Page 1 of 3 [ 41 posts ]  Go to page 1, 2, 3  Next

StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 32
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

14 Feb 2019, 8:28 pm

I’ve been working hard these past several months in both equine and traditional therapy to be more accepting of myself, and to learn how to live successfully in a way that works well for me. In that vein, I am trying out going deliberately semi-verbal, because even though I can speak, it takes a lot of energy both physically and emotionally for me to do so. I’ve been spending more and more time hiding in my room as time has gone by, avoiding people because I always felt pressured to talk to them and I didn’t want to.

As I write this, I’m sitting next to my roommate and feeling completely calm and relaxed, because I told him I didn’t want to speak right now but could use AAC, and he’s being amazing. He’s just sitting there playing his video game, sometimes making amusing comments about it, but not asking questions or pressuring me to talk, and not treating me any differently because I’m not talking.

I’m going to continue trying this out in different areas of my life, in group, at therapy, etc., allowing myself to talk or use AAC as I please depending on what feels most comfortable in the moment.

Have any of you tried this? What was it like?


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


cberg
Veteran
Veteran

User avatar

Joined: 31 Dec 2011
Gender: Male
Posts: 12,183
Location: A swiftly tilting planet

14 Feb 2019, 8:52 pm

I didn't know anything about AAC until you caused me to Google it. I don't really think I could do this but I can learn from it anyway. Most communication is nonverbal anyway, unless we're talking about engineering, science or math.

I've certainly tried shutting up until I find out what someone wants to talk about with me, that's tried & true however.


_________________
"Standing on a well-chilled cinder, we see the fading of the suns, and try to recall the vanished brilliance of the origin of the worlds."
-Georges Lemaitre
"I fly through hyperspace, in my green computer interface"
-Gem Tos :mrgreen:


starkid
Veteran
Veteran

User avatar

Joined: 9 Feb 2012
Gender: Female
Posts: 5,812
Location: California Bay Area

14 Feb 2019, 10:21 pm

I've considered it, but I don't want to purchase AAC because I would be supporting whatever sweatshop(s) the devices are almost certainly manufactured in.

Anyways, it wouldn't work well in my situation because the people I want to talk to the least are people I don't know—precisely the people who are most likely to be weirded out and unaccepting of my not talking.



cberg
Veteran
Veteran

User avatar

Joined: 31 Dec 2011
Gender: Male
Posts: 12,183
Location: A swiftly tilting planet

14 Feb 2019, 10:23 pm

Oh I thought you just meant gestural communication & so on.


_________________
"Standing on a well-chilled cinder, we see the fading of the suns, and try to recall the vanished brilliance of the origin of the worlds."
-Georges Lemaitre
"I fly through hyperspace, in my green computer interface"
-Gem Tos :mrgreen:


livingwithautism
Veteran
Veteran

User avatar

Joined: 9 Sep 2015
Age: 35
Gender: Female
Posts: 1,337
Location: USA

14 Feb 2019, 10:24 pm

What AAC device do you have? I have an iPad.



AceofPens
Velociraptor
Velociraptor

User avatar

Joined: 8 Jun 2017
Gender: Female
Posts: 439
Location: United States

15 Feb 2019, 10:36 am

I have had difficulty speaking before, physically and emotionally. It never lasts longer than a few hours, but I'm familiar enough with it to understand why you're making this choice. No one should have the burden of speaking through that awful molasses feeling if there are alternatives. I can't give you any advice, but I wish you luck and hope that it makes things easier for you.


_________________
I have not the kind affections of a pigeon. - Ralph Waldo Emerson


StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 32
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

16 Feb 2019, 2:45 am

Thanks AceofPens, that's nice to hear. Your molasses metaphor is exactly accurate. One of my therapists pointed out the other day that I hold my breath while trying to find the right words to complete my sentences. I'll just stand there not breathing for twenty, maybe thirty seconds at a time.

