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AJisHere
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31 May 2016, 9:02 pm

I see people around here talking about how autism is a part of them. How it's inseparable from their identity and personality. This is particularly noticeable in the perennial "if there were a cure, would you get it?" threads. People in these threads often say how they wouldn't be themselves without autism. Ok. I think they're selling themselves short. :(

Then they say "how could anyone be the same person?"

Ummm... :|

I haven't had anyone explicitly tell me that my autism is a part of me. I'd have to answer that one pretty clearly:

It isn't. :roll:

I have autism, but I don't consider it an important part of my identity, or key to who I am as a person. It's something outside what I perceive as "me", but which exerts a large amount of influence on "me". It's no more a part of me than a tumor would be; it's biology. I don't consider my neurological quirks to be key to who I am even if they affect the medium through which those things come into being. If those quirks could be removed, I firmly believe I would not miss any of them and would in fact feel more "myself", if that makes any sense. Right now, I feel like they are preventing me from being the person I'm meant to.

I come here to find people who have some things in common with me that most don't, not for a group identity. Saying "we" about autistic people feels strange to me.

I'm curious if anyone else relates to this. It's not something I've heard from anyone else, at least not explicitly.


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kraftiekortie
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31 May 2016, 9:04 pm

I am KraftieKortie. I am not Autism.

Autism is a part of me--but it doesn't define me.



AJisHere
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31 May 2016, 9:31 pm

kraftiekortie wrote:
I am KraftieKortie. I am not Autism.

Autism is a part of me--but it doesn't define me.


That is a difference, though. I mean, I just don't feel it's a part of me. What do you mean when you say it's a part of you?


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kraftiekortie
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31 May 2016, 9:35 pm

It's a part of how I relate to my environment.

And how I relate to people.

Autism influences how I relate to both.



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31 May 2016, 10:12 pm

I would cut it out of myself and would kill it, burn it, drown it if I could.



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31 May 2016, 10:20 pm

It's just a part of me. Now that I know about that part, I am working on it. It's slow since I can't do it by myself, but it is just one part of me. I refuse to let it define me.

It is a part of me the same way a tumor or an arm would be. Some things are noticeable. Some are not.

But, it is a part. My brain works the way it does. Your brains (all of you) work differently. But, we are still the same. Dealing with something in one way or another. Some more severe than others.

But, I have Asperger's. It is what it is.


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AJisHere
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31 May 2016, 10:32 pm

r00tb33r wrote:
I would cut it out of myself and would kill it, burn it, drown it if I could.


A bit dramatic, but I hear you loud and clear.

zkydz wrote:
It's just a part of me. Now that I know about that part, I am working on it. It's slow since I can't do it by myself, but it is just one part of me. I refuse to let it define me.

It is a part of me the same way a tumor or an arm would be. Some things are noticeable. Some are not.

But, it is a part. My brain works the way it does. Your brains (all of you) work differently. But, we are still the same. Dealing with something in one way or another. Some more severe than others.

But, I have Asperger's. It is what it is.


I'm not talking about letting it define you, but about treating it as part of your identity or as something that should inform how you view the world. When people say it is a part of them, I think this is what they mean; but I just don't feel that way.

I guess you could say I don't consider myself as an "aspie" or something like that and I don't assign any value to my autism, as some seem to. It is there and won't go away, it has influenced who I am, but at the end of the day it is worthless to me.

This isn't a view I see around here very much.


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31 May 2016, 10:34 pm

My depression is an affliction. It is irrational and irregular and has no positive possibilities. If it were possible, I would cure my depression.

Autism is a description of the machine that is afflicted with depression. It is persistent and predictable. It is inexorable and inescapable. Perhaps most importantly, it is not all bad. It is crucial for me to see autism as a part of myself to be managed and used, like a bad temper or addictive tendencies. I have learned to live like this. Changing that part of myself would require completely relearning how to live.


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zkydz
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31 May 2016, 10:45 pm

AJisHere wrote:
I'm not talking about letting it define you, but about treating it as part of your identity or as something that should inform how you view the world. When people say it is a part of them, I think this is what they mean; but I just don't feel that way.
Well, I'm not sure if this will answer your question, but I will try. I did try before, but missed the mark.

If it is a part of my identity, then it does inform me on how I view the world. Since I was a recent Dx, it did explain why I see things differently than other people.

I did not grow up with this knowledge like many here did. This is new to me. Really new, if you know what I mean. But, finding out about it has informed me on my differences.

For me, it's just knowledge. Like I said, I have Asperger's. It is what it is. But, knowing does inform me and make me more aware of things that has separated me from others all my life. More importantly, I now know more myself now that I can work on these issues.

I'm not sure if this answers you or not. It is the best I can do with how I understand the questions you posed. And, remember, I sometimes garble the incoming and outgoing.


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31 May 2016, 10:46 pm

It's a part of me, but it doesn't define who I am. It colours the way that I look at the world. It also colours my preferences and my thought patterns. It doesn't define who I am. I don't feel that I'm selling myself short. I feel that I'm being bluntly honest.


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ZombieBrideXD
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31 May 2016, 10:50 pm

Autism heavily influences my personality and it is apart of me but it isn't my whole person.

