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warrier120
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02 Sep 2018, 6:12 pm

My mom has a lot of books on raising autistic children. One of them is entitled Overcoming Autism by Lynn Kern Koegel, Ph.D., and Claire LaZebnik. One look at both the title of the book and the titles of the chapters and you can see that the book would be offensive to autistic people. For example, the first chapter's title implies that receiving your child's autism diagnosis is comparable to a natural disaster and even uses language that suggests this. The beginning of the fourth chapter uses language that implies that stimming is meaningless, while the seventh chapter's title implies that autistic people are not normal. I am currently reading this book to analyze the authors' opinions about autistic children. Like in English class, I could literally write an argumentative essay on this book on why I disagree with the general message of it.

Does/Did your parents have any books on autism that are/were as offensive as the one I described?


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02 Sep 2018, 6:26 pm

warrier120 wrote:
My mom has a lot of books on raising autistic children. One of them is entitled Overcoming Autism by Lynn Kern Koegel, Ph.D., and Claire LaZebnik. One look at both the title of the book and the titles of the chapters and you can see that the book would be offensive to autistic people. For example, the first chapter's title implies that receiving your child's autism diagnosis is comparable to a natural disaster and even uses language that suggests this. The beginning of the fourth chapter uses language that implies that stimming is meaningless, while the seventh chapter's title implies that autistic people are not normal. I am currently reading this book to analyze the authors' opinions about autistic children. Like in English class, I could literally write an argumentative essay on this book on why I disagree with the general message of it.

Does/Did your parents have any books on autism that are/were as offensive as the one I described?


I was not diagnosed until later in life, so no books.

I think you should write an essay about it. Having an Autism perspective on it would be useful to those considering which books to get. I can see a benefit in it.


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warrier120
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02 Sep 2018, 6:59 pm

Some trigger words include burden, hopelessness, isolation, scary, etc. I myself have a strong sense of justice when it comes to causes that matter to me such as how autistic people should be treated. I'm not afraid to stand up for myself when I have been treated unfairly. So this book definitely seems fun to read. It also looks like something Autism Speaks would gladly promote.

First chapter's title:

Quote:
Chapter One: Surviving the Worst News You'll Ever Get


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ASPartOfMe
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02 Sep 2018, 7:24 pm

The Empty Fortrass by Bruno Bettelheim 1967

Stop Autism Now! A Parents Guide to Preventing and Reversing Autism Spectrum Disorders by Dr. Bruce Fife 2012

Healing The Symptoms Known as Autism by Kerri Rivera 2013 book advocating bleach enemas

How to End The Autism Epidemic by J.B. Handley. September 2018 Brought to you by the founder of the anti vaxx organization Generation Rescue


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warrier120
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02 Sep 2018, 7:47 pm

ASPartOfMe wrote:
The Empty Fortrass by Bruno Bettelheim 1967

Stop Autism Now! A Parents Guide to Preventing and Reversing Autism Spectrum Disorders by Dr. Bruce Fife 2012

Healing The Symptoms Known as Autism by Kerri Rivera 2013 book advocating bleach enemas

How to End The Autism Epidemic by J.B. Handley. September 2018 Brought to you by the founder of the anti vaxx organization Generation Rescue

Those books' titles are purely amazing.* I can't wait to see all of the book reviews on that fourth book when it gets published. Meanwhile, I might just take a look at the book reviews for the other books you mentioned... :D

*sarcasm intended


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02 Sep 2018, 7:53 pm

A question to you OP - If you were to write a letter to the author (c/- their publisher), what would you say?

Would you describe how this negatively impacted on you? The potential damage it does by spreading stigma and dehumanisation? Or?

What would you choose to say? How would you organise your points?



warrier120
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02 Sep 2018, 8:16 pm

B19 wrote:
A question to you OP - If you were to write a letter to the author (c/- their publisher), what would you say?

Would you describe how this negatively impacted on you? The potential damage it does by spreading stigma and dehumanisation? Or?

What would you choose to say? How would you organise your points?

I am going to learn how to write a proper argumentative essay this year in English, and that's one of the few things about English class that I'm actually interested in. I will consider one of the topics you suggested if or when I write an essay about the book. If it's a college-level essay, I will probably add more than one topic.


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02 Sep 2018, 8:54 pm

A neurotypical parent learning of their childs developmental disorder is hardly going to be an enjoyable or pleasant experience, especially when parents like to build up an image of how their childs life is going to pan out. To have this future image drastically changed or destroyed in a doctors office is going to feel like a natural disaster. Naturally, this can lead to feelings of hopelessness for the parent. Perhaps later on, the book will talk about how it's not all doom and gloom and after the initial shock you can relearn to interpret the diagnosis as merely an alteration to an austistic childs planned or desired future.

