Mistake telling my family about possibly having Asperger's?

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Simon01
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05 Feb 2017, 3:32 am

A few months ago I told my parents about how I had suspected for some time that I might have Asperger's because it would explain a lot of the problems I've had over the years. I talked about how had been researching the possibility and how I can relate a lot of what I've found online and what I've learned talking to people I've met at a local support group.

When I was younger, no one really knew about Asperger's, however, up until my pre-teen years anything "weird" or quirky on my part wasn't a problem- people told me how smart I was, and I got a long well with other kids. My special interests were encouraged.

Around 11 or 12 years old though, something changed- even without knowing anything about Apserger's, my parents attitude about me and my unusual but harmless behavior changed drastically, and they got downright obnoxious about "correcting" my behavior, getting the idea somehow that "gifted" meant mentally challenged and put an insane amount of effort trying to get me to be "normal"- restrictions on activities that weren't school related or related to managing my health issues, forced interactions to teach me proper social skills, and when I was around them, not allowing me to talk unless it was about one of a limited group of topics, and no talking about special interests, to the point of ignoring me until I got the hint and stopped, or else interrupting me if it looked like the conversation was drifting towards something I was interested in. The thing is, all of that was totally unnecessary. While there were some issues socializing sometimes and issues with executive functioning, none of it was on a level that warranted the way my family was acting- I actually had friends, so the forced coaching about how not to be weird around other people was definitely not needed. They became obsessed with those few things that were a problem and made them into the only thing about me, and it seemed like a lot of contrived drama was being created around me being a bit out of synch.

For years though a lot of that was forgotten although as an adult it seems like I've been under more scrutiny from my family than I should be. But what's been happening after I told them about possibly having Asperger's seems to have gotten them to dust off all of those old arguments. I'm as responsible as most adults, but since I don't make a big show out of mundane activities like paying bills or housecleaning they're acting as if I'm just like I was when I was a teenager, to the point of being expected to do chores to their satisfaction. In my own apartment.

Even the controlled interaction thing- over New Year's, my sister and her kids were visiting, and we were all at my parents house. I was really excited to see them, and my sister and nieces and nephew were genuinely excited as well. Except that in the two days they were visiting, I barely got to actually have a chat with them. Every time I tried to join the conversation, my parents would interrupt me until I backed off and got quiet, even when what I was going to say was totally relevant. They went as far as interrupting my sister and the kids if they tried talking to me. At one point they had left the room, only to rush back in when my sister started asking me about a project I'm working on.
I wasn't warned ahead of time, nor has anything been said about it since then. Previous visits never went like that.

I'm not sure what's really going on, but it's really upsetting- I consider my researching Asperger's and pursuing testing and a diagnosis to something proactive, but it looks like my parents are fixating on only the negative stereotypical aspects of it.

So was I wrong to tell them?



Hippygoth
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05 Feb 2017, 3:49 am

Well, it doesn't matter now, it's done - you can't remove the information from their minds. It sounds as though they need educating on what Asperger's actually is, and who you are as a person. If it were me, I'd write them a letter detailing my frustrations with the situation. Letters allow you to say exactly what you need to, are easier than trying to verbalise it and they also allow the recipient to read it and formulate a response at their own pace.

In the meantime, could you arrange to see your sister and her kids somewhere away from your parents?



harry12345
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05 Feb 2017, 10:48 am

Hippygoth wrote:
...... If it were me, I'd write them a letter detailing my frustrations with the situation. Letters allow you to say exactly what you need to, are easier than trying to verbalise it and they also allow the recipient to read it and formulate a response at their own pace.


I've found it really useful in many situations where I am going to have a discussion about something (where I know the other party may be resistant to understanding) or where there is a lot of info to get across in a short space of time to have a bullet point list of all the things I want to talk about.

It keeps me on track, or better still I get them to read it first and then go through the list together.

ONE piece of paper can hold enough information to keep me talking for nearly an hour - I know - I've done it! On the other hand that one piece of paper can be read by someone in about 5 minutes, leaving 55 minutes to have a meaningful conversation (where you are not constantly feeling defensive or under attack).



Simon01
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09 Feb 2017, 1:16 am

Hippygoth wrote:
Well, it doesn't matter now, it's done - you can't remove the information from their minds. It sounds as though they need educating on what Asperger's actually is, and who you are as a person. If it were me, I'd write them a letter detailing my frustrations with the situation. Letters allow you to say exactly what you need to, are easier than trying to verbalise it and they also allow the recipient to read it and formulate a response at their own pace.

