Misdiagnosis? Do I have autism?
Hi everyone!
I was diagnosed with autism as a child, but I have always been unsure of it, and my parents have too. I definitely have some symptoms of it; impaired social skills mostly pronounced in being withdrawn, as well as sensitivity to the senses. Particularly touch and sound back when I was a kid. Now I don't bother as much, but I still feel extremely drained after having been exposed to multiple senses all at once. A club is basically my worst nightmare. However, those symptoms are pretty much it. I know those are hallmark autism symptoms, but I don't think I fill out all the criteria's for a diagnosis. At least not anymore. Social impairment, definitely, but I've also suffered from social anxiety my entire life, so I'm not so sure anymore. I don't stim or have obsessive interests. I've never had verbal problems or speak in a remarkable way. I'm able to hold eye contact and do it naturally without forcing it.
I recently saw a psychologist who was very surprised when I told her of my diagnosis. I was a bit confused, so I asked her to explain. She basically said that I didn't show any autistic signs in the way I was able to hold a conversation and that I seemed more neurotypical in that way. Something about being able to read other people, as well. I don't really know what to think. I'm honestly a bit confused. As I've said, I'm been unsure of my autism diagnosis, but having someone else point it out to me feels weird. I feel stuck because I don't feel like I fit in, in either of the 'neurotypical' or 'autistic' boxes.
Can you have autism/asperger's without showing all of the symptoms? And can you develop them, because today I probably wouldn't get the diagnosis if I sought one, but, then again, I did get one when I was a kid. And do you think I have autism/asperger's from what I've described?
Last edited by lazyflower on 03 Feb 2017, 11:11 am, edited 1 time in total.
Yes, my conversational skills have improved a lot since I figured out I was an Aspie a decade ago.
I think this is why professional athletes have coaches. They play much better if they have someone look at what they are doing and point out the mistakes they are making. If you don't know what mistakes you are making it is hard to get better.
I save the big words for word games. There is nothing to be gained by using words people don't understand.
I think this is why professional athletes have coaches. They play much better if they have someone look at what they are doing and point out the mistakes they are making. If you don't know what mistakes you are making it is hard to get better.
I save the big words for word games. There is nothing to be gained by using words people don't understand.
That makes sense! I didn't have any professionals to help me. Kind of wish I did when I was younger though. I didn't really know why I was so withdrawn and shy.
I have learned to have varation in the tone of my voice where as prior to age 18 I spoke mostly in monotone. I have learned social skills, prior to age 18 I could only talk about my special interests, otherwise I wouldn't speak at all and others would often comment "why doesn't he speak?" " why won't he talk?". As a child I was an extremely picky eater as I struggle to deal with the textures of food because my tacitile senses are the senses that are most impacted by my autism, but over decades of learning how to desensitize myself and expand my taste pallet it is no longer a problem though I definitely still struggle in other areas related to touch. I have also improved marginally with eye contact.
Yes you can improve in certain areas with experience and learn new coping skills, but doesn't mean that autism has packed up and went home or that you were misdiagnosed in the first place.
You can definitely have autism/aspergers without having all the symptoms. There's a threshold, but it's a spectrum too and one needs not check all the boxes to qualify.
And yes, your prior symptoms can decrease over time. I'm not the best at holding conversations, but I am considerably better than in high school. Eye contact is usually possible, though it gets shaky with one-on-one conversing. I still have a strong desire to leave noisy environments, but have a higher tolerance for misery now. Sometimes I use gestures when speaking, years ago I never did at all. I wonder if I'm seen as completely typical by people who talk to me even as I feel uncomfortable conversing with them. Often behind the scenes though they're either talking too loud or I'm having annoyances coming through my sense of touch or smell that I feel like I'm losing my mind... quietly inside.
At one point everyone didn't understand any words. I think there's plenty to be gained by using words people don't understand when the context warrants them. I'm happy to encounter new words.
Having every 'symptom' of autism wouldn't necessarily mean one was autistic if there were no concurrent deficits.
Plus knowing the symptoms you have doesn't say anything of the potential deficits arising due to those symptoms.
Having every 'symptom' of autism wouldn't necessarily mean one was autistic if there were no concurrent deficits.
I thought the symptoms were descriptions of (or labels for) the deficits. How can there be one without the other? Also, I don't think mitigating deficits turns autism into allism. I must be missing something.
You guys seem to be jumping to insist that Lazyflower must really be "it". Yes, a person can learn to manage symptoms, but Lazyflower seems to be saying she never had those symptoms to begin with. No special interests, no problems with eye contact, no stimming.
