I hear you on that. I've reached a point where I don't believe the psychiatric profession understands my issues (including autism) well enough to be of much help to me, and the general public is even less understanding. So the potential people I could reach out to for answers, understand my problems even worse than I do.
I hope that future generations will receive better help than we did, and that hope brings me comfort. But in the meantime, I've come to accept that in a world where no one agrees on what autism is, or isn't, *I* am as qualified as the next person, in terms of deciding whether the diagnosis applies to me, and is of any value.
(To be fair, I've been professionally diagnosed, but my presentation is non-stereotypical, so it will forever be questioned.)