Chronic vomiting and difficulty walking and other stuff

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I was recently at a children's hospital near me for 10 days for a chronic vomiting and dehydration. I have been vomiting for a long time over year not at one time obviously but on and off I have previously had mentioned feelings of feeling sick and weak and tired all the time

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I have many symptoms including vomiting frequently nausea dizziness weakness being unsteady not walking properly i'm also having problems concentrating and being tired all the time and also pain and lightheadedness. Oh and also constipation without medication


Vomiting I long time ago vomiting episodes that would never stop I would even vomit water and medication

Caused about 5 er trips lost track the Amount of times I went to the doctor and 2 to 3 hospitalizations but only one of the hospitalizations was caused by the vomiting itself and one of them I wasn't even vomiting until I was in the hospital.

Recently I found out about CVS or cyclical vomiting syndrome this is what I think I might have an also I was diagnosed with chronic vomiting and my doctor thinks I might have it.

but there's a problem he says they might not have it because in between episodes people say that everything is fine and there are no problems.

Now my vomiting has not stopped completely but it's gone down to like once to a few times a day and now today I have no vomited all but I felt nauseous (thank you zolfran) they've been giving it to me now for when I feel like I need to vomit.

I was in the hospital bed for 10 days without getting up it was very rare and hard when I got up and it was only some times during the stay I use pull-ups and I was so dehydrated and constipated as well as dizzy every single time somebody would try to walk me I would buckle be unsteady and vomit. I would also be dizzy lightheaded and feel like I was spinning. And I believe also in pain They would wash me and change me in bed and once or twice I believe I would get showered in the shower putting down but I was so dizzy It was hard to do that. Now while I was in the hospital they were going to send me to a kids rehabilitation center for a week or two and I would get schooling and everything as well is there like therapy and stuff. the particular one they tried to get me in did not accpect me even though the insurance accepted it and all of the people they recommended at least three different types of therapy now at the time after I stopped vomiting so much that I was not vomiting everything and I was around being discharged in fact the day before I was discharged they let us know that and then didn't really consider anywhere else which at the time and really I didn't really think much about it because I was still sick and tired.

however I did ask them if I can reapply or go somewhere else and they said no and then my uncle asked about outpatient they said maybe I could in another place but I had to do something called homecare first. In this rehabilitation place I was supposed to get PT OT and speech well technically swallow the schooling and other stuff. (After I got denied going They suggested homeschooling but then said I can only get homeschooling if I was out a month) and they said they would get this in home care with the PT OT and speech well technically swallow and a nurse at home. But they said that I can go back to school the next day it was open and then said a week later and they can extend it and I could almost not walk and I was sick and still throwing up.

Around the nurse comes in and does an evaluation which at the time I didn't know I don't remember what she really said or did besides taking my blood pressure but later on I found out she recommended physical therapy and that's it.

Meantime I was still sick I unable to walk unable to dress myself Unable to go to the bathroom by myself and still having accidents like in the hospital what I mean by this is that I would go with my pull-up and go on the bed because I was so sick they would have to change me my gown and sometimes even the sheet.

In the Children's Hospital pediatric rehabilitation specialist came in also neurologists they found out I had general weakness and weakness in my left side they could not figure out why this was happening and thought it was just deterioration from being in bed so long. So to figure out what my vomiting was the neurology team stuff out of it and I was moved from the general adolescent floor to the G.I. floor actually this is about one or two days before I was discharged.


So anyway we figured this problem with walking would go away even though i had problems throughout my life walking it is never been this bad and we thought it would go away but it didn't so whenever I needed to go to her doctors appointment I would go via wheelchair

First appointment I have at my pediatrician he said I was being enabled by my family and then I get physical therapy and walk as soon as possible that I should go up in life not down that it could be due to my being emotionally fragile suggested I should go to a sport or something that I enjoyed like the Special Olympics and that I should go back to school as soon as possible. Aka whenever the school open next

I believe the second doctor we went to was my psychiatrist he thought that my anxiety from my autism is causing me to have problems with weakness and stuff like that. he wanted to talk to my G.I. doctor to see what's going on. He said The more I was the in the chair the more these problems will get worse and become real. He also asked me what I would get being an invalid because he said some people actually did this because I thought they would get something out of it subconsciously. I don't think he thinks I was doing this but I'm not sure

The next appointment I believe is what my G.I. doctor and he said he didn't know what was going on I mentioned CVS and he said that I might have it but I might not for that reason then I mentioned above he gave me more medicine then gave me another medicine said not to take it unless I was still vomiting.

