How to change our community from within?

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I want to spark a change from within the ASD community. My opinion is that I think people should stop calling Aspergers a "Syndrome". The general ASD population still refers to autism as a disorder, so I think Aspergers particularly should use the term " disorder " instead. Besides the term "disorder" sounds like it has more mainstream acceptance than the term Syndrome.

How can we change this?

This is your opinion...
I do not see aspergers as a disorder, and i will simply flat-out refuse referring to it as such, i'm not entirely happy with 'syndrome' either...

A lot of work is done to get it into the general populations' heads that aspergers isn't a disability, and now you wish to reverse that? good luck

Actually syndrome is an accurate description:
1.a group of symptoms that consistently occur together or a condition characterized by a set of associated symptoms.
Aspergers and autism are syndromes.

disorder
[dis-or´der]
a derangement or abnormality of function; a morbid physical or mental state.

As a person with a primary diagnosis of SPD, the term Sensory Processing DISORDER has never sat well with me. I've been trying to change things by referring to my condition as "Sensory Processing Deficit" whenever I need to talk about it with someone. I feel that's actually a more accurate description of what I experience anyway. Unfortunatly I don't get the opportunity to interact with others who have SPD very often, so perhaps this thread might be a good way to spread the message that there's a better suited term?

Regardless of the syndrome versus disorder issue, HFA happens to be my secondary diagnosis and I would love to see "Autism Spectrum Disorder" totally replaced by "Autism Spectrum Diagnosis".

I dont like to see it as a disorder or syndrome but a ""Brain Type"", the disorders that are ""Associated with it"". ie social anxiety, depression etc come into play as those on the spectrum are in effect a minority therefore have difficulties blending in with the ""Majority"" but yet we are taught from a young age to be ""Individual"", talk about confusing! .. But Aspergers/ASD itself, Brain type in my books

This. "Syndrome" is a very specific medical term, and is used to describe clusters of symptoms which are frequently seen together. I'm not sure I see how "disorder" is a better phrase to be using than "syndrome", and to be fair, now that Asperger's has been removed from the DSM 5, not many people use the term "syndrome" to describe us anymore

Don't worry so much about labels.

Worry instead about staying out of trouble, earning a degree, and getting a good job.

community? there is a community around here but i do not think it is ASD.


it may be interesting to think about the word "drome". it means something like a path. a course for conduit.
hippodrome=a path for horses to run around.
aerodrome=a path for aircraft to land upon.
palindrome=a reverse path
prodrome=a preemptive path..

a syndrome is a set of congruent pathological paths that are associated with a disorder.

i see no inherent problem with the use of the word "syndrome"

What work is this? Can't say I've ever seen anyone campaigning that it's not a disability. And anyhow for plenty it is a disability, so it's not a very good idea to say it's not a disability.



And to the op, I don't mind disorder, I prefer to the others. I think it sounds better than condition, I've found quite a few people saying asc(autism spectrum condition) instead of asd. I think syndrome kind of fits between the two.

Aspergers Disorder was the name of the diagnoses for in the DSM IV manual. Autism Spectrum Disorder is the name for the diagnosis in the current DSM 5 manual. Asperger Syndrome is the current name for the diagnosis in the ICD manual.

I prefer syndrome or condition because disorder implies it's all bad.

Then let's change the name to "Happy Rainbow Fun Time" and be done with it.

And a new mommy blog appears:
My life in hell.
One very special mom's true struggle with the unrelenting horror of parenting an HRFT child

are you on medication

why are you so placid lately?

I am too

^^^I don't know what flavor of humor that is, but holy crap that's funny.

You know, I never thought about that before.

If you reverse it then none of our problems will ever get taken seriously. All services will be cut. All accommodations denied. We will be on our own.

Asperger's is a disorder, it is a disability. To have it you need to have clinically significant impairments in functioning. If you're not impaired, you're not Asperger's - you're BAP.

I fear for the day it's no longer taken seriously because I'd be completely f****d.