As for talking about how autism isn't normal, I have to agree. What is normal first of all? Normal is what people NORMALLY and most frequently experience and autism is still an infrequent occurrence amongst the general population. I don't know why people get offended when they're perceived as abnormal or unusual when they actually are infact abnormal or unusual. If someone were to call me unusual or not normal, I'd just nod and tell them that they're right and that my lack of normality isn't necessarily a bad thing. Non-autistics are called neurotypicals, emphasis on the TYPICAL, typical meaning most common and expected. This makes us folks on the spectrum Neuro-atypical, or "not normal". Why is this something to be offended by? I've never understood it.



warrier120
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02 Sep 2018, 9:36 pm

Olivia_H wrote:
A neurotypical parent learning of their childs developmental disorder is hardly going to be an enjoyable or pleasant experience, especially when parents like to build up an image of how their childs life is going to pan out. To have this future image drastically changed or destroyed in a doctors office is going to feel like a natural disaster. Naturally, this can lead to feelings of hopelessness for the parent. Perhaps later on, the book will talk about how it's not all doom and gloom and after the initial shock you can relearn to interpret the diagnosis as merely an alteration to an austistic childs planned or desired future.

As for talking about how autism isn't normal, I have to agree. What is normal first of all? Normal is what people NORMALLY and most frequently experience and autism is still an infrequent occurrence amongst the general population. I don't know why people get offended when they're perceived as abnormal or unusual when they actually are infact abnormal or unusual. If someone were to call me unusual or not normal, I'd just nod and tell them that they're right and that my lack of normality isn't necessarily a bad thing. Non-autistics are called neurotypicals, emphasis on the TYPICAL, typical meaning most common and expected. This makes us folks on the spectrum Neuro-atypical, or "not normal". Why is this something to be offended by? I've never understood it.

I can find reasons to sympathize with neurotypical parents despite not being either myself. My mom could relate to other neurotypical parents like those you described. I am not in any way offended by what you posted, but I will say that I disagree and that is all.


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03 Sep 2018, 3:17 am

Olivia_H wrote:
As for talking about how autism isn't normal, I have to agree. What is normal first of all? Normal is what people NORMALLY and most frequently experience and autism is still an infrequent occurrence amongst the general population. I don't know why people get offended when they're perceived as abnormal or unusual when they actually are infact abnormal or unusual. If someone were to call me unusual or not normal, I'd just nod and tell them that they're right and that my lack of normality isn't necessarily a bad thing. Non-autistics are called neurotypicals, emphasis on the TYPICAL, typical meaning most common and expected. This makes us folks on the spectrum Neuro-atypical, or "not normal". Why is this something to be offended by? I've never understood it.


It may seem like a matter of semantics, but there is a significant difference between atypical and abnormal. Atypical is outside the norm. Unusual. Unique. Divergent. Abnormal is something wrong. A disease. A problem. Something to be fixed or eliminated.


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03 Sep 2018, 3:20 am

Ugh. Way too much of this, you can even tell when they're paraphrasing something occasionally.


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03 Sep 2018, 4:00 am

Olivia_H wrote:
A neurotypical parent learning of their childs developmental disorder is hardly going to be an enjoyable or pleasant experience, especially when parents like to build up an image of how their childs life is going to pan out. To have this future image drastically changed or destroyed in a doctors office is going to feel like a natural disaster. Naturally, this can lead to feelings of hopelessness for the parent. Perhaps later on, the book will talk about how it's not all doom and gloom and after the initial shock you can relearn to interpret the diagnosis as merely an alteration to an austistic childs planned or desired future.

As for talking about how autism isn't normal, I have to agree. What is normal first of all? Normal is what people NORMALLY and most frequently experience and autism is still an infrequent occurrence amongst the general population. I don't know why people get offended when they're perceived as abnormal or unusual when they actually are infact abnormal or unusual. If someone were to call me unusual or not normal, I'd just nod and tell them that they're right and that my lack of normality isn't necessarily a bad thing. Non-autistics are called neurotypicals, emphasis on the TYPICAL, typical meaning most common and expected. This makes us folks on the spectrum Neuro-atypical, or "not normal". Why is this something to be offended by? I've never understood it.


These books exploit these negative feelings and fear by further enhancing stigmas and by offereing quack cures. None of these books view autism as a developmental disorder.

The Empty Fortrass a best seller blamed the mothers for bieng so cold to thier kids they became not fully human. The Refrigirator Mother theory resulted in decades of autistic kids being seperated from their parents, parents told to remove all evidence that the kid existed and have years of psychotherapy for the mother to find out why she is such a monster.