Of course, this depends on how few of the symptoms she has or had. If the social anxiety/withdrawal and the sensory issues are the only issues she had, Lazyflower is more likely to be BAP than autistic.
Lazyflower, I encourage you to take this test:
http://aspergerstest.net/aq-test/
If you score lower than 26, you almost certainly don't have autism (or Asperger's) -- scoring 20 or 22 just means you have some of the symptoms. If you score 26-31, it's possible, but the odds are still against it. 80% of Aspies score 32 or over (I'm diagnosed and my score is 33). Even if you score 40, there's still a possibility you're not on the spectrum, but you'd be pretty likely to have it.
_________________
Diagnosed with Asperger's at age 12 after years of being bullied without knowing why. Finally learned what Asperger's was actually all about at age 17. I'm a Carroll.
MentalIllnessObsessed
Pileated woodpecker
Joined: 22 Jul 2016
Age: 25
Gender: Female
Posts: 193
Location: Ontario, Canada
Greetings. No one on here can say for sure whether you have autism or not. You have said you have social impairments. Like what type of social impairments? Here is the types of social impairments that the DSM-V define in the criteria of Autism Spectrum Disorder:
1. Deficits in social-emotional reciprocity, ranging, for example, from abnormal social approach and failure of normal back-and-forth conversation; to reduced sharing of interests, emotions, or affect; to failure to initiate or respond to social interactions.
2. Deficits in nonverbal communicative behaviors used for social interaction, ranging, for example, from poorly integrated verbal and nonverbal communication; to abnormalities in eye contact and body language or deficits in understanding and use of gestures; to a total lack of facial expressions and nonverbal communication.
3. Deficits in developing, maintaining, and understand relationships, ranging, for example, from difficulties adjusting behavior to suit various social contexts; to difficulties in sharing imaginative play or in making friends; to absence of interest in peers.
https://www.cdc.gov/ncbddd/autism/hcp-dsm.html
For the DSM-V, you have to show all three of these in some kind. Lack of eye contact is a common and more well-known symptom, but not everyone has this symptom. For me, I tend to not use eye contact when I'm anxious like talking with unfamiliar people, but if I am relaxed like being with people I know, then I use eye contact.
When you say you don't stim or have obsessive interests, this doesn't mean you don't have autism. You need two of the four from this category. I'll post it below, from the same site as above
1. Stereotyped or repetitive motor movements, use of objects, or speech (e.g., simple motor stereotypes, lining up toys or flipping objects, echolalia, idiosyncratic phrases).
2. Insistence on sameness, inflexible adherence to routines, or ritualized patterns of verbal or nonverbal behavior (e.g., extreme distress at small changes, difficulties with transitions, rigid thinking patterns, greeting rituals, need to take same route or eat same food every day).
3. Highly restricted, fixated interests that are abnormal in intensity or focus (e.g., strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
4. Hyper- or hyporeactivity to sensory input or unusual interest in sensory aspects of the environment (e.g. apparent indifference to pain/temperature, adverse response to specific sounds or textures, excessive smelling or touching of objects, visual fascination with lights or movement).
So you could have routines or ritualized patterns and sensory issues and no obsessive interests or stims and still be diagnosed with autism.
Also, if you don't have the restrictive or repetitive behaviours, but do have social skills problems, you could have something called social communication disorder, which is new to the DSM V. It's basically the first part of the criteria I posted above. And also there is sensory processing disorder, which is basically criteria 4 on the second criteria of autism spectrum disorder. So you could have both of these and not autism if you don't satisfied the second part of the criteria.
Another thing, when a psychologist says that you are able to hold a conversation, it doesn't mean you don't have autism. I'm a bit surprised a psychologist would say this, but many people with autism, especially more higher functioning autistics can hold a conversation, but feel emotionally drained from it or it was scripted in their head. Many autistic people have gotten practice over the years as you stated too, so maybe the signs aren't as apparent when people first meet you.
Social anxiety may be similar to autism in terms of the social skills part, but not necessarily. People with social anxiety only have good social skills for sure when they are around familiar people. Many people with autism and social anxiety (like me) show more signs of autism when anxious because social anxiety makes the symptoms more noticeable or worse. Also, people with just social anxiety have no restrictive and/or repetitive behaviours.
There are a lot more differential diagnosis for autism such as AD/HD or NVLD (non-verbal learning disorder), but I feel this is good for now, plus I'm not a professional. Hope this helps
_________________
Your neurodiverse (Aspie) score: 148 of 200
Your neurotypical (non-autistic) score: 60 of 200
You are very likely neurodiverse (Aspie)
Dx Autism Spectrum Disorder - Level 1, learning disability - memory and fine motor skills, generalized and social anxiety disorder
Unsure if diagnosed with OCD and/or depression, but were talked about with my old/former pdoc and doctor.
