Conflicting reports - I need opinions

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Jackson 999
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03 Apr 2016, 7:19 am

Hey, all. I'm dealing with a weird issue and I don't know who to believe. Any insight at all is appreciated.

I was recently diagnosed with about 11 disorders; two of them being neurodiverse in nature. Last year I saw one doctor and one specialist, and this is how it played out:

Guy #1: "You have ADHD (plus a bunch of other crap), and no, you don't have high functioning autism."
Guy #2: "ADHD? No, it's clearly Autism. The first guy didn't even have a clue!"
Guy #2 (later): "OK, well, that other guy was at least right about the panic disorder and social phobia."

This troubles me, because I'd like to know what I'm even targeting in terms of mental health. What would you do in a situation like that? Clearly I have agoraphobia, but I feel like I'll never know if I'm neurodiverse or neurotypical.

Thanks, I appreciate it.



Hyperborean
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03 Apr 2016, 7:31 am

One thing you can be sure of when clinicians disagree like this, is that you definitely have a condition of some kind. Yours is not an unusual case. It would probably help to get another opinion, who can (hopefully) confirm one of the two you've had already.



Jensen
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03 Apr 2016, 8:05 am

Here.
Some links, that may give you an idea - a hint...

http://aspergerstest.net/aq-test/

http://www.autism-help.org/adults-diagn ... ergers.htm

https://socialanxietyinstitute.org/soci ... ifferences

http://www.healthline.com/health/adhd/d ... d-and-adhd

Do the test. Remember things about your earlier days. Make checklists as you go.

When some picture emerge, take your notes to the doc.


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ConceptuallyCurious
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04 Apr 2016, 8:11 am

I've had a similar problem. Like the others said, you can be sure you have some kind of difficulty. It's frustrating, though.


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Plus a smattering of mental health problems that have now been mostly resolved.


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04 Apr 2016, 8:58 am

If you have a certain degree of severity of symptoms or Types of it, someone could have Extremly mild Social difficulties Sensory Issues, and Comborbitidy but still be autistic because they have all three, I barely have SPD, but It doesn't affect my diagossis because the "Experts" don't detect it. So, by They're standards your autistic. Plus, Social Phobia + Panic Disorder + SPD + ADHD + Depression + Black and White Thinking = Autism Pretty Much.


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helloarchy
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04 Apr 2016, 9:16 am

Get a third opinion and go with the majority, lol. As Pieplup said, Autism is quite an encompassing condition. Many people with Autism have several additional diagnosis, ADHD being one of them. I'm no professional though, so it'd probably be best to raise your conflicting reports with Guy #2, or even Guy #1.



Trogluddite
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04 Apr 2016, 11:40 am

You called them a "doctor" and a "specialist". Was the doctor just a general practitioner? And do you know the specialist's field of expertise?

If they are a GP, and a specialist in developmental conditions, then I would say that the specialist's opinion is more likely to be accurate. If the GP also has some specialist training, or the specialist is an expert in a completely different field, then it is much harder to choose one.


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Ettina
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05 Apr 2016, 11:33 am

Well, at least you can be pretty certain you have panic disorder and social phobia.

As for ADHD and autism and the other stuff, I suggest looking at a few things.

Firstly, what were the two guys' credentials? Usually a specialist is better equipped to diagnose something in their field accurately than a regular doctor is. So if one was a GP and the other was a psychiatrist, then the psychiatrist is more likely to be right.

Second, how did each meeting go? Did you feel like they were listening to you, and reflecting back what you were saying accurately? Or did they seem to ignore stuff you said, or explain to you how your perceptions can't be right? Or even accuse you of lying when you said something that was actually true? For example, I had one doctor say I couldn't have hypermobility (a joint issue that I've since been diagnosed with) because I didn't have knee pain. In fact, I do have knee pain and had forgotten to mention that. But when I told him so, he accused me of lying in order to get the diagnosis I wanted.

Third, research each condition. Especially look for first-person accounts by people who have that condition. Does it seem to describe you? If you've been diagnosed with something and you read about it and it doesn't sound like you at all, it's either a misdiagnosis or your self-awareness is poor.

Fourth, if possible, ask someone who's known you for years (preferably since you were a small child) and can be trusted to give an honest opinion. You don't need to get into each condition and what it means - focus on the symptoms instead. Have they seen you do stuff like that? Do they think those features describe you? For example, it can be hard to tell if you're missing social cues, but someone who knows you might be able to say 'yeah, many times I've seen someone so annoyed they're about to blow up at you and you seem to have no clue about it' (my Dad said that to me when I asked him).

And lastly, even if the diagnosis isn't 100% accurate, the treatment might still help. For example, right now in counseling I'm getting a kind of treatment known as DBT. DBT is designed for people with borderline personality disorder, which I don't have. But my particular mix of autism & PTSD has resulted in some similar problems to BPD, such as moods that spiral wildly out of control in response to a small provocation, and difficulty with self-soothing when I'm upset. Because I have a lot of the same problems as BPD people, I figured the same treatment might help, and so far it seems to be working. In my case it's a deliberate strategy, but if I'd gotten DBT because of a misdiagnosis, would that really change the fact that I'm getting an effective treatment for the particular issues I have?



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05 Apr 2016, 4:32 pm

IF one doc says ADHD, and other says no to ADHD, and yes to autism, then you're not NT either way because ADHD is itself non neurotypical (as I understand it). Its distinct from, but comparable to high functioning autism, or to aspergers. Its not on the autism spectrum but comparable to the high end of the spectrum.

And a person could be both ADHD, and on the autism spectrum.

Yes, you may want to invest in thorough test from a third doctor.