support center put it, "I no longer see autism as a disorder of the brain, but a disorder that affects the brain."



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23 Mar 2007, 8:14 pm

Very interesting point. I think it could be assumed why autistics have food allergies is because they are also shown to be what's called bad off-loaders. Meaning their livers don't detox things very well and perhaps they don't off-load heavy metals as well as a normal person does. That would then show why vaccines get blamed. It would be because their livers aren't removing the thermarsol like a normal person's can when in small quantities. When one's liver is not healthy then the person tends to display more food allergies. Don't believe me? Go get a full liver panel and see that your liver enzymes are not normal.

Funny thing is adult autistics refuse to discuss this with me and claim they have no food allergies which you can see visibly that they display allergic reactions. My pet peeve is people who constantly clear their throats of phlegm and no amount of discussion will convince them either dairy, wheat or corn is causing that.



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23 Mar 2007, 8:16 pm

I suppose you realize that few people here would agree with you. We don't feel like our brains are diseased. I don't have any food allergies and neither do my children. I've been involved with autism for 16 years, when my oldest child was dx'ed. Every mother I met was talking about "recovery" through behavior modification.

One woman I met initially had a fairly low functioning child named Patrick. She hired a special education teacher to give her child Lovaas therapy for 12 hours a day, 5 days a week and then other "aides" took over on the weekends. This went on for years and he only performed when someone offered a reward. She sent him off to autistic boarding school. He didn't recover. Today, he's a sweet natured 20-year old who lives in a group home and speaks only a few words. All the torture for naught, just because his Mom wanted him to "recover." What would Patrick be like if he had been loved and accepted and taught to the best of his abilities?

I'm very sorry you feel that autism is a disease that acts on the brain, sorry for your children more than anything. How do you think the child will feel growing up knowing he has a disease working on his brain? That he is treated so differently from other children because he has this awful thing working on his brain? I know that neurotypicals lack imagination, but try to imagine how you would feel.


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23 Mar 2007, 8:58 pm

The best cure is acceptance.



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23 Mar 2007, 9:20 pm

I'm not saying autism can be cured. I'm saying people might feel better if they did seek treatment for food allergies or just testing and learning to avoid what makes them feel like crap. If they felt better they might act better. It is not normal to hack on phelgm all day. It is an allergy.



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23 Mar 2007, 10:23 pm

SeriousGirl wrote:
I suppose you realize that few people here would agree with you. We don't feel like our brains are diseased. I don't have any food allergies and neither do my children. I've been involved with autism for 16 years, when my oldest child was dx'ed. Every mother I met was talking about "recovery" through behavior modification.

One woman I met initially had a fairly low functioning child named Patrick. She hired a special education teacher to give her child Lovaas therapy for 12 hours a day, 5 days a week and then other "aides" took over on the weekends. This went on for years and he only performed when someone offered a reward. She sent him off to autistic boarding school. He didn't recover. Today, he's a sweet natured 20-year old who lives in a group home and speaks only a few words. All the torture for naught, just because his Mom wanted him to "recover." What would Patrick be like if he had been loved and accepted and taught to the best of his abilities?

I'm very sorry you feel that autism is a disease that acts on the brain, sorry for your children more than anything. How do you think the child will feel growing up knowing he has a disease working on his brain? That he is treated so differently from other children because he has this awful thing working on his brain? I know that neurotypicals lack imagination, but try to imagine how you would feel.


YEAH, I don't have any real food alergies either. I was diagnosed as having one but, oddly enough, I just a few minutes ago had peanutbutter cookies! NO PROBLEM!

I remember hearing about autistic like behaviour when I was a kid. And AS happens before 2 years. BESIDES, how can you claim that the positive things happen because of a disease.

And Ticker,

The ONLY apparant symptom I appear to have is the sniffles. That isn't 100 percent, or exascerbated by any foods, etc... I don't generally cough or clear my throat, or have phlegm. And talk such as yours just helps to build a bad stereotype.

Steve



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24 Mar 2007, 5:08 am

They are plenty of NT's with food allergies and plenty of Autistics who do not. I do not have any food allergies.

If I had food allergies, I would be aware of them and manage it.



solid
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24 Mar 2007, 10:02 am

most of us have food intolerances, mostly to gluten


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24 Mar 2007, 10:23 am

CockneyRebel wrote:
The best cure is acceptance.


:D Right, Cockney!



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24 Mar 2007, 10:27 am

solid wrote:
most of us have food intolerances, mostly to gluten


The ones most likely to be diagnosed are those that have a visible problem or difference their parents, teachers, or schools, don't like. A number of allergies or intolerances seem to affect the brain in some way and cause tics, learning problems, hyperactivity, or encourage stims. So I could see a majority of those diagnosed as having such intolerances. STILL, ones that are shy, a bit off, have minor learning problems, etc... WON'T generally get diagnosed unless they push it.

The only problem I had that people cared about was social interaction, and one attempt at a diagnosis was my last. 8-(

Steve



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24 Mar 2007, 10:40 am

SteveK wrote:
The only problem I had that people cared about was social interaction, and one attempt at a diagnosis was my last. 8-(


They only focus on the things they can see - and the things that impact them - behavior and socialization. They don't address the core issues of differences in ToM and the way we process people information. If they can teach you to quack like a duck, in their minds, you are a duck.

Frankly, I' m skeptical about food allergies being the source of behavior problems. Most of the supporting data is anecdotal, very little hard data. In my experience, most behavior problems are caused by living in a state of high anxiety. The anxiety arises from being forced to interact, feeling intensely uncomfortable, never knowing what to do. It is mentally exhasuting, especially for a child.