Criteria for my learning disability is found at this link:
http://www.ldao.ca/wp-content/uploads/LDAO-Recommended-Practices-for-Assessment-Diagnosis-Documentation-of-LDs1.pdf
1. Deficits in social-emotional reciprocity, ranging, for example, from abnormal social approach and failure of normal back-and-forth conversation; to reduced sharing of interests, emotions, or affect; to failure to initiate or respond to social interactions.
2. Deficits in nonverbal communicative behaviors used for social interaction, ranging, for example, from poorly integrated verbal and nonverbal communication; to abnormalities in eye contact and body language or deficits in understanding and use of gestures; to a total lack of facial expressions and nonverbal communication.
3. Deficits in developing, maintaining, and understand relationships, ranging, for example, from difficulties adjusting behavior to suit various social contexts; to difficulties in sharing imaginative play or in making friends; to absence of interest in peers.
https://www.cdc.gov/ncbddd/autism/hcp-dsm.html
For the DSM-V, you have to show all three of these in some kind. Lack of eye contact is a common and more well-known symptom, but not everyone has this symptom. For me, I tend to not use eye contact when I'm anxious like talking with unfamiliar people, but if I am relaxed like being with people I know, then I use eye contact.
When you say you don't stim or have obsessive interests, this doesn't mean you don't have autism. You need two of the four from this category. I'll post it below, from the same site as above
1. Stereotyped or repetitive motor movements, use of objects, or speech (e.g., simple motor stereotypes, lining up toys or flipping objects, echolalia, idiosyncratic phrases).
2. Insistence on sameness, inflexible adherence to routines, or ritualized patterns of verbal or nonverbal behavior (e.g., extreme distress at small changes, difficulties with transitions, rigid thinking patterns, greeting rituals, need to take same route or eat same food every day).
3. Highly restricted, fixated interests that are abnormal in intensity or focus (e.g., strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
4. Hyper- or hyporeactivity to sensory input or unusual interest in sensory aspects of the environment (e.g. apparent indifference to pain/temperature, adverse response to specific sounds or textures, excessive smelling or touching of objects, visual fascination with lights or movement).
So you could have routines or ritualized patterns and sensory issues and no obsessive interests or stims and still be diagnosed with autism.
Also, if you don't have the restrictive or repetitive behaviours, but do have social skills problems, you could have something called social communication disorder, which is new to the DSM V. It's basically the first part of the criteria I posted above. And also there is sensory processing disorder, which is basically criteria 4 on the second criteria of autism spectrum disorder. So you could have both of these and not autism if you don't satisfied the second part of the criteria.
Another thing, when a psychologist says that you are able to hold a conversation, it doesn't mean you don't have autism. I'm a bit surprised a psychologist would say this, but many people with autism, especially more higher functioning autistics can hold a conversation, but feel emotionally drained from it or it was scripted in their head. Many autistic people have gotten practice over the years as you stated too, so maybe the signs aren't as apparent when people first meet you.
Social anxiety may be similar to autism in terms of the social skills part, but not necessarily. People with social anxiety only have good social skills for sure when they are around familiar people. Many people with autism and social anxiety (like me) show more signs of autism when anxious because social anxiety makes the symptoms more noticeable or worse. Also, people with just social anxiety have no restrictive and/or repetitive behaviours.
There are a lot more differential diagnosis for autism such as AD/HD or NVLD (non-verbal learning disorder), but I feel this is good for now, plus I'm not a professional. Hope this helps
Thanks a lot for this detailed answer! Really helpful I actually have an ADD diagnosis (I made my username on here, lazyflower, before I knew. I just thought I was lazy haha)
Of course, this depends on how few of the symptoms she has or had. If the social anxiety/withdrawal and the sensory issues are the only issues she had, Lazyflower is more likely to be BAP than autistic.
Lazyflower, I encourage you to take this test:
http://aspergerstest.net/aq-test/
If you score lower than 26, you almost certainly don't have autism (or Asperger's) -- scoring 20 or 22 just means you have some of the symptoms. If you score 26-31, it's possible, but the odds are still against it. 80% of Aspies score 32 or over (I'm diagnosed and my score is 33). Even if you score 40, there's still a possibility you're not on the spectrum, but you'd be pretty likely to have it.
Thanks for your answer! I didn't know there was such a thing as BAP. It's still on the spectrum though, isn't it? Or is it an actual diagnosis that exists? I took that test and got 28 (it says that the average score for women is 15, so even though this score is sort of 'borderline', i'm definitely not average! but i knew that already..)
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