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AJisHere
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31 Aug 2016, 1:11 am

I mean, in all likelihood I do. The psychologist I'm working with wants to make sure, though. It's an old diagnosis and I didn't seem autistic to him; that's fair, I don't seem autistic to anyone. This is all a good thing, we're trying to get me hooked up with whatever help I need.

It did get me thinking though... what if there is a differential diagnosis someone missed 25 years ago? Could there even be? That'd be interesting. I mean, I'd love to not have autism, but having to reorient myself around a new diagnosis would be a major pain in the ass. Helpful, but a ton of work.

One way or another, I'm looking forward to getting useful information; but I'm also a bit nervous about any headaches it may cause me.


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goatfish57
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31 Aug 2016, 3:53 am

Fresh eyes may prove beneficial and a new game plan may be helpful. The hard work will be tough. You are strong and can do it.


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DataB4
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31 Aug 2016, 4:05 am

I'm confused. Regardless of what the experts call it, won't your traits, your personal strengths, weaknesses, and challenges be the same? How does the label affect how you cope?

I can see why you want another approach, since the current one isn't working for you. I hope you start finding more of the answers you seek.



EzraS
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31 Aug 2016, 4:16 am

The older I get, the more they lean towards dyspraxia being more of a problem for me than autism. My attitude is I'm just as messed up either way so what difference does it make? The stuff you've said about your condition and how you feel about it, is often exactly what I'm thinking for myself as well.



LupaLuna
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31 Aug 2016, 8:08 am

AJisHere wrote:
I mean, in all likelihood I do. The psychologist I'm working with wants to make sure, though. It's an old diagnosis and I didn't seem autistic to him; that's fair, I don't seem autistic to anyone. This is all a good thing, we're trying to get me hooked up with whatever help I need.

It did get me thinking though... what if there is a differential diagnosis someone missed 25 years ago? Could there even be? That'd be interesting. I mean, I'd love to not have autism, but having to reorient myself around a new diagnosis would be a major pain in the ass. Helpful, but a ton of work.

One way or another, I'm looking forward to getting useful information; but I'm also a bit nervous about any headaches it may cause me.


You are not the only one who has fallen victim to misdiagnosis. I too got misdiagnosed all the time when I was in my child/teen years. In fact, it got so bad, I finally said "F**K IT!!" and just walk away from it all. It was until about 20 years later when I meet an off duty psychiatrist at a coffee shop, that things started to make sense. And even then, I still didn't believe it. So after doing 4 years of research on the internet, I finally got it check out by a psychiatrist this year. BTW: I'm 45 years old. so don't feel bad.



AJisHere
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31 Aug 2016, 10:17 am

goatfish57 wrote:
Fresh eyes may prove beneficial and a new game plan may be helpful. The hard work will be tough. You are strong and can do it.


DataB4 wrote:
I can see why you want another approach, since the current one isn't working for you. I hope you start finding more of the answers you seek.


Thanks! I appreciate that.


DataB4 wrote:
I'm confused. Regardless of what the experts call it, won't your traits, your personal strengths, weaknesses, and challenges be the same? How does the label affect how you cope?


Treatment is tailored to the diagnosis. If I have been misdiagnosed (doubtful, but not impossible) and get that sorted out, I may be able to explore treatment options that hadn't been considered before and could be more effective.

EzraS wrote:
The older I get, the more they lean towards dyspraxia being more of a problem for me than autism. My attitude is I'm just as messed up either way so what difference does it make? The stuff you've said about your condition and how you feel about it, is often exactly what I'm thinking for myself as well.


Sure thing, but it's good to know one way or another.

LupaLuna wrote:
You are not the only one who has fallen victim to misdiagnosis. I too got misdiagnosed all the time when I was in my child/teen years. In fact, it got so bad, I finally said "F**K IT!!" and just walk away from it all. It was until about 20 years later when I meet an off duty psychiatrist at a coffee shop, that things started to make sense. And even then, I still didn't believe it. So after doing 4 years of research on the internet, I finally got it check out by a psychiatrist this year. BTW: I'm 45 years old. so don't feel bad.


In all likelihood I have been correctly diagnosed, but the possibility I haven't been got me thinking! What I'm really most excited about is maybe finding out one way or another if I have ADD.


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League_Girl
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31 Aug 2016, 10:42 am

I am sure there are other diagnoses out there that do not exist yet. When a condition is not recognized by a lot of doctors, another diagnoses is made for closest match for the symptoms you have.

