Not buying the "neurotype" thing.
I guess I should get this out of the way now; I've actively avoided any community like this for a while now. A lot of that comes down to fear. A lot of the time when I talk in depth about Asperger's/ASD/whatever-we're-calling-it-now with someone else who has it, things end poorly. I get angry, they get angry, one of us just gives up and things remain icy from there. I'm actually more comfortable talking about it with "NTs" where I have more room to frame it and there's just less on the table.
That doesn't inspire confidence in me interacting with a whole group of such people. I'll say it; I'm very nervous here.
One of the big things that just kills it is the idea of "neurotypes" or "neurodiversity". I'm just not on board with this stuff. I probably would have been if I'd been aware of it earlier in my life, but at that time I don't know that it was even a thing. I didn't come across these concepts until I was in maybe my early 20's, and had been aware of my Asperger's for the better part of two decades. At that point? The idea that something I was working around and trying to overcome was simply a "difference" was flat-out offensive to me. It was offensive to think that all the help I had received and that I still appreciate was just because of a "difference". It still is.
For me, it is a deeply held belief that social interaction is of paramount importance. It is what makes life worth living. It is essential in creating everything that's good in the world (that's me philosophizing here, we don't need to discuss that). My difficulties with it were and are a problem, not a simple difference. Suggesting they're the latter? To me it feels defeatist, lazy and selfish. That's irrational on some level but I have a visceral reaction to it. I try very hard to bite my tongue when people talk about it and it has a strong tendency to simply ruin my day if I even hear a discussion about it. I'm trying to be more tolerant of it; I am of other opposing views, but this feels personal. I tell myself that others have had different experiences but it's hard not to get upset.
I want to clarify that I do believe that society discriminates against us and things would improve with greater awareness and understanding. I simply don't believe that autism is adaptive, useful, beneficial or really a good thing in any way, shape or form. I am vehemently opposed to any attempt to celebrate it and can't help but feel deep contempt towards anyone making such a claim. I don't believe it should be accepted as "just different". That sounds like an excuse, or asking to be given more than one's due. To me this is a disability, it's a problem I have and not something good; I have joked with the very few people I tell about it that someone really phoned it in when they were wiring up my brain. I'm half-serious when I say that, and I don't feel bad about it.
What I want to know is; does anyone else relate? Does anyone here want to talk with, share experiences and thoughts with, and interact with other people with autism while not buying into this whole "neurodiversity" idea? I've felt very isolated thinking nobody does. It's probably left me feeling more alone and alienated than anything else that's happened in my adult life.
Alternatively... am I wasting my time here? Is this not a place I should be? If so, knowing now would be nice so I can move on and continue searching.
Or am I just misunderstanding the whole thing? Maybe the people I've discussed it with before were just really terrible advocates for it.
I'm really putting myself out here, it took me a long time to build up the courage to try this.
_________________
Yes, I have autism. No, it isn't "part of me". Yes, I hate my autism. No, I don't hate myself.
That doesn't inspire confidence in me interacting with a whole group of such people. I'll say it; I'm very nervous here.
One of the big things that just kills it is the idea of "neurotypes" or "neurodiversity". I'm just not on board with this stuff. I probably would have been if I'd been aware of it earlier in my life, but at that time I don't know that it was even a thing. I didn't come across these concepts until I was in maybe my early 20's, and had been aware of my Asperger's for the better part of two decades. At that point? The idea that something I was working around and trying to overcome was simply a "difference" was flat-out offensive to me. It was offensive to think that all the help I had received and that I still appreciate was just because of a "difference". It still is.
For me, it is a deeply held belief that social interaction is of paramount importance. It is what makes life worth living. It is essential in creating everything that's good in the world (that's me philosophizing here, we don't need to discuss that). My difficulties with it were and are a problem, not a simple difference. Suggesting they're the latter? To me it feels defeatist, lazy and selfish. That's irrational on some level but I have a visceral reaction to it. I try very hard to bite my tongue when people talk about it and it has a strong tendency to simply ruin my day if I even hear a discussion about it. I'm trying to be more tolerant of it; I am of other opposing views, but this feels personal. I tell myself that others have had different experiences but it's hard not to get upset.
