Aspergers and Fibromyalgia together
Perkulator
Snowy Owl
Joined: 12 Dec 2013
Age: 57
Gender: Female
Posts: 136
Location: The North Country, NY
I am not bemoaning my situation here so decided this was the most appropriate place to put this. Admin, please move it if necessary though.
I have both Aspergers (from birth of course) and Fibromyalgia (since I was five) and some days are more challenging than others. Recently I have begun learning just how much the Fibromyalgia entails, about 200 symptoms, and what those symptoms are.
So I'm wondering if other Aspies and Autie's out there have this same combination. It is thought that Fibromyalgia is linked to severe stress and sleep deprivation for long periods of time. If any of you have both of these would y'all mind sharing how this affects you and how you cope on the bad days?
Thank you.
nick007
Veteran
Joined: 4 May 2010
Gender: Male
Posts: 27,734
Location: was Louisiana but now Vermont in capitalistic military dictatorship called USA
My girlfriend is on the spectrum & has fibromyalgia. She has depression & anxiety along with it thou. On bad days she spends the day in bed or she stays in front her xBox all day being depressed. She feels bad that she doesn't accomplish anything with life compared to others(she's on SSI & other benefits) but she really cant handle much sometimes. I try my best to be supportive but feel like I do a horrible job sometimes. I have my own issues that I'm dealing with & sometimes I think she'd be annoyed with me no matter what I do.
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Perkulator
Snowy Owl
Joined: 12 Dec 2013
Age: 57
Gender: Female
Posts: 136
Location: The North Country, NY
Hi Nick. I'm sorry your girlfriend feels so down, it is not easy having aspergers and fibro at the same time. I've had fibromyalgia most of my life and until 7 years ago I had no idea why I was so defective and in so much pain. My family always made me out to be a hypochondriac and told me I was imagining things, get back to work. Recently I've been learning how all these symptoms I have are a part of the fibro. My hair hurts, I need extra joints midway down my forearms to help with mobility, I have really bad temperature regulation problems in that I am cold when it is hot out and hot when there is snow outside and I itch all the time. A couple of years ago I went so far as making my own goats milk soap now in hopes it would reduce the itching, and it has. (Not only is it nice soap it costs less than all the store bought varieties. Since starting this I learned that people who make and sell goats milk soap put a HUGE markup on what they sell. Mine are really big bars and only cost $1.20 or so to make each bar and sell for $6.00 each bar. gee wiz)
It seems depression and anxiety go along with both aspergers and fibro. I found the best information by reading a subreddit just about fibromyalgia on reddit.com. On there I was able to find out about all the stuff that is not described in basic online medical advice places.
I too used to feel useless because I could not do much around the house or work but I finally realized that dirt and clutter will not kill me, it just keeps me from having a lot of company. I clean up and do things as I can and be careful not to push it too hard because I will pay for a week if I do.