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random1
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10 Mar 2016, 3:43 pm

will they remove autism spectrum disorder from me?

i still have sensory issues, have trouble with sarcasm still, have trouble problem solving, have trouble with social cues, body language, non verbal cues.

i get mad sometimes and express my anger different sometimes i think.

did you lose ur autism diagnoses?

what are the chances?

i still stim, re play songs over and over.

am still literal.
i still obsess sometimes.


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diagnosed with autistic disorder.


AspieUtah
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10 Mar 2016, 3:50 pm

I was told by my diagnosticians in August that my diagnosis of Autism Spectrum Disorder was "a lifetime diagnosis." I presume this means that, even if the diagnostic criteria changes in the future, I should be grandfathered into a new diagnostic name.


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Finalfate
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10 Mar 2016, 4:07 pm

random1 wrote:
will they remove autism spectrum disorder from me?


No. Who even is they? If you mean your disability benefits, the possibility is always there. But diagnoses are a matter of perception and labeling, they don't actually exist, they are abstract.



MissAlgernon
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10 Mar 2016, 4:16 pm

Autism is lifelong. Even if you managed to compensate your autistic symptoms perfectly one day, it's just compensating, nothing more. You'll never become NT, so you'll always keep your diagnosis.



random1
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10 Mar 2016, 4:19 pm

MissAlgernon wrote:
Autism is lifelong. Even if you managed to compensate your autistic symptoms perfectly one day, it's just compensating, nothing more. You'll never become NT, so you'll always keep your diagnosis.

so then why do they lose it sometimes?
still confused a bit


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Finalfate
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10 Mar 2016, 4:26 pm

random1 wrote:
MissAlgernon wrote:
Autism is lifelong. Even if you managed to compensate your autistic symptoms perfectly one day, it's just compensating, nothing more. You'll never become NT, so you'll always keep your diagnosis.

so then why do they lose it sometimes?
still confused a bit


Again they is unclear. You're probably referring to the controversy before the DSM-V wherein people were crying out that the new criteria might be too strict, and some with just mild Asperger's syndrome (DSM-IV) would lose their diagnosis. This did not happen, because it specifically says in the DSM-V that anyone with an Asperger's Syndrome diagnosis should be diagnosed with ASD or another similar diagnosis if it matches better.



League_Girl
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10 Mar 2016, 4:29 pm

random1 wrote:
MissAlgernon wrote:
Autism is lifelong. Even if you managed to compensate your autistic symptoms perfectly one day, it's just compensating, nothing more. You'll never become NT, so you'll always keep your diagnosis.

so then why do they lose it sometimes?
still confused a bit



Misdiagnoses happens.


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random1
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10 Mar 2016, 5:23 pm

League_Girl wrote:
random1 wrote:
MissAlgernon wrote:
Autism is lifelong. Even if you managed to compensate your autistic symptoms perfectly one day, it's just compensating, nothing more. You'll never become NT, so you'll always keep your diagnosis.

so then why do they lose it sometimes?
still confused a bit



Misdiagnoses happens.


so when im a adult ill still have that diagnosis?
just wanna make sure


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drlaugh
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10 Mar 2016, 5:42 pm

The only thing I am aware / have experience -
The new diagnosis has 3 levels
1, 2 & 3, with 3 being most severe. :o


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Starfoxx
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10 Mar 2016, 7:07 pm

No you wont lose your diagnosis. Nobody, will but the term is being changed to autism spectrum disorder instead.



ASPartOfMe
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10 Mar 2016, 8:04 pm

Yes you can
In Kids Who Lose Autism Label, Struggles Often Persist

Study Documents that Some Children lose Thier Diagnosis

It is not something that happens automatically. Whether the people who lose thier diagnosis are not actually autistic anymore or were autistic in the first place is debatable.


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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Finalfate
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11 Mar 2016, 1:56 pm

ASPartOfMe wrote:
Yes you can
In Kids Who Lose Autism Label, Struggles Often Persist

Study Documents that Some Children lose Thier Diagnosis

It is not something that happens automatically. Whether the people who lose thier diagnosis are not actually autistic anymore or were autistic in the first place is debatable.


For anything to be diagnosed under the DSM, it has to cause clinically significant limiations. You would still have the neurological difference, but if all limitations including stress and anxiety go away due to learning over time, it is possible to no longer fit under the DSM due to that criterium. Who cares what psychologists say anyway? They've always been proven wrong about everything up to this point, just like every other type of scientist. That's the nature of science.



Ettina
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12 Mar 2016, 11:39 am

random1 wrote:
MissAlgernon wrote:
Autism is lifelong. Even if you managed to compensate your autistic symptoms perfectly one day, it's just compensating, nothing more. You'll never become NT, so you'll always keep your diagnosis.

so then why do they lose it sometimes?
still confused a bit


Some people lose an autism diagnosis because later assessors decide they were misdiagnosed. Others lose the diagnosis because their behaviour has changed and they no longer act outwardly autistic. (I think this is a mistake, since those people usually still think like autistic people and this 'recovery' is often temporary.)

However, I seriously doubt you'll lose your diagnosis. From the sounds of it, you are still acting clearly autistic. Plus, if anyone does try to take your diagnosis away and you don't think it's accurate, you can always insist on a second opinion. It's one of your rights as a patient to seek the opinions of multiple clinicians if needed.



ZombieBrideXD
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12 Mar 2016, 12:02 pm

It doesn't matter,

If a doctor says "oh your not autistic" do you're problems go away? Probably not (unless its all psychosomatic)

Autism Spectrum Disorder is just a label describing a set of symptoms and impairments, it doesn't exist beyond that.

Your issues will still exist it will probably just have a different label.


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Starfoxx
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12 Mar 2016, 1:35 pm

My symptoms have improved since I've been diagnosed but that's because I now know what's up and how to work around my issues. I had more severe symptoms as a child which dissappeared as i got older, but I am mildly on the spectrum.

I think if someone is diagnosed and then they do improve but it's not likely to be a misdiagnosis, then it wouldn't be good to take away the diagnosis because you might do well for years but like 10 years later have autistic symptoms reappear.