Older Aspie, Accident brought me Here

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OkRad
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24 Oct 2016, 6:15 pm

Hi. I am glad to find you. I have had autism for a long time and still cannot cope with it. I had many ways of trying to do so, but in Jan I had an accident. I acquired a TBI as well as many injuries. Because my autism makes me hyper, I was unable to do the things I needed to do. I was also unable to read and engage in my interests. In short, I have been living in hell.

I am writing to see if anyone here has had either an accident or illness which stopped them from doing all the things that comfort them.

My life was already so hard. I am older, and endured much abuse when young. No one knew what was wrong with me. I was abused in every way you can think of. But I endured and survived and carved out a little life full of the things that comfort me. Then the accident.

Some things are much better. I am surprised I survived. It was only by some merciful people who showed me kindness, but they are now moved away.

O K , just wanting to say Hi, and hope to hear from how others coped.



BTDT
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24 Oct 2016, 6:53 pm

Sorry to hear that. I'm such an outlier that I used the rehab, paid for by insurance, and my own personal efforts, to actually come out of it better than before I had the accident. Not only am I working full time and living in a paid up home, I can stand up on a ladder and fix the plumbing! I don't mind cleaning up the mess considering all the money I'm saving. It helps my self esteem when I can do stuff like that. How else can you get a rusted out pipe fixed for only $15. :D



Kuraudo777
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24 Oct 2016, 7:37 pm

^^I'm sending you much love, light, and kitty hugs. :heart: :cat:


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BeaArthur
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24 Oct 2016, 7:50 pm

OkRad, my daughter has had multiple concussions and I have to tell you that they make the autism struggle many times harder. But at the same time, she has a good support system around her which she didn't always have. Executive function is going to be much harder for you for the foreseeable future. Is it possible to get a case manager assigned through your health system? This person could coordinate many things to help you get back on track. If not, see if the county health service or the disability agency for your area provide social workers - they should - and one of them could be of quite a bit of help to you.

I'm sorry you're having a rough time, but I hope things turn around soon for you.


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AspieUtah
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24 Oct 2016, 8:07 pm

OkRad wrote:
Hi. I am glad to find you. I have had autism for a long time and still cannot cope with it. I had many ways of trying to do so, but in Jan I had an accident. I acquired a TBI as well as many injuries. Because my autism makes me hyper, I was unable to do the things I needed to do. I was also unable to read and engage in my interests. In short, I have been living in hell.

I am writing to see if anyone here has had either an accident or illness which stopped them from doing all the things that comfort them.

My life was already so hard. I am older, and endured much abuse when young. No one knew what was wrong with me. I was abused in every way you can think of. But I endured and survived and carved out a little life full of the things that comfort me. Then the accident.

Some things are much better. I am surprised I survived. It was only by some merciful people who showed me kindness, but they are now moved away.

O K , just wanting to say Hi, and hope to hear from how others coped.

It might seem trite, but, considering what you have experienced, you are doing great! If reading is difficult for you, can you listen to audio books or watch DVDs? And, you can connect with other Wrong Planetians. I know, it isn't the same as having friends, but it can be good.


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rats_and_cats
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24 Oct 2016, 8:11 pm

I have gone through some medical problems, like severe allergic reactions as a child that left me hospitalized, and the way I coped was by learning new hobbies that I could do in my compromised state. I can't imagine how hard it must be to have a brain injury, but I do know that every part of the human body can heal. In the meantime, you might find new interests. Think about what you can do, and work with that.



auntblabby
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24 Oct 2016, 10:51 pm

OkRad wrote:
Hi. I am glad to find you. I have had autism for a long time and still cannot cope with it. I had many ways of trying to do so, but in Jan I had an accident. I acquired a TBI as well as many injuries. Because my autism makes me hyper, I was unable to do the things I needed to do. I was also unable to read and engage in my interests. In short, I have been living in hell. I am writing to see if anyone here has had either an accident or illness which stopped them from doing all the things that comfort them.


i feel for what you have gone through. I would not be able to cope with a TBI on top of my other addlements, full stop. bad enough was a severe back injury back in 2015, that laid me up for a year. then back in 2012 a severe bike accident where I was thrown over the handlebars, head to toe injuries almost did me in [blood loss and subtle brain damage], that left me in the hospital for a week. shattered left [dominant] 8 months later I finally was on the mend from that. it was like those two things robbed me of two years of my life and still rob me to this day. accidents suck big wind.



CockneyRebel
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24 Oct 2016, 11:54 pm

Welcome to WP! :D


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ASPartOfMe
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25 Oct 2016, 1:34 am

Welcome to Wrong Planet

We have a lot of older Autistic People that have gone through the varoius travails of bieng undiagnosed for decades. We have members in thier 40's, 50's,60's and 70's.

I had a mild stroke and tongue cancer which has prevents me from doing plenty of things I want to do.

We are the survivors, it is something to be proud of.


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BeaArthur
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25 Oct 2016, 7:00 am

ASPartOfMe wrote:
We are the survivors, it is something to be proud of.

And I am plenty proud of you, ASPartOfMe, even though I don't say it often enough.


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OkRad
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27 Oct 2016, 12:01 pm

Wow! THank you guys. We are survivors and it is possible to be Autistic and still survive. Your stories give me hope. I go to a TBI clinic monday. And they are doing a two day assessment on the autism at a big autism clinic to see the extent of it. it was dxed about 8 years ago, but it was not one of those two day thingys. So I hope they can see what is TBI and what is Autism.

A big thing is not recognizing faces which is overlapping but never happened before accident.

Well, I guess I will pry my butt off this chair and go walk on a treadmill. A friend at the gym has a team that goes opposite my team and they lost yesterday. Time to rib him. hehehe. He will get me next time! :D



ASPartOfMe
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27 Oct 2016, 12:16 pm

BeaArthur wrote:
ASPartOfMe wrote:
We are the survivors, it is something to be proud of.

And I am plenty proud of you, ASPartOfMe, even though I don't say it often enough.


Awwww

At least the worst of my travails have come when I was older and could handle it better. While me and all our older autistic peers had significant difficulties in our formative years most had it much, much worse then I with constant physical and other bullying at home and at school and they survived. How they did that I have no idea but hurray for them.


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“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman