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etsitakano
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Age: 26
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22 Sep 2016, 3:18 am

Sometimes i feel like whatever i do is labeled as autistic even though i feel like i no longer fit the criteria for autism. I want to be re assessed but im scared they will see my past without my present and give me the same label.

It is like people don't accept change and then say that lack of change is autism related. They contradict everything and make me seem like i am an invalid (not sure how to spell it and too sore to look it up on another device). I go to uni, i finished year 12, i had a part time job, i am no longer anxious, i use public transport by myself and i am able to communicate with people properly.

When i first got my diagnosis, my dad like put me in exile. It was like i wasnt his kid anymore. I thought things were better but last year i realised he saw me as the same person i was 6 years before. So i felt like crap and then continued studying for my high school certificate. Before getting my results i was accepted into 4 universities and only told my dad about the 3 as the 4th i didnt want to go to. He just said no. During this time, my parents were watching The Mexican and i said "oh, i cant stand this movie, so cliche" and my dad responds "what is wrong with it? They are two good actors and all you care about is Jen. You and your autism" and then shook his head. Later that week he started teasing me for not watching the movie to his friend. Then they both laughed at me. The only actress that comes close to Jen Aniston is Julia Roberts but no, I didnt want to watch the movie because of Jen. Makes sense. It also makes sense how little i meant to my father and how little he cares about my opinion.

Once i got into a uni he liked, i was his child again and no longer autistic. However, when i no longer found uni interesting and wanted to drop out, i was the autistic child who will remain a loser her whole life. This doesnt make sense as I function better in society than 98% of his family. Oh and two days ago he kept on calling me out in regards to having a problem because the bluetooth was screwed and i was unable to fix it. He also didnt apologise when he called Ford and realised it was a technical issue.

Cousins always walk on egg shells around me and ask me if i have adapted to a normal uni life and then say "it must have been very hard on you and use limited language despite the fact i am multilingual. They also say "are you sure you can be a teacher? Most normal people find it hard, special people like you will find it extremely difficult". The other day my grandma's friend came from Greece and was nervous to touch me as I can't handle people hugging me.

I was a child with High Functioning Autism. I am now an adult (kind of) who has adapted better to society than my peers who were labelled to succeed. I have more traits of Bipolar than Autism yet Autism wins as I was autistic as a child. Not to mention, my autistic traits were socially construct, not something i was born with.

So, i now ask, is there anyone who is sick of the autistic label or wishes people never knew of it?



TheForeverMan
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Joined: 19 Sep 2016
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22 Sep 2016, 3:27 am

I think it is more the stigma that gets attached to the label. And how people like to defer to it.

Its all a byproduct amongst the layman generalisation.

Sort of how like science was dismissed as magic in the middle ages.



Pieplup
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22 Sep 2016, 4:25 am

etsitakano wrote:
Sometimes i feel like whatever i do is labeled as autistic even though i feel like i no longer fit the criteria for autism. I want to be re assessed but im scared they will see my past without my present and give me the same label.

It is like people don't accept change and then say that lack of change is autism related. They contradict everything and make me seem like i am an invalid (not sure how to spell it and too sore to look it up on another device). I go to uni, i finished year 12, i had a part time job, i am no longer anxious, i use public transport by myself and i am able to communicate with people properly.

When i first got my diagnosis, my dad like put me in exile. It was like i wasnt his kid anymore. I thought things were better but last year i realised he saw me as the same person i was 6 years before. So i felt like crap and then continued studying for my high school certificate. Before getting my results i was accepted into 4 universities and only told my dad about the 3 as the 4th i didnt want to go to. He just said no. During this time, my parents were watching The Mexican and i said "oh, i cant stand this movie, so cliche" and my dad responds "what is wrong with it? They are two good actors and all you care about is Jen. You and your autism" and then shook his head. Later that week he started teasing me for not watching the movie to his friend. Then they both laughed at me. The only actress that comes close to Jen Aniston is Julia Roberts but no, I didnt want to watch the movie because of Jen. Makes sense. It also makes sense how little i meant to my father and how little he cares about my opinion.

Once i got into a uni he liked, i was his child again and no longer autistic. However, when i no longer found uni interesting and wanted to drop out, i was the autistic child who will remain a loser her whole life. This doesnt make sense as I function better in society than 98% of his family. Oh and two days ago he kept on calling me out in regards to having a problem because the bluetooth was screwed and i was unable to fix it. He also didnt apologise when he called Ford and realised it was a technical issue.

Cousins always walk on egg shells around me and ask me if i have adapted to a normal uni life and then say "it must have been very hard on you and use limited language despite the fact i am multilingual. They also say "are you sure you can be a teacher? Most normal people find it hard, special people like you will find it extremely difficult". The other day my grandma's friend came from Greece and was nervous to touch me as I can't handle people hugging me.

I was a child with High Functioning Autism. I am now an adult (kind of) who has adapted better to society than my peers who were labelled to succeed. I have more traits of Bipolar than Autism yet Autism wins as I was autistic as a child. Not to mention, my autistic traits were socially construct, not something i was born with.

So, i now ask, is there anyone who is sick of the autistic label or wishes people never knew of it?

It's called Denial, Quite frankly my Advice is to get out of the situation as soon as possible


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I am pieplup i have level 3 autism and a number of severe mental illnesses. I am rarely active on here anymore.
I run a discord for moderate-severely autistic people if anyone would like to join. You can also contact me on discord @Pieplup or by email at [email protected]


C2V
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22 Sep 2016, 4:42 am

I don't know, this reads like you're just trying to divorce yourself from autism so you'll be more acceptable to your dad. I find the label useful as an indicator, so people will understand to some degree why I am not like them.


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Jute
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22 Sep 2016, 5:24 am

C2V wrote:
I don't know, this reads like you're just trying to divorce yourself from autism so you'll be more acceptable to your dad. I find the label useful as an indicator, so people will understand to some degree why I am not like them.


Agreed. OP your issue is not with autism, but with your relationship with your father.


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Gamsediog biptol ap simdeg Bimog, toto absolimoth dep nimtec gwarg. Am in litipol wedi memsodth tobetreg bim nib.

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Autism Social Forum

I am no longer active on this forum, I've quit.


etsitakano
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23 Sep 2016, 1:52 am

Not sure how to quote or respond to particular threads but to:

C2V wrote:
I don't know, this reads like you're just trying to divorce yourself from autism so you'll be more acceptable to your dad. I find the label useful as an indicator, so people will understand to some degree why I am not like them.


Agreed. OP your issue is not with autism, but with your relationship with your father.


Let me clarify that this is something that happens with everyone i know, not just daddy issues. If i want to do something or don't, it is not because of Autism and i am sick of people thinking it is. Just yesterday, my uncle took himself and made me look like I didn't understand something when I had proof of the situation.



PrinceAspien
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23 Sep 2016, 2:55 am

etsitakano wrote:
Sometimes i feel like whatever i do is labeled as autistic even though i feel like i no longer fit the criteria for autism. I want to be re assessed but im scared they will see my past without my present and give me the same label.

It is like people don't accept change and then say that lack of change is autism related. They contradict everything and make me seem like i am an invalid (not sure how to spell it and too sore to look it up on another device). I go to uni, i finished year 12, i had a part time job, i am no longer anxious, i use public transport by myself and i am able to communicate with people properly.

When i first got my diagnosis, my dad like put me in exile. It was like i wasnt his kid anymore. I thought things were better but last year i realised he saw me as the same person i was 6 years before. So i felt like crap and then continued studying for my high school certificate. Before getting my results i was accepted into 4 universities and only told my dad about the 3 as the 4th i didnt want to go to. He just said no. During this time, my parents were watching The Mexican and i said "oh, i cant stand this movie, so cliche" and my dad responds "what is wrong with it? They are two good actors and all you care about is Jen. You and your autism" and then shook his head. Later that week he started teasing me for not watching the movie to his friend. Then they both laughed at me. The only actress that comes close to Jen Aniston is Julia Roberts but no, I didnt want to watch the movie because of Jen. Makes sense. It also makes sense how little i meant to my father and how little he cares about my opinion.

Once i got into a uni he liked, i was his child again and no longer autistic. However, when i no longer found uni interesting and wanted to drop out, i was the autistic child who will remain a loser her whole life. This doesnt make sense as I function better in society than 98% of his family. Oh and two days ago he kept on calling me out in regards to having a problem because the bluetooth was screwed and i was unable to fix it. He also didnt apologise when he called Ford and realised it was a technical issue.

Cousins always walk on egg shells around me and ask me if i have adapted to a normal uni life and then say "it must have been very hard on you and use limited language despite the fact i am multilingual. They also say "are you sure you can be a teacher? Most normal people find it hard, special people like you will find it extremely difficult". The other day my grandma's friend came from Greece and was nervous to touch me as I can't handle people hugging me.

I was a child with High Functioning Autism. I am now an adult (kind of) who has adapted better to society than my peers who were labelled to succeed. I have more traits of Bipolar than Autism yet Autism wins as I was autistic as a child. Not to mention, my autistic traits were socially construct, not something i was born with.

So, i now ask, is there anyone who is sick of the autistic label or wishes people never knew of it?


Hi,

The problem is society is run via language, and our brains (both AS and NT) "snap" into particular thought processes on hearing a label. I posted elsewhere on a young AS girl who was having problems with her family and the possibility that certain traits are shared by children and parents. Do you think it is possible that there is a rigidity of thinking running through your family, and so many times arguments/disagreements will occur because you all have a difficulty seeing each other's viewpoint?

I know what you mean in terms of diagnosis, as I am weary of having my son labelled with autism at 5. I feel it is a different situation for an adult to "choose" to be assessed as he (the adult) will not be going through a horrendous school system.



AngryAngryAngry
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23 Sep 2016, 5:55 am

I dislike dealing with Neurotypicals because of this very reason.
They make assumptions which are wrong. Your father seems to want you to do things his way, when you don't he brings up the autism. It's nasty. Also your cousins, failing to treat you with respect.
Your aunty could have simply asked you if it was okay to hug your or not.

I would start to give condescending answers. And use the angry body language (frowns, snake eyes).
Tell those cousins "What do you mean, I'm multilingual." Keep throwing questions at them until their assumptions are sunken deep in the mariana trench!

Your father is being a bit mean, so be a little bit similar.
Ask him "oh, really, I'm failing in life because of my autism? I'm lying in bed, and you have to stay home and take care of me!" Something along those lines.
You might have to even have a big loud fight with him about it. Sometimes that's what it takes before they get out of their record unstuck.
However it might not even work. Some people are just stupid.
Remember you are superior.
and this:
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