OK now throughout this as for the PT she came and said she cannot help me because she doesn't know which mom me and that I needed to see a doctor neurologist go back to the hospital or go to one of those rehabilitation places. She said she would send the report to my doctors and have them try to figure it out. She said that I couldn't go back to school.

Later after my grandmother complained she called back and said she would get me a walker.

We are waiting on a doctors order for the Walker is what I found out after a long time my grandmother complaining and calling up and trying to figure out what's what.


The day after I got discharged I went to this special-needs fair in the wheelchair. one of the people there was a therapist and recommended that I get some free sessions because of my Sensory problems. As we were on the phone talking with her later on telling her about all of this she suggested I go to another hospital as an out patient to be tested for an inner ear problem or vertigo. We went there. The hearing test was fine they're going to do something kind of balance test and the lady there heard about my problems and recommended balance therapy and OT in the hospital that we were in. My grandmother originally said it was too far away and she said it would take too many sessions to get better and then she finally agreed to do it i'm only getting evaluated for therapy though that doesn't mean I will automatically get it or in a rare case I may not even get it at all. But when we put this to my home health care therapist she said we can't do both at the same time. My grandma said she doesn't know whether she's going to do it or not because it's far away then she said we're just waiting on the walker and when I get it she's going to teach me to use it and that's about it.

The lady who is going to give me free therapy also offered PT but could but I can't get OT or PT yet because she doesn't know what the problem is besides my sensory issues.


I don't know how I'm going to face my pediatrician and my psychiatrist again.

Also in the meantime my therapist and social worker says that when we go through everything physical and everything comes out negative we start to look for things that are mental. she said I shouldn't be so closed minded about mental illness.

Although I don't know why she said that when I do have I believe CVS and also I believe this is confirmed but I'm not completely sure Chronic gastritis acid reflex and this was defiantly confirmed lactose intolerant.

Im actually I am transitioning out of her program soon and she said that I need to get the other disability services in the place that I'm in now before she said developmental disabilities but I'm not so sure on her intent. She said we need to look through all my medical records and other records and figure out what's going on.

because of all of this I haven't been able to go to school i've been missing school work I've been missing my singing class and other things. Honestly I don't know what's going to happen with school and my singing program and my recreation program and camp.


So this is so complicated what do you suggest I might have? Do you think this is just deterioration or anxiety and what should I do?

We also have a holiday party coming up on my special-needs recreation program and I don't know what to do or if I could go. My best friend is very sensitive to things like hospitals and things like that. She is also autistic if I showed up in a wheelchair she would freak out. Also I don't want everyone to ask me what's wrong or for them to worry. But if I try to show up without the wheelchair I might fall down or will be unable to go or to walk. My grandmother does not want me to show up with the wheelchair My uncle is so-so about it and thinks I might need it and so does my mom. But if I get the walker maybe I'll use that.

So in the end what do you think about all this?

Jen,
I am sorry you have not been well. I had a friend whose son had all of a sudden developed unexplained chronic vomiting and had it for years. He went to all kinds of specialists and no one at all could figure out what the problem was. Then one doctor suggested he do some deep breathing exercises and that cured it. I don't know if that is the same thing you could be experiencing but it's worth a try. If you can find a doctor or a yoga instructor or even better, a doctor who does yoga, I would definitely look into that. It certainly won't hurt. I hope you find a solution soon.

Did they check your adrenal gland function while you were in the hospital?

Have you been checked out by a neurologist? Sounds like you have been seen by nearly every other kind of specialist except for that.

I think you should get an MRI. Those symptoms can be caused by a brain tumor or hydrocephalus.

Ugh. My mother has similar symptoms and it took about 20-30 different doctors before slowly starting to figure it out 20 years later. Can't really offer much except that I know how frustrating it can be. I would second being seen by a neurologist: that's the best course of action by far.

since you say the room spins, an inner ear problem has to be considered. it's like motion sickness with very little motion.