In the meantime, could you arrange to see your sister and her kids somewhere away from your parents?


I like the letter idea. I get my point across without being interrupted- they might still dismiss it, or me really telling them what I think will cause a big fight, but that get them to re-think how they're seeing things. Sometimes I feel like they know more than they let on, because they know enough to fixate on the social skills and executive functioning issues, but also knowing enough to know how to ignore how a lot of what I do isn't affected by it.

My sister and her family live in a different city, but it's occurred to me that we can chat on Skype. :-)



Simon01
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09 Feb 2017, 1:44 am

harry12345 wrote:
Hippygoth wrote:
...... If it were me, I'd write them a letter detailing my frustrations with the situation. Letters allow you to say exactly what you need to, are easier than trying to verbalise it and they also allow the recipient to read it and formulate a response at their own pace.


I've found it really useful in many situations where I am going to have a discussion about something (where I know the other party may be resistant to understanding) or where there is a lot of info to get across in a short space of time to have a bullet point list of all the things I want to talk about.

It keeps me on track, or better still I get them to read it first and then go through the list together.

ONE piece of paper can hold enough information to keep me talking for nearly an hour - I know - I've done it! On the other hand that one piece of paper can be read by someone in about 5 minutes, leaving 55 minutes to have a meaningful conversation (where you are not constantly feeling defensive or under attack).



(third attempt to reply, site keeps freezing or making me re-log in when hitting "submit")

I like this- easy to get the point across, and taking advantage of their insistence on forcing the conversation to not cover much ground. Coming prepared ;-) Of course I'd hear their side of it, but presented honestly, without fake drama or revisiting old arguments.



Hippygoth
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09 Feb 2017, 6:48 am

Simon01 wrote:
Sometimes I feel like they know more than they let on


It does sound like it.

Simon01 wrote:
My sister and her family live in a different city, but it's occurred to me that we can chat on Skype. :-)


Excellent. :D



TuesdaysChild
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09 Feb 2017, 7:55 am

Have you tried asking them plainly why they prevent you from having conversations and such? Their strategy only works if you acquiesce and go along with it. Call them out on it when it happens. If they cut you off from having a conversation, ask them right there why they just interrupted you. Interrupting is not socially acceptable either.

I've done this with my mother and she has figured out to stay on her side of the line and not push me around. I don't even have to be mean about it, just frank. When I told my mother it was suggested I get tested for Aspergers, she waved it off and said you don't need to worry about that. I simply said, I'll decide that. She was taken aback, but what can you do? I'm an adult with my own life and it IS my decision. What is she going to do? Say, no, it's not?

Apparently in the real world people don't usually call people out on their rudeness. It's some kind of unspoken rule or something. But if you call them out on it plainly, there's nowhere for them to go except either tell the truth about their motives or back off.


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Simon01
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09 Feb 2017, 1:49 pm

Hippygoth wrote:
Simon01 wrote:
Sometimes I feel like they know more than they let on


It does sound like it.

Simon01 wrote:
My sister and her family live in a different city, but it's occurred to me that we can chat on Skype. :-)


Excellent. :D


The reason it seems like they know more than they're letting on is based on the way they've acted over the years about mental and physical health issues. Their acting clueless comes across like, well, an act, because it becomes obvious that they're acting based on having some knowledge about said conditions, but using that knowledge as a pretext to attempt to "police" how I "have" those conditions. Support and acceptance on their part, but with certain conditions. Which to me feels like punishment for having those condition- it's "real" when they feel the need to control what I do, but not "real" when I'm dealing with it on my terms, if that makes sense.

As for chatting with my sister and her family via Skype, they're in the same time zone, so no one would be up too early or staying up late to chat :-)



SocOfAutism
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09 Feb 2017, 2:14 pm

TuesdaysChild wrote:
Apparently in the real world people don't usually call people out on their rudeness. It's some kind of unspoken rule or something. But if you call them out on it plainly, there's nowhere for them to go except either tell the truth about their motives or back off.


OMG yes! [clap clap clap] I am such an advocate of doing this. It's called "breaking the frame." It's like when on TV the actor suddenly turns to the audience and starts speaking to them about what is going on in the show. No one can pretend the show is real anymore. It's a masterful power play and not many people think to do it.

I would like to add that if your family will not respect you as an adult, you may need to spend less time with them. Spend more time with people who make you feel good about yourself.



Simon01
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09 Feb 2017, 3:03 pm

Quote:
TuesdaysChild wrote:
Have you tried asking them plainly why they prevent you from having conversations and such? Their strategy only works if you acquiesce and go along with it. Call them out on it when it happens. If they cut you off from having a conversation, ask them right there why they just interrupted you. Interrupting is not socially acceptable either.