I want to clarify that I do believe that society discriminates against us and things would improve with greater awareness and understanding. I simply don't believe that autism is adaptive, useful, beneficial or really a good thing in any way, shape or form. I am vehemently opposed to any attempt to celebrate it and can't help but feel deep contempt towards anyone making such a claim. I don't believe it should be accepted as "just different". That sounds like an excuse, or asking to be given more than one's due. To me this is a disability, it's a problem I have and not something good; I have joked with the very few people I tell about it that someone really phoned it in when they were wiring up my brain. I'm half-serious when I say that, and I don't feel bad about it.
What I want to know is; does anyone else relate? Does anyone here want to talk with, share experiences and thoughts with, and interact with other people with autism while not buying into this whole "neurodiversity" idea? I've felt very isolated thinking nobody does. It's probably left me feeling more alone and alienated than anything else that's happened in my adult life.
Alternatively... am I wasting my time here? Is this not a place I should be? If so, knowing now would be nice so I can move on and continue searching.
Or am I just misunderstanding the whole thing? Maybe the people I've discussed it with before were just really terrible advocates for it.
I'm really putting myself out here, it took me a long time to build up the courage to try this.
If what you're saying is that you believe that people who aren't willing to work to overcome their autism and be more social, even though you don't acknowledge that other people may not desire socialising the way you apparently do, are lazy--then yes, you may find yourself facing some pushback here with presenting that idea. Many autistic people derive great enjoyment and fulfillment from solo activities, even if you don't understand why many autistic people prefer to spend much of their time alone. Not everyone is effected by their autism in the same way as you, or to the same extent. Some are more "functioning" (which it seems you define as more social) and some are less so, some have cognitive disabilities and other difficult challenges while others are cognitively or otherwise gifted because of their unique way of processing and incorporating sensory and other information. Not everyone feels eternally cursed or shunned because of their autism, and you should maybe learn to be a little more open minded if you want to be accepted into a community that varies so greatly and includes so many different kinds of people. Because like they say (and the science backs this up: http://www.zmescience.com/medicine/mind-and-brain/autistic-brain-fmri-27012015/ ): if you've met one autistic person, you've met one autistic person. Not everyone wants to socialise, and not everyone wants to be cured--and many of us would like to accept and celebrate our differences. If you don't agree with that, then don't participate, but don't give people who do a hard time about it just because you don't understand.
I don't have that idea on a rational level. Or any level with the idea that some may desire to socialize more or less than others. As to the rest, it's more of an unthinking, gut reaction. It's the first thing that comes into my mind and then gets pushed back as I go "Oh yeah... that's horribly unfair." But that comes after the initial response when I'm presented with this. Pushing that aside is easy with one person. It's much harder to do with a specific group of people (pro-neurodiversity autistic people, I guess) with whom my contact has been almost universally negative and left me feeling like garbage.
Not sure I'm even at the "wanting to be accepted" stage yet. I certainly don't feel cursed or shunned... it's just there, and something I struggle with rather than embrace. That is what a lot of the things that I disagree with seem to be saying. "Embrace it". And that feels horribly wrong to me. It does not work for me.
Not at all; I'm not coming here to start things or get down on people. The reason I'm putting myself out here like this is so that it's all on the table and people can see where I'm coming from. The thing is, I do understand a lot of this... and it seems a little disingenuous for you to imply otherwise, but it seems that may be on me for not adequately explaining myself in which case I apologize.
I used to spend a lot of time alone, enjoy myself alone. That all feels very hollow and meaningless now. That's just me. I obviously can't speak for anyone else.
I've met a lot of other autistic folks. Some of them I get along with pretty well. Some I can't stand being in the same room with. If someone doesn't want to socialize, be cured, etc.? I'm cool with that. Where I get upset is when someone tells me I shouldn't either. The natural response I think most people have in that scenario is to push back, and not to listen. You start getting defensive and your view of people can be warped by that.
I'm trying to understand, but I'm also trying to figure out if this is all "neurodiversity, yay!" or if a diverse array of opinions on the subject are represented and accepted here. And I'm certainly open to hearing people out on it, as trying as that is for me.
_________________
Yes, I have autism. No, it isn't "part of me". Yes, I hate my autism. No, I don't hate myself.
btbnnyr
Veteran
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Location: Lost Angleles Carmen Santiago
I think there is diversity in views here, wp is not all neurodiversity yay.
