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Hummingbird
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04 Nov 2016, 4:43 pm

I've decided to bite the bullet and go for assessment (big decision!). The clinic I'll be going to uses DISCO and ADOS. I can't find very much info about them online - I understand it's to make them "unseen" when going in for assessment but not knowing things makes me quite nervous and the idea of going in and speaking to someone for a long time when I've got no idea what will happen is quite scary for me.

Can anyone share their experiences of DISCO/ADOS assessment and tell me what it was like or what it involved?



naturalplastic
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04 Nov 2016, 5:02 pm

I know what disco music is, but not what a DISCO assessment is.

What exactly are you "afraid" of?

That the doctors will physically harm you, or something?



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04 Nov 2016, 7:54 pm

Heya. I had disco. I didn't have ados. My assessment took a few months because the person who diagnosed me came round once a week.

I think for most people though I might be done over 1 or 2 days. The disco takes a lot of information about very early childhood and often ask for parent or guardian for things like feeding habits and stuff. It seems weird but is all related though. Your asked questions about socialising, stimming. There's quite a lot to it because it's very broad and it's a diagnostic tool for all the autistic spectrum and I think maybe other social and communicative disorders. It's used to diagnose very low/very high functioning people and very young children to adults so not every question will be relevant.



Starfoxx
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04 Nov 2016, 7:56 pm

I'd say though it's best not to be too prepared. It may skew your results. Go in pretty much blind and just be as you are, that's the purpose, to show how you really are and not how you act because you think you should act a certain way. Good luck tho



naturalplastic
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04 Nov 2016, 8:40 pm

Starfoxx wrote:
I'd say though it's best not to be too prepared. It may skew your results. Go in pretty much blind and just be as you are, that's the purpose, to show how you really are and not how you act because you think you should act a certain way. Good luck tho


This.

In any kind of therapy session just be yourself. Its not a job interview. you're not trying to impress someone. You want them to diagnose you. So just relax, and be as a open a book as you can be.



AspieUtah
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04 Nov 2016, 8:45 pm

The ADOS-2 and DISCO diagnostic tests are quite good. I have read that they are similar. My diagnosis used ADOS-2. It included Q&As, games, mimicking, storytelling with a book and toys, and a written self-reported social responsiveness test. As others have written here, just be yourself. After all, the tests expect to see the real you.


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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


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Hummingbird
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05 Nov 2016, 5:36 am

naturalplastic wrote:
I know what disco music is, but not what a DISCO assessment is.

What exactly are you "afraid" of?

That the doctors will physically harm you, or something?


DISCO is the Diagnostic Interview for Social and Communication Disorders and it seems to be quite common for diagnosis in the U.K.

I find new situations nerve wracking, escpecially if I have no idea about what I'm going to be asked to do.



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Hummingbird
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05 Nov 2016, 5:40 am

Starfoxx wrote:
Heya. I had disco. I didn't have ados. My assessment took a few months because the person who diagnosed me came round once a week.

I think for most people though I might be done over 1 or 2 days. The disco takes a lot of information about very early childhood and often ask for parent or guardian for things like feeding habits and stuff. It seems weird but is all related though. Your asked questions about socialising, stimming. There's quite a lot to it because it's very broad and it's a diagnostic tool for all the autistic spectrum and I think maybe other social and communicative disorders. It's used to diagnose very low/very high functioning people and very young children to adults so not every question will be relevant.


Thanks for your experience!

I've been told I need to be there for around two hours which seems a lot shorter than other people have experienced. I'm not sure if that is only part of the assessment.

It makes me nervous not being able to practice what I'm going to say which is what I do any time I speak to someone new but I understand why they do that.



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05 Nov 2016, 5:44 am

AspieUtah wrote:
It included ... games, mimicking, storytelling with a book and toys


Well that just sounds like my idea of hell :lol: like those team building exercises where you have to make something up and I never can because I completely lack the ability.



AspieUtah
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05 Nov 2016, 7:06 am

bdot wrote:
AspieUtah wrote:
It included ... games, mimicking, storytelling with a book and toys

Well that just sounds like my idea of hell :lol: like those team building exercises where you have to make something up and I never can because I completely lack the ability.

The games, mimicking and storytelling help determine deficits in imagination and Theory of Mind.


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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)