The UK dilemma of fitting NVLD better than ASD

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firemonkey
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02 Jun 2018, 5:44 pm

Through my own research I've come to the conclusion that although I have some autistic traits I don't think I'd meet the threshold for a clinical diagnosis. It's my belief that I fit the profile for NVLD better.
The trouble being NVLD is scarcely recognised in the UK. I could of course put my eggs all in one basket and push for an ASD assessment but if that fails what then? I've already been told by my local ASD assessment centre they don't cover NVLD, so it's ASD or bust. The trouble being that if it's 'bust' other possibilities won't be explored. I'm not sure it would help much at my advanced age on a practical level. It would be something to throw at those pig ignorant people over the years who have seen me as awkward,demanding,passive aggressive and troublesome etc. To be able to say "Hey this why I am as I am ,and it's not because of any of the intellectually lazy and vapid reasons you pig ignorant people have thrown about. "



Arevelion
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03 Jun 2018, 10:05 am

If you don't "put all your eggs in one basket" what are some of the other possibilities that could be explored?



firemonkey
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03 Jun 2018, 3:07 pm

Looking at it sensibly the 'possibilities' are ASD/dyspraxia/NVLD or any combination of such.



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04 Jun 2018, 4:21 am

Hmmm .Approaching at the dyspraxia angle might be good. In fact addressing each and every symptom of NVLD without mentioning NVLD might be a good approach. You think that would work?



firemonkey
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04 Jun 2018, 5:50 pm

Arevelion wrote:
Hmmm .Approaching at the dyspraxia angle might be good. In fact addressing each and every symptom of NVLD without mentioning NVLD might be a good approach. You think that would work?




Maybe maybe not. The problem is getting anyone intelligent and open minded enough to take me seriously. IE not to myopically see everything through the lens of a psychiatric diagnosis.
I did try about a decade ago to initiate a dialogue about it all . My then care co-ordinator listened enough to book an extra appointment with the pdoc for me to discuss things. She'd told him that she'd told me it was not easy to diagnose dyspraxia(symptoms that are seen as NVLD symptoms in the USA seem to be regarded as being to do with dyspraxia in the UK). Unfortunately the appointment with the pdoc was a disaster. He had a negative mindset from the outset,asking a few irrelevant questions before curtly dismissing the issue. Due to a track record of being seen as awkward,demanding and troublesome for seeking more help and support I was too scared of further abusive criticism to press things further. I therefore let things slide.
In the last few years I've periodically dropped the A,D and N words into conversation but the response has been like trying to converse with a brick wall. The nearest I got to much of a response was being told by my then nurse practitioner that schizotypal might explain things. That was promptly followed by being given a printout to a local Aspergers charity. There was no follow up on that talk though.