Many people have more negative views about autism than you do, but I think overly negative approach is not good.
Some are neutral and think it is what it is, I generally take this view, as there are good and bad about it for me, but I try to live my life the best I can.
Some think more positives than negatives, but I think overly positive approach is also not good, seems to me fanciful or wishful thinking.
I think there are definitely plenty of social deficits in autism, and I consider social problems to be real deficits of social brain, I am quite sure that my social brain simply doesn't work as well as most other people's, and my abilities in social cognition are simply lower than most.
Some neurodiversity advocates may say that such view is internalized ableism, at which point I usually want to vomit when I read such things.
_________________
Drain and plane and grain and blain your brain, and then again,
Propane and butane out of the gas main, your blain shall sustain!
Many people have more negative views about autism than you do, but I think overly negative approach is not good.
Some are neutral and think it is what it is, I generally take this view, as there are good and bad about it for me, but I try to live my life the best I can.
Some think more positives than negatives, but I think overly positive approach is also not good, seems to me fanciful or wishful thinking.
I think there are definitely plenty of social deficits in autism, and I consider social problems to be real deficits of social brain, I am quite sure that my social brain simply doesn't work as well as most other people's, and my abilities in social cognition are simply lower than most.
Some neurodiversity advocates may say that such view is internalized ableism, at which point I usually want to vomit when I read such things.
That helps a lot, thank you for that. My biggest concern coming in here has been that I'd end up figuratively tarred and feathered for not buying into a specific mindset about autism. That's happened with most of my previous attempts.
I do want to hear some well-reasoned and well-delivered explanations as regards the idea of neruodiversity. Even if I still don't agree with them, it would put me at ease to have it explained in a way that makes me feel like I'm being spoken with rather than spoken at and that helps me understand instead of trying hard to sell me something or implicitly invalidating my own experiences (I've had them explicitly invalidated too... much rarer though).
With you on the "internalized abelism" thing. That's where I get up and leave the room.
It's really weird to me; I'm an ardent advocate of social justice... except it seems on this one thing that most directly affects me. Maybe it's down to personal experiences, or just that it's too in my face, too real to handle. I don't know.
_________________
Yes, I have autism. No, it isn't "part of me". Yes, I hate my autism. No, I don't hate myself.
Many people have more negative views about autism than you do, but I think overly negative approach is not good.
Some are neutral and think it is what it is, I generally take this view, as there are good and bad about it for me, but I try to live my life the best I can.
Some think more positives than negatives, but I think overly positive approach is also not good, seems to me fanciful or wishful thinking.
I think there are definitely plenty of social deficits in autism, and I consider social problems to be real deficits of social brain, I am quite sure that my social brain simply doesn't work as well as most other people's, and my abilities in social cognition are simply lower than most.
Some neurodiversity advocates may say that such view is internalized ableism, at which point I usually want to vomit when I read such things.
That helps a lot, thank you for that. My biggest concern coming in here has been that I'd end up figuratively tarred and feathered for not buying into a specific mindset about autism. That's happened with most of my previous attempts.
I do want to hear some well-reasoned and well-delivered explanations as regards the idea of neruodiversity. Even if I still don't agree with them, it would put me at ease to have it explained in a way that makes me feel like I'm being spoken with rather than spoken at and that helps me understand instead of trying hard to sell me something or implicitly invalidating my own experiences (I've had them explicitly invalidated too... much rarer though).
With you on the "internalized abelism" thing. That's where I get up and leave the room.
It's really weird to me; I'm an ardent advocate of social justice... except it seems on this one thing that most directly affects me. Maybe it's down to personal experiences, or just that it's too in my face, too real to handle. I don't know.
I don't understand what you are asking--do you not believe that it's possible to have a brain that is wired differently, or you just really don't think that is something we should accept as ok? When you say you want someone to explain neurodiversity to you, do you mean you want them to explain why they think that neurodiversity is ok?
I don't agree with neurodiversity. To me it seems to go against my own views that more services are needed for autistic adults. Neurodiversity advocates don't seem to like those as they don't believe there's anything wrong with being autistic and we just need acceptance rather than actual help. I think autism is a disability rather than a difference. It makes stuff harder, and no, not just because of society.
