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emmyy
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16 Jan 2013, 4:04 pm

So
I have this stupid problem with my legs
I DONT KNOW what is it

They feel uncomfortable and I feel squirmy and frustrated all the time
I just want to move them and staying still feels SO BAD.
I get so angry and i just want to run or beat them and scratch them really hard

What the f**k is my problem

I have sensory issues. Could this be connected to them??


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Sanctus
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16 Jan 2013, 4:13 pm

emmyy wrote:
So
I have this stupid problem with my legs
I DONT KNOW what is it

They feel uncomfortable and I feel squirmy and frustrated all the time
I just want to move them and staying still feels SO BAD.
I get so angry and i just want to run or beat them and scratch them really hard

What the f**k is my problem

I have sensory issues. Could this be connected to them??


http://en.wikipedia.org/wiki/Restless_legs_syndrome



Sylvastor
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16 Jan 2013, 4:19 pm

Did you buy new trousers (which turned out uncomfortable) and/or could this be some sort of allergic reaction (to the material)?


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Magnanimous
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16 Jan 2013, 4:22 pm

Meh. My legs always feel like they're about to break if I move too fast.... but they haven't broken yet, and I HAVE to move fast, as dawdling is unacceptable. Just the pain. Lots of pain.
It is... disconcerting.



r84shi37
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16 Jan 2013, 4:25 pm

Sanctus wrote:
http://en.wikipedia.org/wiki/Restless_legs_syndrome


This is what ran through my mind as I read the op.


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CyclopsSummers
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16 Jan 2013, 4:45 pm

Magnanimous wrote:
Meh. My legs always feel like they're about to break if I move too fast.... but they haven't broken yet, and I HAVE to move fast, as dawdling is unacceptable. Just the pain. Lots of pain.
It is... disconcerting.

That's horrible, and also can't be healthy. Can't they give you a function where you're seated instead?


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Magnanimous
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16 Jan 2013, 4:50 pm

CyclopsSummers wrote:
Magnanimous wrote:
Meh. My legs always feel like they're about to break if I move too fast.... but they haven't broken yet, and I HAVE to move fast, as dawdling is unacceptable. Just the pain. Lots of pain.
It is... disconcerting.

That's horrible, and also can't be healthy. Can't they give you a function where you're seated instead?

... Um... I don't really want to go about the place in a wheelchair just yet, thanks.
I do have to go places a lot, and when I have to go to a place, I get up and start walking... and if people get in my way or are just walking too closely, I have to accelerate to get away from them. If I'm on a very crowded street, that means I literally have to start weave-running through the crowd until I reach a gap big enough to walk comfortably in. My "personal space" extends at least a meter in every direction, afterall.
And so, since I live in London, I tend to find myself running between and around people a lot... or running to cross the road... or just plain running because I'm impatient.
The pain is unpleasant, but getting away from people (or getting to where I need to go faster) takes priority.



emmyy
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16 Jan 2013, 5:01 pm

Sanctus wrote:
emmyy wrote:
So
I have this stupid problem with my legs
I DONT KNOW what is it

They feel uncomfortable and I feel squirmy and frustrated all the time
I just want to move them and staying still feels SO BAD.
I get so angry and i just want to run or beat them and scratch them really hard

What the f**k is my problem

I have sensory issues. Could this be connected to them??


http://en.wikipedia.org/wiki/Restless_legs_syndrome
That's it. Whole text it 100% how they feel. UGH. Is there ANY way to make it STOP?


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Magnanimous
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16 Jan 2013, 5:04 pm

emmyy wrote:
That's it. Whole text it 100% how they feel. UGH. Is there ANY way to make it STOP?

Image



Cuckooflower
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16 Jan 2013, 5:09 pm

emmyy wrote:
So
I have this stupid problem with my legs
I DONT KNOW what is it

They feel uncomfortable and I feel squirmy and frustrated all the time
I just want to move them and staying still feels SO BAD.
I get so angry and i just want to run or beat them and scratch them really hard

What the f**k is my problem

I have sensory issues. Could this be connected to them??


