"NeuroTribes" book claims Kanner sidelined Asperger

Page 1 of 1 [ 11 posts ] 

ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,701
Location: Long Island, New York

17 Aug 2015, 9:59 pm

Rewriting Autism History Newly discovered documents show how crucial autism research was ignored, perpetuating misinformation about autistic children.

Book also claims Kanner knew of Asperger's work because a diagnostician Kanner smuggled out of Europe worked at Asperger's institute and German speaking Kanner read Euro Autistic articles.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Ettina
Veteran
Veteran

User avatar

Joined: 13 Jan 2011
Age: 35
Gender: Female
Posts: 3,971

18 Aug 2015, 9:40 am

The article perpetuates the myth that Kanner only studied low functioning autism. That is simply not true, as anyone who's read Kanner's case reports can attest to. Most of the kids who have IQ scores reported were normal-to-gifted, and many of them were able to live independently as adults. A few didn't even have any language delay.

Kanner's idea of autism was more restrictive than the modern criteria, but not in terms of functioning level. Instead, it was mainly because a) he did not include regressive autism (that was called childhood psychosis instead) or syndromal autism (that was just called mental retardation) and b) the child had to be strongly aloof in social interactions in early childhood. The modern-day autistics who wouldn't be considered autistic by Kanner are all over the spectrum, including some very low functioning people. And the kids he did consider autistic ranged from kids who remained nonverbal in late childhood to kids who started talking before 18 months. (Sure, it was mostly echolalia at first, but it was still speech.)



ASPickle
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 29 Oct 2014
Age: 44
Gender: Male
Posts: 177
Location: Denver, CO

18 Aug 2015, 1:37 pm

For an alternative perspective (and book review), check out this thread: http://wrongplanet.net/forums/viewtopic.php?t=291427


_________________
The Autistic Pickle is typed in front of a live studio audience.
No ghosts were harmed in the making of this post.


ASS-P
Veteran
Veteran

User avatar

Joined: 9 Feb 2007
Age: 64
Gender: Male
Posts: 8,980
Location: Santa Cruz , CA , USA

18 Aug 2015, 1:41 pm

...:-( .



iliketrees
Veteran
Veteran

User avatar

Joined: 16 Mar 2013
Gender: Female
Posts: 2,155
Location: Earth

18 Aug 2015, 2:25 pm

Ettina wrote:
The article perpetuates the myth that Kanner only studied low functioning autism. That is simply not true, as anyone who's read Kanner's case reports can attest to. Most of the kids who have IQ scores reported were normal-to-gifted, and many of them were able to live independently as adults. A few didn't even have any language delay.

Kanner's idea of autism was more restrictive than the modern criteria, but not in terms of functioning level. Instead, it was mainly because a) he did not include regressive autism (that was called childhood psychosis instead) or syndromal autism (that was just called mental retardation) and b) the child had to be strongly aloof in social interactions in early childhood. The modern-day autistics who wouldn't be considered autistic by Kanner are all over the spectrum, including some very low functioning people. And the kids he did consider autistic ranged from kids who remained nonverbal in late childhood to kids who started talking before 18 months. (Sure, it was mostly echolalia at first, but it was still speech.)

And I believe he wouldn't diagnose those with epilepsy either, would he? I've heard that somewhere.



stevesilberman
Hummingbird
Hummingbird

User avatar

Joined: 3 Aug 2010
Gender: Male
Posts: 24

18 Aug 2015, 11:59 pm

> The article perpetuates the myth that Kanner only studied low functioning autism.

This is not at all what my book does. My book surgically deconstructs this myth, actually. "NeuroTribes" adds a tremendous amount of new information to the discussion of Kanner and Asperger.

Steve



auntblabby
Veteran
Veteran

User avatar

Joined: 12 Feb 2010
Gender: Male
Posts: 114,544
Location: the island of defective toy santas

19 Aug 2015, 2:08 am

As early as 1926, the Kiev-based child psychiatrist Grunya Efimovna Sukhareva (Груня Ефимовна Сухарева) (1891–1981) published a detailed description of autistic traits in a number of children in a scientific German psychiatry and neurology journal. She initially used the term “schizoid (eccentric) psychopathy” but later replaced it with “autistic (pathological avoidant) psychopathy” to describe the clinical picture of autism. Her original article was available almost two decades before the case reports of Asperger and Kanner; nevertheless, Sukhareva's pioneer work has been greatly overlooked.



stevesilberman
Hummingbird
Hummingbird

User avatar

Joined: 3 Aug 2010
Gender: Male
Posts: 24

19 Aug 2015, 2:38 pm

You'll be glad to know that Sukhareva's work is not overlooked in my book! I talk about it a lot.

Steve



auntblabby
Veteran
Veteran

User avatar

Joined: 12 Feb 2010
Gender: Male
Posts: 114,544
Location: the island of defective toy santas

19 Aug 2015, 5:09 pm

^^^
:) :study:



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,701
Location: Long Island, New York

21 Aug 2015, 12:44 pm

I want to thank you Mr. Silberman for your efforts. This book is not even released yet but already it has had a palpable effect. There have been more stories explaining these subjects and the neurodiverse point of view in the mainstream media in the last few weeks then probably there have been in the last few years.

I am hoping this book combined with the release of "Uniquely Human: A Different Way of Seeing Autism" represents a Tipping point in how my people are viewed.

We can be picky about stuff. I am sure once I have read the book I will have, as many of you will, valid criticisms of it. We need to remember this, this is just the first book length history of the autistic people. As with any first history or first draft a lot more work will need to be done to build upon this work. That does not negate that Steve Silberman took the important first step. Therefore I thank him again.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


whatamess
Veteran
Veteran

User avatar

Joined: 27 Aug 2007
Age: 56
Gender: Female
Posts: 1,284

22 Sep 2015, 11:09 pm

I am reading this book and loving it! I am so very thankful that I found wrongplanet within weeks of my son being diagnosed at age 5. It changed my view of autism and the wonderful people of this site helped me greatly. In fact, during his first diagnosis, it was my husband who said to the psychologist "whatever you are going to give my son, give it to my wife, everything you have stated, she has" ;-) Which made ME research autism and go back through my childhood and FINALLY understand why I always felt out of place. There were those at Deepwood Elementary School in Round Rock Texas that thought something was up with me, as they put me in "remedial clases"...I remember sitting next to the boy who couldn't speak but rocked back and forth. It was now clear as day thanks to wrongplanet, thanks to my husband and so many others. I also worked in the IT field and without a doubt, many in my group would've been diagnosed. Those who were straight, ended up having kiddos diagnosed on the spectrum and those who didn't, well, they were gay and had no kids...but yes, rocked back and forth, had incredibly attention to detail, had those Star Trek and weather special interests that everyone in our company found odd, except those in our group. :-)

I hope that you are able to do more interviews and that what you have written gets the media attention it deserves. I see so many kids today suffering because their parents are being manipulated by autism organizations, it disgusts me, but more than anything, it breaks my heart for those awesome kids.