Wrong diagnosis?
Hello everyone,
I am really sorry about this. I know how uncool it is to bother people on the internet. I want to go get my diagnosis checked again, but no psychologist in my area will do it for less than $2000. None of them will take insurance either! I am a graduate student. I don't have that kind of money.
Anyways, when I was 19 I was diagnosed with ADHD. I still have a copy of the report. Basically, on the WAIS-IV my Verbal Comprehension Index is "Very Superior" (141), my General Ability Index is "High Average"(115) and my Processing Speed Index is "Low Average"(86). Everything else was average. However, I think I might have Asperger's syndrome, not ADHD.
I was also given the W-J III. I was "advanced" in all of the reading categories. I was within limits for all of the math categories and advanced for all of the writing categories. However, I got "mild functional impairment" on "story recall" and "understanding directions". My delayed story recall was within the normal limits.
I have had problems since I was a child (4-5). When I was young, I was very shy and not interested in making friends. I wouldn't make eye contact with people. My parents were very strict. I was punished for my "anti-social" behavior and started acting "social" because I was afraid of getting time-out or having my toys taken away. I also hated getting yelled at. I still hate yelling/sudden loud noises. I break down and cry when people start to yell. I can't handle it.
I was raised in a strict, Christian household that really emphasized rules and conformity. Not conforming to rules was a really bad thing and it meant you were going to hell. I grew up in the country and spent most of my spare time riding horses. I used to know the names of all of the breeds and a ton of stuff about equine science. In high school, I was obsessed with marine biology and learned the scientific names of tons of local fish, cnidarians and echinoderms. I didn't have many friends and I spent most of my spare time outside riding horses or looking at marine life.
Anyways, I have had academic problems since middle school. I barely passed algebra and physics. I almost failed out of undergrad. I have trouble focusing/staying organized. I constantly forget stuff. I've gotten better, but I still can't "multitask". I also used to be very impulsive. Insignificant things would make me extremely upset and I had some really awful coping mechanisms. I have gotten better about this one.
I chose not to take the ADHD medication because I was really into drugs back then and was afraid of being pressured into selling it. I also was afraid of abusing it/mixing it with other drugs.
I have gotten a lot better about most of these things. However, I still struggle in professional situations. I work in an office and I SUCK at talking on the phone. I always have, but now the stakes are really high. I also have trouble with "small talk". A lot of my colleagues think I am awkward and abrasive. They gossip about me behind my back. I've been fired from several jobs because I didn't get along with the boss.
I am a lesbian and on the androgynous side. I used to chalk everything up to homophobia. However, I now work with other LGBT people and they don't have these problems.
I'm almost 26 and I still struggle in professional situations. I thought I would grow out of this. I'm terrified. What is going to happen to me when I finish my MA?
Thanks everyone! I appreciate it.
I don't know you so I can't say if you are misdiagnosed or not. Impulsive isn't a symptom of autism. I have never read anywhere about autistic children being impulsive and seeing it being listed as a symptom or being common in it. It's possible to have both ADHD and Asperger's.
PS what you said about LGBT, I realized when I was ten I had more going on than my language because there were other kids in my school who also talked funny and they didn't get treated the same way as I did.
_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
Do you get along with them ok, or are the same interpersonal issues present?
If the issues remain, then it may be something to work on. If you're comfortable doing so, it may be helpful to ask them for feedback. Let them know you don't mean to put anyone off and would like to improve how you come across to others.
If possible, using a basic script can help a lot with phone communication. I don't know if any of this is helpful, but hopefully.
MentalIllnessObsessed
Pileated woodpecker
Joined: 22 Jul 2016
Age: 24
Gender: Female
Posts: 193
Location: Ontario, Canada
Greetings. So just by reading the first two or three paragraphs, the first thing that comes to my mind is non-verbal learning disorder (NvLD). Many people with Aspergers have this also. 80% of people with Aspergers were found to have NvLD according to one study. You report having a high verbal IQ of 141, and just average IQ on everything else. If you don't mind though, what was your perceptual reasoning IQ? But if it is in the average range, that is considered a big gap between the two scores. You also said you have problems with math. Many people with NvLD have difficulties with me. Also, problems with directions is quite common with NvLD.