I really relate to this. I think it's related to autism and yes sensory integration or processing problems; it's something to do with a poor integration between joints and muscles etc. I am too tired to explain further, but I had this for years, only exercise would take it away for a while, then it'd be back.

Vigorous exercise would work for me, but then when I couldn't get it it was horrible and I'd become clumsy and my kneecaps would feel all out of sync with the rest of my legs, and yes itchy and like jelly or something (sound similar??). I've heard another autistic person mention exactly the same problem, so I know it's an ASD related issue.
It's horrible I agree.

It seems to be better for me now I'm older, like my brain wiring has pushed it into sync or something with slow brain maturation.

When I was a child I used to stand with my arms held out from my sides and my hands bent like I was going to curtsey, all the time. I read that this is an autistic problem and children do it due to poor bone/muscle integration and brain integration or whatever.

That's all terribly unscientific, but I get what you mean. I think it's what I had too.

It could go, it's better for me now. I'm 25. Got better this year only. I have severe sensory issues too.


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Cuckooflower
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16 Jan 2013, 5:12 pm

Some ideas:

Vigorous exercise. This worked a treat for me. But it does come back in a few or less days. Has to be ongoing to keep it away

Strong pressure on top of you, like a big weight of some kind (It's related to this need in autism as well I think).

Deep breathing.


If it's the same as what I had, it will go in a few years. I am sorry it won't go immediately, but it will improve. It has for me with age.


That's all I have. Sorry


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CyborgUprising
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16 Jan 2013, 5:21 pm

Like other users, it sounds like it could possibly be Restless Legs Syndrome, though I am not a medical expert.



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16 Jan 2013, 5:24 pm

I've heard deep pressure helps restless leg syndrome - weight on the legs helps.



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13 Jul 2015, 9:48 am

Hi there emmyy, your post was a real find for me, and I had to get in touch.
I am a recently self diagnosed aspie, and have been trying to explain "stupid legs" to everyone since I was 3 years old. When i was a small child i used to scream "MY LEGS ARE STUPID!" at the top of my lungs and feel just like you say, squirmy inside, and like no amount of stretching would help and i'd hit my legs etc..just as you describe!
I am 37 now. As you can imagine it's horrible to live with and over the years I have learned to sort of ignore it but it's always given me problems sleeping. It is not the same as restless leg, i have exactly what you describe. Only recently realising I was aspie, then seeing your post was some sort of a relief. You are the only person who describes it exactly as i always have done. "stupid legs". It's unbelievable.
I wanted to tell you I have found a small does of vallium helps, although most doctors don't want to give it out. If you say how you're suffering they may help. I don't know if evidence supports this on the whole but I know it helps and really wanted to help you as i know what stupid legs feels like and its not pleasant.
I am not a doctor, but its the only thing that works for me.
even though it's not yet legal in this country i did used to use pot but vallium is the remedy I've found.just 2mg and only in emergencies, like when it's awful and i cant ignore it.

PS: ( I hope no one is offended by me recommending this, i am only suggesting she ask her doc about it)

PPS: Also, emmyy, have you found out anything more about this? I realise your post is a few years old.
Does weather effect yours at all? Cycles (if you are female) x
Thanks, hope to hear your response, and i hope i helped a bit.
x



Marky9
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13 Jul 2015, 1:18 pm

I had Restless Leg Syndrome some time ago. It drove me nuts!

I researched around and stumbled across something that suggest magnesium levels might sometimes be involved. So I figured what the heck and started taking a small daily magnesium supplement.

Sometime thereafter the RLS stopped and has not returned. I cannot say whether the magnesium supplement had anything to do with it or not; it may well have been a coincidence. But... I'm still taking it.



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16 Jul 2015, 10:18 am

My feet and my legs can never hold still and are always leaning, shaking, or something.


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