Hyperacusis/Phonophobia and Hyperekplexia

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Hi everyone, my name's Arjay and I am 16 year old, a cerebral palsy patient. When mom was pregnant of me, she was depressed and also I heard that she also commited suicide once but still lucky our family prevented it. When I was born, my legs are working normal until they noticed when I was 8 months old.. I had a really serious fever and we're on hospital for one week, they injected some strong dosage kind of drug which treats fever fastly, after a week we're finally off and go home happily. As time goes by, my family noticed different about me, I cannot balance and years have passed I finally stuck into a wheelchair. But I didn't want to talk about my cerebral palsy, maybe there's something that connects it to my "Fear of Noises". Honestly, I am a really jumpy person, which even small and sudden noises could make me jump easily which is really a problem for me, I've been trying to deal with this problem since I was 6 year old. In my high school times was really my hard time in dealing this "Hyperacusis/Phonophobia and Hyperekplexia", because on my first day in junior high school the school speaker was really loud and they play any kind of song.. one sound made me jump and I was really felt embarrassed on that time that I really don't want to go to school anymore. Years have passed my "Hyperacusis/Phonophobia and Hyperekplexia" really became worst which really made me embarrassed in front of many people and now I prefer to stay alone in public than being on group. When I see speakers around me, I always make sure that I have ear protection to avoid "Hyperacusis/Phonophobia and Hyperekplexia" phenomenon. Right now I am still searching for any help to increase my tolerance in sound totally and could listen to sudden noises freely without being starltled. I hope you guys understand my weird life, it's really my problem.

One note: I'm afraid going to church 'cause church bells really made me jump and I don't want to get far away from God's love.

Help me with this guys, this is really a nightmare to me. Every night I am wondering when this freakish problem will end.

i'm sorry you had to go through all that Arjay [img]http://dreammoods.com/dreamforum/images/smilies/hugs.gif
[/img] I also have always been sensitive to sudden anything, whether it is motion or bright light or loud/harsh sounds. I can tell you that when I got hypertension and was first prescribed beta blockers, a good portion of that went away- I still feel some startle reflex but I don't jump out of my skin the way I used to. also I used to have what the docs called an "intentional tremor" [not sure if somebody with CP would have a similar issue or not] which went away on the beta blockers.

Hi Arjay, welcome to WP. Many of us suffer from this sort of thing to some degree, so what you are talking about is not unusual to a lot of us. I do not have any advice for you other than the standard one of talk to your doctor. I do know there are medications, like auntblabby said, that can reduce this. I believe what is happening is you fight or flight reflex is being triggered and therefore causing a very strong reaction. So maybe anti-anxiety medication might help. Have also heard of anti-seizure being used for this sort of thing if I am remembering right.

Thank you so much guys that you really understand someone like me. I'll do that in the future.

wala pong anuman