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firemonkey
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20 Feb 2017, 6:20 am

As you know from previous posts I raised the issue of Aspergers/NVLD with my nurse practitioner,at my last appointment to be told services don't deal with that kind of thing.
Well guess what came across this via Twitter.
http://www.sept.nhs.uk/our-services/ess ... s-service/


Not that it would help me as I won't be in the area in 2 years but it could have provided a means to suggest such a referral to a similar place in the new area I will be moving to.



starkid
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20 Feb 2017, 4:05 pm

Why would this be a reason for distrust? Do you think they new about services and deliberately misled you?



naturalplastic
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20 Feb 2017, 4:19 pm

"Trust" means both things. To have confidence in competence, as well as in honesty.

If they are too dumb to know what their own services are then that makes them "untrustworthy".



Noca
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20 Feb 2017, 4:33 pm

naturalplastic wrote:
"Trust" means both things. To have confidence in competence, as well as in honesty.

If they are too dumb to know what their own services are then that makes them "untrustworthy".

This.

Wilful ignorance could fall under both categories, of an example of a failure of competence and honesty.



Dear_one
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20 Feb 2017, 11:21 pm

There's a lot of incompetence out there. In a town with two doctors, the one I got didn't know that there was any counselling available here. I finally found it through Victim services after I got beat up. Unfortunately, giving people the benefit of the doubt is polite but risky. Dunning-Kruger strikes at the same time as the Peter Principle.



firemonkey
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21 Feb 2017, 6:13 am

To be honest I am not sure whether she just didn't know of the service ,or whether it was a case of not mentioning because she thinks it's very much secondary to the psych diagnosis and therefore not worth officially pursuing.
She did give me a printout to an Asperger's charity which I am guessing she wouldn't have done if totally dismissive about the issue.
I do think if you get a psych diagnosis first that is often seen as explaining enough not to warrant officially exploring other avenues ;especially if you don't get much individualised support in the way of a community nurse,social worker or support worker.

I did send the following to my mental health trust to be passed on to my NP. I have a feeling it wasn't passed on as I have received no response.

Quote:


I am not,I hope, unintelligent. However at times I have difficulty co-ordinating my thoughts . It's like there's a mass of wires all tangled up in my brain .
Sometimes it's easy to post and other times it's so hard to structure a coherent reply to something. The desire is there but it just won't come together in a well constructed and thought out manner.
I put this down to executive functioning difficulties.
When my brain is struggling to gather my thoughts then often anxiety comes to the fore and a feeling of being mentally overwhelmed.

Someone ,on a largely American based forum, mentioned doing college courses with a learning assistant in tow.

I am not even sure we have them for older adults in the UK(I'm 60). If we did I reckon you'd have to have an officially recognised learning difficulty.
I, in all probability have learning difficulties. However I come from a generation where if you were above average intelligence the idea of you have such difficulties was very much dismissed.
Hence no official confirmation.

The nearest I got to things being recognised was my prep school headmaster writing to my public school headmaster saying I was not very well coordinated and had problems with drawing and writing.
My public school report said I was disorganised and messy. Nowadays that would be a red flag for executive functioning problems but back then , in the 70s, it wasn't. It was merely a blot on your academic record and something for teachers to pull you up on.

It's a lot different nowadays, from what I know, but still far from perfect. If it was seen that you have spatial(or for others verbal) deficits, problems with executive functioning and slow processing speed,as I do, then those things would be flagged up for extra help and support.

I am not sure by itself it's a cause of my social anxiety rather than it's a part of the whole aspergic traits?/nonverbal learning disorder?/dysgraphia?/dyspraxia? , and resulting effects , that made me socially anxious through bullying and peer rejection.
I was always, very much, the odd person out.


A more holistic and intelligent psychiatry might well have picked up on my difficulties/issues and tailored support accordingly.

After the first week of my first admission they wanted to send me to make doll's houses. I freaked out because I knew I couldn't do it due to my poor constructional abilities.
Instead of someone looking into why I had freaked out, as an intelligent person would have done , the psychiatrist dismissed me as an awkward and troublesome teenager.
Thus an opportunity to get to know me as a whole person, and provide adequate support was lost.
With that callous and unintelligent dismissal relationships between me and the mental health professionals started to sour.

Instead of taking responsibility by the start of the 2000s I was being described as awkward,demanding and troublesome when seeking more help and support. Other phrases from quite frankly abusive and rather stupid people included that my illness was "Machiavellian in its complexity" and that I was a "very dependent narcissist"
The reason for the breakdown in communications was very much laid at my door with the mental health professionals taking no responsibility.

Relations are better now but I've learnt to keep things as much as possible to myself for fear of a return of the abusive and negative treatment.
It's safer to say when asked "I'm not too bad or so so" which really says very little.

Occasionally I bring things up but it usually falls on deaf ears. I don't press the point as I don't want a repeat of past nastiness ie to be branded "awkward,demanding and troublesome " again.


Given the above I've not done as well as I might have done ,but am doing as well as I can.



CockneyRebel
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21 Feb 2017, 1:32 pm

It's a dangerous world, you can't trust no one.


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