I think I would be overalls the same person if I didn't have autism, just better functioning skills, more accepting to change, better social skills, less sensitive to my environment ect,


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AJisHere
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31 May 2016, 10:53 pm

@Rebel_Nowe: I think this is a matter of perspective. I have the same conditions, but I view it very differently and see it as no more beneficial than depression. For you, it's as you describe. For me, they are both "afflictions". I have learned to live with them, but given the option (sadly, I won't be) I'd rather not.

@zkydz: Yeah, this is interesting; we've discussed before how we're opposites here. You were only diagnosed recently, I was diagnosed younger than anyone else I've ever met. That probably informs my views here, where there was no revelation, no sudden explanation for all these things. None of it was new information at any point, so it's mostly just been "here's why you have to put up with this crap!"

@ZombieBrideXD: But if losing it wouldn't change who you are, is it really a part of you? Or is it just something you have?


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zkydz
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31 May 2016, 10:57 pm

AJisHere wrote:
@zkydz: Yeah, this is interesting; we've discussed before how we're opposites here. You were only diagnosed recently, I was diagnosed younger than anyone else I've ever met. That probably informs my views here, where there was no revelation, no sudden explanation for all these things. None of it was new information at any point, so it's mostly just been "here's why you have to put up with this crap!"
Yeah, I think that does make a difference. That and I live in the uncanny valley. Doesn't take much to prick that bubble though and let others see it. But, until this point, they thought I was just an ass. I just thought they were the asses.

But, yeah, I wonder what it would have been like to be told limitations all my life. Me? I just blundered through things. It's amazing that I'm still alive LOL


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31 May 2016, 11:27 pm

I do see autism as a large part of my core identity. It impacts everything that makes me who I am: my interests stem from autistic obsession, my comfort with, and love of facts, details and learning are the result of an autistic need for precision and clear expectations in life. The activities I enjoy and dislike are directly influenced by my sensory problems, my social deficits have shaped the way I interact and engage with people, and thanks to my overall neurological makeup, I will always have a worldview that is skewed by autism. Everything I do, understand, learn, interpret, and experience in this world will be done, understood, learned, interpreted and experienced through the lens of autism.

Autism is not like epilepsy, in which you are a perfectly normal human being, save for in a few sporadic instances in which you're not. Like it or not, autism impacts us every day, in practically everything we do, and as such, I have a difficult time seeing how some people are able to see it as just a small part of them, or, as many NTs who use person-first language like to attest, separate from them entirely.


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AJisHere
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31 May 2016, 11:42 pm

StarTrekker wrote:
The activities I enjoy and dislike are directly influenced by my sensory problems, my social deficits have shaped the way I interact and engage with people, and thanks to my overall neurological makeup, I will always have a worldview that is skewed by autism. Everything I do, understand, learn, interpret, and experience in this world will be done, understood, learned, interpreted and experienced through the lens of autism.


That is certainly one way to look at it. I suppose I figure that there are myriad factors which are heavy influences on all of these things. Heredity, upbringing, environmental factors, etc. These things do not always become "us", even though they shape us.

StarTrekker wrote:
Like it or not, autism impacts us every day, in practically everything we do, and as such, I have a difficult time seeing how some people are able to see it as just a small part of them, or, as many NTs who use person-first language like to attest, separate from them entirely.


It fades into the background, for the most part. I only become aware of it when it causes problems, many of which are related to things I do consider a part of myself and so it feels like something outside of myself bearing down, imposing itself where it is not welcome. It feels like... spiritual chains, of a sort. Like it's imprisoning the actual "me".


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01 Jun 2016, 12:03 am

AJisHere wrote:
I see people around here talking about how autism is a part of them. How it's inseparable from their identity and personality. This is particularly noticeable in the perennial "if there were a cure, would you get it?" threads. People in these threads often say how they wouldn't be themselves without autism. Ok. I think they're selling themselves short. :(

Then they say "how could anyone be the same person?"

Ummm... :|

I haven't had anyone explicitly tell me that my autism is a part of me. I'd have to answer that one pretty clearly:

It isn't. :roll:

I have autism, but I don't consider it an important part of my identity, or key to who I am as a person. It's something outside what I perceive as "me", but which exerts a large amount of influence on "me". It's no more a part of me than a tumor would be; it's biology. I don't consider my neurological quirks to be key to who I am even if they affect the medium through which those things come into being. If those quirks could be removed, I firmly believe I would not miss any of them and would in fact feel more "myself", if that makes any sense. Right now, I feel like they are preventing me from being the person I'm meant to.

I come here to find people who have some things in common with me that most don't, not for a group identity. Saying "we" about autistic people feels strange to me.

I'm curious if anyone else relates to this. It's not something I've heard from anyone else, at least not explicitly.


I relate 100%
I have always seen it as an affliction. Nothing more than an impairment.
Makes me a prisoner in my own body which I can't control in many ways.
The tumor analogy came to me reading this post even before I got to that part.

I mean what about my dyspraxia, which has several things in common with autism, and requires me to wear leg braces?
Am I supposed to want to hold on to that too and have a "it's what makes me being me" attitude?