I got nowhere until I found a specialist, and even then it took quite some time. I want to say about four months just to initiate contact with the specialist (problems with phones and transportation), then about four months to get a dx.
I got nothing but runaround until I saw the specialist. Really, really frustrating.
I typed in a search based on your apparent location, looks like there's someone in Kinston (?). Can't say anything about the person, but may be worth checking out.