The other more recent books view autism as a result of deliberate poisoning for profit. The idea is that you had a normal cute kid that has been taken over by the dopplehanger autism. These kids need to be “recovered” from the deamon autism by flushing the poisons out by any means neccessary. Diarrhea and vomiting from the miracle minimal solution(bleach enemas) painful to watch but that is the “treatment” working making your kid neurotypical so she claims.

No matter how much you love your kid and want the best for them if you view him or her as damaged you are likely to say and do bad things.

These books go beyond offensive to actually harmful. At best they misrepresent what autism is and cause false hope of “recovery”. They often cause physical and psychological damage to Autistics and their families.


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03 Sep 2018, 9:39 am

At the end of Overcoming Autism was a chapter on what to do when a child is grown and hasn't "overcome" autism. It amounted to giving up.



Olivia_H
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03 Sep 2018, 9:53 am

ASPartOfMe wrote:
Olivia_H wrote:
A neurotypical parent learning of their childs developmental disorder is hardly going to be an enjoyable or pleasant experience, especially when parents like to build up an image of how their childs life is going to pan out. To have this future image drastically changed or destroyed in a doctors office is going to feel like a natural disaster. Naturally, this can lead to feelings of hopelessness for the parent. Perhaps later on, the book will talk about how it's not all doom and gloom and after the initial shock you can relearn to interpret the diagnosis as merely an alteration to an austistic childs planned or desired future.

As for talking about how autism isn't normal, I have to agree. What is normal first of all? Normal is what people NORMALLY and most frequently experience and autism is still an infrequent occurrence amongst the general population. I don't know why people get offended when they're perceived as abnormal or unusual when they actually are infact abnormal or unusual. If someone were to call me unusual or not normal, I'd just nod and tell them that they're right and that my lack of normality isn't necessarily a bad thing. Non-autistics are called neurotypicals, emphasis on the TYPICAL, typical meaning most common and expected. This makes us folks on the spectrum Neuro-atypical, or "not normal". Why is this something to be offended by? I've never understood it.


These books exploit these negative feelings and fear by further enhancing stigmas and by offereing quack cures. None of these books view autism as a developmental disorder.

The Empty Fortrass a best seller blamed the mothers for bieng so cold to thier kids they became not fully human. The Refrigirator Mother theory resulted in decades of autistic kids being seperated from their parents, parents told to remove all evidence that the kid existed and have years of psychotherapy for the mother to find out why she is such a monster.


The other more recent books view autism as a result of deliberate poisoning for profit. The idea is that you had a normal cute kid that has been taken over by the dopplehanger autism. These kids need to be “recovered” from the deamon autism by flushing the poisons out by any means neccessary. Diarrhea and vomiting from the miracle minimal solution(bleach enemas) painful to watch but that is the “treatment” working making your kid neurotypical so she claims.

No matter how much you love your kid and want the best for them if you view him or her as damaged you are likely to say and do bad things.

These books go beyond offensive to actually harmful. At best they misrepresent what autism is and cause false hope of “recovery”. They often cause physical and psychological damage to Autistics and their families.


I agree that incorrect information is harmful, but I personally doubt that any of these books come from a place of malicious intent.



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03 Sep 2018, 10:10 am

Malice intent or not, the unconscious bias inherent in these stigmatising representations reinforce and encourage the "othering" and hence the dehumanisation process. It is AS people who pay the ultimate human price for the personal profits the NT writers accrue from these books.

There's a bigger picture than the author's motives, there is the impact and the harm that such books do. We know the harm, because we see it, we live it, we feel it, we read of it, and see it impacting on our beloved family members.

AS women like myself are mothers and grandmothers of AS children and grandchildren, we see the impacts all too closely and clearly for comfort.



omid
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03 Sep 2018, 10:42 am

let me tell you guys a joke, sure you haven't heard it yet:

There was this guy, sitting in a park, on a bench. He had a bag with lots of bananas. and a salt shaker.
So this guy would take one of the many bananas, peel it, put lots of salt on it, take one bite and go UGH!! !! ! and would discard the salted banana in the trashcan, which was, conviniently, installed right beside the bench. And he kept doing it again, and again, and again,....

An old man passing by observed this behavior and asked him: "What on earth are you exactly doing?"
and the guy said, "the thing is I do not like salted bananas."
The old man said: "don't put salt on your banana then!"
and the guy was enlightened and knew from that point that if he doesn't like salted bananas, he shouldn't put salt on them.

Why am I telling you this joke? 1. because I'm crazy 2. If the titles and content of those books written by idiots make you triggered or agitated, don't read them (don't salt your banana, right?). Reading stupid comments on autism, in books or on reddit or anywhere, makes you more miserable than you probably already are. And books are written by people, most of which are idiots. Nobody is forcing you to read this BS books and get triggered by them, except yourself.

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Last edited by omid on 03 Sep 2018, 10:45 am, edited 1 time in total.