Also, NvLD is very similar to Aspergers, since both have problems with social skills. The reason why people with NvLD have difficulties is because they have problems reading people (faces, body language), and also struggle with being very literal.
Here are some links to information about NvLD:
https://www.understood.org/en/learning-attention-issues/child-learning-disabilities/nonverbal-learning-disabilities/understanding-nonverbal-learning-disabilities
https://ldaamerica.org/types-of-learning-disabilities/non-verbal-learning-disabilities/
It's not considered a diagnosis in the DSM-V nor ICD-10, but professionals and schools recognize NvLD as a learning disability, and you are able to get accommodations for it. I'm not saying you do have it, but to be honest, I'm surprised you weren't diagnosed when you had the WAIS-IV done. Was your psychologist or whoever tested you familiar with learning disabilities? If not, I can understand why. But sadly, since this person didn't notice this, it may cost you more money. I wish the place would allow you to bring your assessment back and assess you for this.
Anyways, here is a list of symptoms of NvLD from the first link I posted above:
Shares information in socially inappropriate ways
Pays attention to details but misses the big picture
Struggles with reading comprehension
Struggles with math, especially word problems
Is physically awkward and uncoordinated
Has messy handwriting
Thinks in literal, concrete terms
Misses social cues such as verbal and/or nonverbal expressions, which may make your child seem “off” to others
Has poor social skills
Stands too close to people
Is oblivious to people’s reactions
Changes the subject abruptly in conversation
Is overly dependent on parents
Is fearful of new situations
Has trouble adjusting to changes
Or, to sum up the skills, here are the skills many people with NvLD lack: conceptual skills, motor skills, visual-spatial skills, social skills, and abstract thinking.
Here is some information relating to the misdiagnosis of AD/HD in NvLD:
Though one thing I kinda disagree with is AD/HD not being a learning disability. Psychologist are recognizing that people with AD/HD lack executive functions, which is like the conductor of your mind organizing, planning, remembering, and a lot more stuff. EFD, executive functions disorder, is considered a learning disability.
Anyways, because of your high verbal IQ and math skills, I'd make sure you look into a specialist that recognizes both conditions, since they are so co-morbid with each other, plus you seem to show a lot of signs of it based off what you wrote.
Also, I'm not a professional, just someone with autism who has a special interest in this sort of stuff
Hope this helps
_________________
Your neurodiverse (Aspie) score: 148 of 200
Your neurotypical (non-autistic) score: 60 of 200
You are very likely neurodiverse (Aspie)
Dx Autism Spectrum Disorder - Level 1, learning disability - memory and fine motor skills, generalized and social anxiety disorder
Unsure if diagnosed with OCD and/or depression, but were talked about with my old/former pdoc and doctor.
Criteria for my learning disability is found at this link:
http://www.ldao.ca/wp-content/uploads/LDAO-Recommended-Practices-for-Assessment-Diagnosis-Documentation-of-LDs1.pdf
Also, NvLD is very similar to Aspergers, since both have problems with social skills. The reason why people with NvLD have difficulties is because they have problems reading people (faces, body language), and also struggle with being very literal.
It's not considered a diagnosis in the DSM-V nor ICD-10, but professionals and schools recognize NvLD as a learning disability, and you are able to get accommodations for it. I'm not saying you do have it, but to be honest, I'm surprised you weren't diagnosed when you had the WAIS-IV done. Was your psychologist or whoever tested you familiar with learning disabilities? If not, I can understand why. But sadly, since this person didn't notice this, it may cost you more money. I wish the place would allow you to bring your assessment back and assess you for this.
Anyways, here is a list of symptoms of NvLD from the first link I posted above:
Shares information in socially inappropriate ways
Pays attention to details but misses the big picture
Struggles with reading comprehension
Struggles with math, especially word problems
Is physically awkward and uncoordinated
Has messy handwriting
Thinks in literal, concrete terms
Misses social cues such as verbal and/or nonverbal expressions, which may make your child seem “off” to others
Has poor social skills
Stands too close to people
Is oblivious to people’s reactions
Changes the subject abruptly in conversation
Is overly dependent on parents
Is fearful of new situations
Has trouble adjusting to changes
Or, to sum up the skills, here are the skills many people with NvLD lack: conceptual skills, motor skills, visual-spatial skills, social skills, and abstract thinking.