I have read a little bit about neurodiversity but I am not knowledgeable enough about the movement to really have much of an opinion. I read your OP and I do feel what you are saying. I feel that this is very deep for you and I just want to say that I hear you. I have not really had time to digest what you have said, sometimes it takes me awhile, but I wanted to respond anyway because I do hear you and feel something. I am not sure what I feel but it is not a bad feeling towards you, it's more like, wow, I never thought of it from that perspective before and it's a very interesting perspective. I am not feeling anything negative towards you at all just trying to really understand. I do appreciate where you are coming from. I hope you can feel comfortable here. I would like that for you.
_________________
"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."
Wreck It Ralph
I don't think "ok" is the word, here. More along the lines of "why is this a good idea? Why should I support it? What would changing things for it look like? What if I don't want to be treated as 'neurodiverse' even when I am, is that fine? How do we handle problems that neurodiverse individuals still have?"
Also, what people even mean when they say "neurodiversity", because I haven't quite gotten a straight answer on that.
Yes... yes. This is exactly how I feel! Thank you. Would have been a lot easier if I'd have been able to post that instead of all the stuff I ended up writing.
Thanks, I really appreciate that. And if this starts a good discussion (as opposed to a mud-slinging argument) about the topic and helps everyone see new perspectives that's just awesome.
I have some idea why I developed this attitude. I can talk about it if it helps people get where I'm coming from.
_________________
Yes, I have autism. No, it isn't "part of me". Yes, I hate my autism. No, I don't hate myself.
Last edited by AJisHere on 31 Oct 2015, 3:50 am, edited 1 time in total.
I think there is a certain amount of validity to the neurodiversity movement, but only for the people who feel it applies to them (usually those on the higher functioning end of the spectrum). I think most of us understand that there are many different ways to be effected by autism, and for some it is more challenging than others and obviously there are those with more challenges who need help and services to overcome those challenges the best they can, or at least learn to live with them. Where I think the validity lies in the neurodiversity movement is less about "celebrating" autism and more about promoting the idea to neurotypical people that autistic people exist, that autism is a spectrum and it effects the people on it in various different ways, some of which make life more challenging (like with socialising) to the extent that some will need support throughout life and some will need help to learn adaptive skills, and some differences that potentially can be gifts (like memory for details and facts about specific subjects which can be handy in STEM fields and elsewhere, enhanced pattern recognition, or even simply a different perspective and way of looking at the world due to perceiving sensory information differently which can lead to innovation and invention). I believe the purpose is about helping the rest of the world understand what we are and what we can potentially contribute as well as what our challenges are.
Thanks, I'll fix that right away.
_________________
Yes, I have autism. No, it isn't "part of me". Yes, I hate my autism. No, I don't hate myself.
I can understand where you are coming from on this but you are likely to find that many people with Asperger's have had such a bad time with the people around them that referring to other people as 'neuro-typical' has become a defence mechanism for the frustration of being misunderstood and mistaken.
I can agree with some neurodiversity advocates that I personally find to be more realistic but I also believe that it would be ridiculous to limit services and potential treatments for the sake of acceptance. The movement doesn't only cater to autism (though that is the major concern), it also generally suggests we accept disorders like Tourette's as 'normal human variation' and I find that stupidly naive. The goal should be to eliminated the bads, and if possible, retain the goods, which are only really found in autism anyway, not to normalize disorders.
Focus seems to be shifting to hypersensitivity and all that crap these days, and so I believe the negative impact of the social problems of autism is increasingly and severely overlooked.
_________________
Unapologetically, Norny.
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-chronically drunk
I believe neurodiversity is real. Some people have different perspectives on things.
OP: Have you read about Temple Grandin? She's a prime example of a quite neurodiverse person who has succeeded despite her salient autistic characteristics. Without her unique mindset, her inventions wouldn't have been possible.
The same for many prominent advances in many fields.
Autism doesn't have to be a disability....but services/accommodations are still needed for many on the Spectrum.
In my own case, I feel that autism is a disability - but that there is no shame in having a disability.
I don't quite understand the 'autism is a difference' attitude either. The DSM-V specifies that "Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning."
Maybe I don't understand the semantics, but to me, 'significant impairment' equates to 'disability'.
[EDIT]: Others have pointed out that we have unique gifts to share with the world... And I would argue that the same could be said for people with a variety of different disabilities. Having a disability doesn't mean you have nothing valuable to contribute to the world.
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