Rather autism can be outgrown or not, people and even professionals argue if it is or not. Some believe it can be overcome and some others think you never had it to begin with. But then how do they explain your symptoms you had as a child? Some children even outgrow dyslexia, some outgrow a behavior disorder, I outgrew my language impairment, many kids outgrow speech disorders. Does that mean they never had those to began with?


Does a misdiagnoses of autism happen? Of course. I think "real" doctors would hold off on that diagnoses if the kid was having other medical issues so their symptoms could be explain by that so they would hold off on it. They would also do different tests with the kid and do other diagnoses instead.


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Last edited by League_Girl on 31 Aug 2016, 11:45 am, edited 1 time in total.

friedmacguffins
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31 Aug 2016, 10:50 am

Once you have learned to accommodate the symptoms, it just seems like a different, not a diseased, way of thinking -- not any worse than a personal taste or type of personality.



AJisHere
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31 Aug 2016, 11:00 am

League_Girl wrote:
I am sure there are other diagnoses out there that do not exist yet. When a condition is not recognized by a lot of doctors, another diagnoses is made for closest match for the symptoms you have.

Rather autism can be outgrown or not, people and even professionals argue if it is or not. Some believe it can be overcome and some others thing you never had it to begin with. But then how do they explain your symptoms you had as a child? Some children even outgrow dyslexia, some outgrow a behavior disorder, I outgrew my language impairment, many kids outgrow speech disorders. Does that mean they never had those to began with?


Does a misdiagnoses of autism happen? Of course. I think "real" doctors would hold off on that diagnoses if the kid was having other medical issues so their symptoms could be explain by that so they would hold off on it. They would also do different tests with the kid and do other diagnoses instead.


I've definitely changed a lot... doctors when I was little went "Oh, this kid totally has autism" but now? It'd be very hard to tell. But yeah, who knows?

friedmacguffins wrote:
Once you have learned to accommodate the symptoms, it just seems like a different, not a diseased, way of thinking -- not any worse than a personal taste or type of personality.


I'm not entirely sure what you're trying to say, but I'm pretty sure I disagree with it. Could you maybe explain a bit more?


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friedmacguffins
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31 Aug 2016, 11:56 am

friedmacguffins wrote:
Once you have learned to accommodate the symptoms, it just seems like a different, not a diseased, way of thinking -- not any worse than a personal taste or type of personality.


AJisHere wrote:
I'm not entirely sure what you're trying to say, but I'm pretty sure I disagree with it.


:roll:

AJisHere wrote:
Could you maybe explain a bit more?

Some people run cold, so bring a sweater.

I like to eat spicy things, and that's at my place, at the dinner table. For instance, black pepper shaker, pepper flakes...

Autistic people are often very systematic, or prefer a certain setting. So, you make yourself feel comfortable, in a practical and socially-appropriate sort of way, as a matter of second nature.

It doesn't have to be conspicuous.



AJisHere
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31 Aug 2016, 12:14 pm

Well... after 30 years, it feels like I've gotten worse at that, not better. Anyway, I don't think "different" and "diseased" are mutually exclusive.


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friedmacguffins
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31 Aug 2016, 12:34 pm

What are your symptoms, and are they really so impossible to deal with?

I'm not saying it goes away or gets cured.

Is there nothing you can do, to make yourself more comfortable.

For instance, I dislike shirts with tight collars. I am not looking for a way to cure my thick neck, which is permanently a part of my physique. I loosen the top button without making a scene or asking for special accommodations.

Many conditions in life are like this.

It doesn't mean you're dysfunctional, per se.



Last edited by friedmacguffins on 31 Aug 2016, 12:38 pm, edited 1 time in total.

AJisHere
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31 Aug 2016, 12:38 pm

friedmacguffins wrote:
What are your symptoms, and are they really so impossible to deal with?

I'm not saying it goes away or gets cured.

Is there nothing you can do, to make yourself more comfortable.

For instance, I dislike shirts with tight collars. I am not looking for a way to cure my thick neck, which is permanently a part of my physique.


I've got a thread about this in the Haven, that'd be a better place for this conversation.


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friedmacguffins
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31 Aug 2016, 12:39 pm

Acknowledged. My apologies, if I have embarrassed you.



AJisHere
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31 Aug 2016, 1:13 pm

No worries!


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