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24 Mar 2007, 11:11 am

SeriousGirl wrote:
SteveK wrote:
The only problem I had that people cared about was social interaction, and one attempt at a diagnosis was my last. 8-(


They only focus on the things they can see - and the things that impact them - behavior and socialization. They don't address the core issues of differences in ToM and the way we process people information. If they can teach you to quack like a duck, in their minds, you are a duck.

Frankly, I' m skeptical about food allergies being the source of behavior problems. Most of the supporting data is anecdotal, very little hard data. In my experience, most behavior problems are caused by living in a state of high anxiety. The anxiety arises from being forced to interact, feeling intensely uncomfortable, never knowing what to do. It is mentally exhasuting, especially for a child.


EXACTLY my point! :D



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25 Mar 2007, 11:33 am

There's growing evidence to support that at least a portion of ASDs may have comorbid immune issues and autoimmune disorders which, at least, may be comorbid to the ASD-- at most, it may have something to do with the development of the ASD.

Here are some of the issues found to date:

* lymphocyte abnormalities
* immunoglobulin deficiencies
* cytokine abnormalities
* myelin basic protein and human basic protein antibodies
* hyperserotonemia
* food allergies
* sinus allergies
* gastrointestinal issues

I for one, however, have come to develop the hypothesis that variations within the human immune system may in fact be key to each individual's development, ASD or not. Especially considering the Major Histocompatibility Complex, a particular gene which encodes for more than 50% of our immune development, is one of the largest genes in the human genome, thereby it is also one of the most variable from person to person.

The immune system and the Central Nervous System are in constant communication and interaction with each other.


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25 Mar 2007, 11:39 am

On a side note, food allergies in ASD samples have been verified by more than behavioral symptology, albeit the studies to date have tended to use small sample sizes. Particular antibodies can be tested for in the blood and on the skin. Antibodies such as antigliadin which is the antibody to gluten.

It is little surprise that there are more common food allergies in the human population, moreso in certain subsets, because many of these food allergies are to grains and animal byproducts such as cows milk which have only been added into the human diet since the time our species started farming.

It is why we less often will develop an allergy to meats or vegetables because they have been part of our diet, and therefore our genetics, for a much longer time through evolutionary history.


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26 Mar 2007, 2:47 am

Sophist wrote:
There's growing evidence to support that at least a portion of ASDs may have comorbid immune issues and autoimmune disorders which, at least, may be comorbid to the ASD-- at most, it may have something to do with the development of the ASD.

Here are some of the issues found to date:

* lymphocyte abnormalities
* immunoglobulin deficiencies
* cytokine abnormalities
* myelin basic protein and human basic protein antibodies
* hyperserotonemia
* food allergies
* sinus allergies
* gastrointestinal issues

I for one, however, have come to develop the hypothesis that variations within the human immune system may in fact be key to each individual's development, ASD or not. Especially considering the Major Histocompatibility Complex, a particular gene which encodes for more than 50% of our immune development, is one of the largest genes in the human genome, thereby it is also one of the most variable from person to person.

The immune system and the Central Nervous System are in constant communication and interaction with each other.


The items I put in bold print are what my son experiences on a daily basis. He is also diagnosed HFA, and has had both since birth. Really, the boy had hives on his skin within moments of birth. I am not saying this is true of every person on the spectrum with food allergies, but when my son is experiencing a GI flare or is not tolerating a food trial, it does affect his behavior. Over 90% of serotonin in the body is produced in the gut. If that the gut isn't happy, then he's not happy.

A disclaimer I would add is that we are uncertain if his biochemical response to the offending substance is to blame for increased stimming, sensitivity to sensory overload, and moodiness....or if these changes is a pain response.

My son's specific GI diagnosis is Eosinophilic Gastroenteritis. It should be noted that there is more representation of ASDs among this population with comorbid eosinophilic conditions. We're looking at 1/4 to 1/3 here, which is way above the occurrence of ASDs in the general population. As with ASDs, we are uncertain of what triggers eosinophilia. However, we are also looking to genetics and environment playing a large role.


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Mike61290
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26 Mar 2007, 4:27 am

SeriousGirl wrote:
I suppose you realize that few people here would agree with you. We don't feel like our brains are diseased. I don't have any food allergies and neither do my children. I've been involved with autism for 16 years, when my oldest child was dx'ed. Every mother I met was talking about "recovery" through behavior modification.

I'm very sorry you feel that autism is a disease that acts on the brain, sorry for your children more than anything. How do you think the child will feel growing up knowing he has a disease working on his brain? That he is treated so differently from other children because he has this awful thing working on his brain? I know that neurotypicals lack imagination, but try to imagine how you would feel.


If it ain't broke dont fix it. So why try to modify behavior, unless they are psychotic which no amount of therapy would help. I'd like to see someone try to modify someone like freddy kruger's mind set.

CockneyRebel wrote:
The best cure is acceptance.


It's too bad not many people have as much common sense as you.

Ticker wrote:
I'm not saying autism can be cured. I'm saying people might feel better if they did seek treatment for food allergies or just testing and learning to avoid what makes them feel like crap. If they felt better they might act better. It is not normal to hack on phelgm all day. It is an allergy.


If you have food allergies then why would you eat the food your allergic to? That seems pretty obvious to me I guess people are just well ...... I shouldn't have to say it. How many NT's have you seen that get pissed off for no reason? A lot of them, the only difference is we have a label and thats why we get singled out if we show even the smallest amount of frustration. People dont have to feel bad to be in a bad mood sometimes people just have bad personalities


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