Fnord wrote:
It's easier to solicit donations when you can trot out pictures of sad-eyed kids then when pictures of angry-faced adults are used.
Autism Speaks is a money-collecting organization. Roughly four percent of the money they collect actually goes to people with autism. The rest is sucked up by various "administrative" costs.
I agree with this, and not unique to autism charities and government programs--a lot of charity funds for disabled people focus on kids (e.g., Easter Seals, March of Dimes) but don't talk much about providing services for adults with chronic issues (MS, cerebral palsy, ALS).
I think also that providing services for adults is a more complex issue. Children can be controlled by parents, but adults, even disabled adults, can make their own decisions and bring up messy issues of consent, whether they should be under legally mandated care, independence, healthcare, safety, and sex. Service providers need to listen to the care receiver's needs and negotiate a customized approach, preferably treating the care receiver as a willing partner, all something that requires thought, planning, and sensitivity.
Many adults also fall into a grey area. They are able to live independently and don't need constant care like in an assisted living situation, but still struggle to deal with employment, health issues, physical safety, and keeping up with the bills and household chores. These may not meet the criteria for receiving government-funded aid, but clearly need a little help. I think we need to find ways to create different levels of help based on different levels of ability. Some may just need some job coaching or help with organizing chores. Others may need more extensive support transitioning to adulthood, but eventually can become more independent with training.
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Diagnosed Bipolar II in 2012, Autism spectrum disorder (moderate) & ADHD in 2015.