Here is some information relating to the misdiagnosis of AD/HD in NvLD:
Though one thing I kinda disagree with is AD/HD not being a learning disability. Psychologist are recognizing that people with AD/HD lack executive functions, which is like the conductor of your mind organizing, planning, remembering, and a lot more stuff. EFD, executive functions disorder, is considered a learning disability.
Anyways, because of your high verbal IQ and math skills, I'd make sure you look into a specialist that recognizes both conditions, since they are so co-morbid with each other, plus you seem to show a lot of signs of it based off what you wrote.
Also, I'm not a professional, just someone with autism who has a special interest in this sort of stuff
Hope this helps
Hey! Thanks so much! You are a godsend!
My perpetual reasoning index is 90.
I probably do have NVLD. The diagnosis fits. The only part that doesn't fit is the "doesn't write quickly" part. I am much faster than most of my peers at reading and writing. I have good grades in grad school and always turn my work in on time.
But yeah...I have terrible "fine motor" skills, my handwriting is illegible and I am extremely literal. I don't get jokes at all.
Thanks so much!
Do you get along with them ok, or are the same interpersonal issues present?
If the issues remain, then it may be something to work on. If you're comfortable doing so, it may be helpful to ask them for feedback. Let them know you don't mean to put anyone off and would like to improve how you come across to others.
If possible, using a basic script can help a lot with phone communication. I don't know if any of this is helpful, but hopefully.
I have the same interpersonal issues with the LGBT people in my office. I will try and talk to them about this.
The script idea for talking on the phone is a good one too.
Thanks!
MentalIllnessObsessed
Pileated woodpecker
Joined: 22 Jul 2016
Age: 24
Gender: Female
Posts: 193
Location: Ontario, Canada
Hey! Thanks so much! You are a godsend!
My perpetual reasoning index is 90.
I probably do have NVLD. The diagnosis fits. The only part that doesn't fit is the "doesn't write quickly" part. I am much faster than most of my peers at reading and writing. I have good grades in grad school and always turn my work in on time.
But yeah...I have terrible "fine motor" skills, my handwriting is illegible and I am extremely literal. I don't get jokes at all.
Thanks so much!
Wow! I'm now more surprised that they didn't notice this. There is a HUGE gap between verbal and non-verbal IQ, over 50 IQ points!
Also, remember, you don't have to have every small symptom like "writes slowly". It's the general stuff, like the skills stuff I wrote. Something like this was an example. Sorry, I didn't clarify that.
What I'd suggest is to find an experienced psychologist in LDs and autism, and show them your scores from the WAIS-IV (the document) and ask them about NvLD, and test for ASD to see if it's co-morbid or not. They may be able to diagnose you with NvLD from just this assessment, but probably will need to know more about your social skills, which will cost money. They'd also have to run tests for ASD too. But with this as a diagnosis, you could get more specific accommodations for subjects like math and physics, which is very math-based, and people with NvLD tend to lack skills in this area. There was some tips to accommodate yourself (unofficially) for NvLD at the bottom of the first link, and in the second link. Some may be too childish, but the general idea is still there.
Anyways, I do hope you find a professional to help your needs and help you get the right accommodations in place for school
_________________
Your neurodiverse (Aspie) score: 148 of 200
Your neurotypical (non-autistic) score: 60 of 200
You are very likely neurodiverse (Aspie)
Dx Autism Spectrum Disorder - Level 1, learning disability - memory and fine motor skills, generalized and social anxiety disorder
Unsure if diagnosed with OCD and/or depression, but were talked about with my old/former pdoc and doctor.
Criteria for my learning disability is found at this link:
http://www.ldao.ca/wp-content/uploads/LDAO-Recommended-Practices-for-Assessment-Diagnosis-Documentation-of-LDs1.pdf
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