Not specifically about what happened over the holidays, but other times when I've balked at their attempts to freeze me out of a conversation or flat out telling me to shut up, their explanation has been that they're doing it so I won't dominate the conversation, and telling me to shut up is the only thing that works sometimes. When I was younger it was their way of teaching me social skills and how other people aren't interested in my special interests. As an adult, there's been less of a focus on the special interests and more of a broader effort on their part to hold me accountable- since I can't help it that I talk too much or get too enthusiastic about things they're not interested in, they feel that it's acceptable to police my behavior.

Interrupting is definitely not socially acceptable, but I was taught that standing up for myself in those situations is rude, disrespectful, and is an example of my supposed lack of empathy. Freezing me out of the conversation is just a pre-emptive action I'm supposed to get the hint about and go along with.

Quote:
I've done this with my mother and she has figured out to stay on her side of the line and not push me around. I don't even have to be mean about it, just frank. When I told my mother it was suggested I get tested for Aspergers, she waved it off and said you don't need to worry about that. I simply said, I'll decide that. She was taken aback, but what can you do? I'm an adult with my own life and it IS my decision. What is she going to do? Say, no, it's not?
Quote:


I've had similar discussions with my parents about it being very possible that I have Asperger's, but rather than being outright dismissive, they've been selective about their acceptance of the possibility. When I started talking about the possibility of Asperger's in terms of how it might be what's been affecting social skills in some situations and pursuing work and interests important to me, they seemed not so sure about it, but when they caught on that people with it have problems with executive functioning and prioritizing things, *now* it's very real to them, so they have themselves a go-to reason to give me a hard time about how I conduct myself, both how I interact with them when they want to talk "business", and how I do things at home. I've been dropping not so subtle hints about what Asperger's is, and what it isn't, but I'm not sure if that's working or not. They're happy I found a local support group, but nowadays most of the questions about my social activities are about when I'm going to meetings, like I don't go out for other reasons.

Quote:
Apparently in the real world people don't usually call people out on their rudeness. It's some kind of unspoken rule or something. But if you call them out on it plainly, there's nowhere for them to go except either tell the truth about their motives or back off.


For me, a big part of it is having been taught that since I do act different, it's acceptable for "normal" people to be rude and obnoxious in response to my supposed inability to "learn" how to behave. Even when people are being rude just because they can be, and not in response to me being "weird". I hate being rude or harsh with people but I've learned that indeed, sometimes that's the only thing that gets through. Getting chided for talking too much is one thing, but I've gotten better at seeing the difference between that and someone using me or anyone else being different as a pass to be rude. As much as I feel bad about it, I've had to be rude to my family at times, and indeed, that might be working finally. A bit less complaining about my activities, and on one occasion I demanded that they leave when they were at my apartment and launched right into telling me to shut up because they wanted to badger me about housecleaning and I wasn't in the mood to hear it. Sometimes the "my home, my rules" thing works.



Simon01
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09 Feb 2017, 3:16 pm

SocOfAutism wrote:
TuesdaysChild wrote:
Apparently in the real world people don't usually call people out on their rudeness. It's some kind of unspoken rule or something. But if you call them out on it plainly, there's nowhere for them to go except either tell the truth about their motives or back off.


OMG yes! [clap clap clap] I am such an advocate of doing this. It's called "breaking the frame." It's like when on TV the actor suddenly turns to the audience and starts speaking to them about what is going on in the show. No one can pretend the show is real anymore. It's a masterful power play and not many people think to do it.
Quote:


This goes right along with the perception that many social situations indeed seem "scripted", and someone who might be a bit out of synch is treated like an actor who isn't following the script. I usually get too intimidated to say something when that's going on, but I'm very tempted to risk it next time it's with my family or around anyone else being rude. In the past when I have tried calling someone out for their inappropriate behavior they really did act like an angry director or lead actor freaking out when one of the supporting cast went "off script". From my perspective, I wasn't trying to be right or win a fight, I had just had enough of seeing someone behaving far worse than they seem to think I had done around them in previous social situations.

Quote:
I would like to add that if your family will not respect you as an adult, you may need to spend less time with them. Spend more time with people who make you feel good about yourself.


One of those things I'm working on. Most of the time I'm around them it's when they're giving me a ride someplace, when they come by the apartment, or when I've at their house. I'm figuring out ways to not need to be around them as much without freezing them out completely- not giving them opportunities to make things difficult but still maintain contact.