Livingwithautism, I use an iPad too. It has an app called Coughdrop on it (which is also available on android, if anyone's interested). I can edit the buttons and change the voice, etc. but most often I use the QWERTY keyboard and predictive text. I'm learning how to condense my sentences to make them shorter, more concise, and faster to type. I find that the simplified language style suits me, and I'm amazed at how much I can communicated with single words and short two or three-word phrases.


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


Piobaire
Veteran
Veteran

User avatar

Joined: 28 Dec 2017
Gender: Male
Posts: 1,347
Location: Smackass Gap, NC

16 Feb 2019, 6:34 am

None for me, thanks. I find speech communication difficult in the best of times, but it's been my experience that when I avoid speaking, it makes speech progressively more difficult for me to engage in when appropriate, which results in more avoidant behavior on my part, which makes speech even more difficult, ad infinitum, until I can barely bring myself to converse at all. That's not a direction I choose to go in.



Claradoon
Supporting Member
Supporting Member

User avatar

Joined: 23 Aug 2006
Gender: Female
Posts: 4,964
Location: Canada

16 Feb 2019, 6:53 am

I'm highly verbal except when I can't speak at all. There are usually no thoughts to communicate, my mind is a blank slate. In the middle of a job interview or something. Since I retired, I don't have to be 'normal' so I just let it happen and don't worry about it.



StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 32
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

19 Feb 2019, 4:04 pm

I saw my therapist today and brought my iPad. I told her about my plan to use AAC part time to conserve my social energy, and she said it was a “genius idea.” That gives me a lot of confidence to keep going with it. It’s already done a lot for my stress levels and I feel so much more true to myself when writing to communicate.

My therapist recommended getting one of those electronic “boogie boards” which are essentially whiteboards that work like a touch screen and can be erased with the touch of a button. She suggested using it for interactions in groups or with people who wouldn’t be patient enough to wait for me to type, since it is pretty slow. I’m going to pick one up from my local Barnes and Noble later today. I’m really excited, I finally feel like I’m truly making my life my own, rather than trying to twist myself to fit everyone else’s rules and expectations.


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


DanielW
Veteran
Veteran

User avatar

Joined: 17 Jan 2019
Age: 36
Gender: Male
Posts: 1,873
Location: PNW USA

19 Feb 2019, 4:15 pm

StarTrekker wrote:
I saw my therapist today and brought my iPad. I told her about my plan to use AAC part time to conserve my social energy, and she said it was a “genius idea.” That gives me a lot of confidence to keep going with it. It’s already done a lot for my stress levels and I feel so much more true to myself when writing to communicate.

My therapist recommended getting one of those electronic “boogie boards” which are essentially whiteboards that work like a touch screen and can be erased with the touch of a button. She suggested using it for interactions in groups or with people who wouldn’t be patient enough to wait for me to type, since it is pretty slow. I’m going to pick one up from my local Barnes and Noble later today. I’m really excited, I finally feel like I’m truly making my life my own, rather than trying to twist myself to fit everyone else’s rules and expectations.


It never occurred to me that I could choose semi-verbal as an option. There are times when I am verbal and others when I cannot be. Saving social energy is an interesting concept. Controlling what I thought to be uncontrollable. It does make sense.



StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 32
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

19 Feb 2019, 4:23 pm

DanielW wrote:
StarTrekker wrote:
I saw my therapist today and brought my iPad. I told her about my plan to use AAC part time to conserve my social energy, and she said it was a “genius idea.” That gives me a lot of confidence to keep going with it. It’s already done a lot for my stress levels and I feel so much more true to myself when writing to communicate.

My therapist recommended getting one of those electronic “boogie boards” which are essentially whiteboards that work like a touch screen and can be erased with the touch of a button. She suggested using it for interactions in groups or with people who wouldn’t be patient enough to wait for me to type, since it is pretty slow. I’m going to pick one up from my local Barnes and Noble later today. I’m really excited, I finally feel like I’m truly making my life my own, rather than trying to twist myself to fit everyone else’s rules and expectations.


It never occurred to me that I could choose semi-verbal as an option. There are times when I am verbal and others when I cannot be. Saving social energy is an interesting concept. Controlling what I thought to be uncontrollable. It does make sense.


Yep, it took me a long time, but with a lot of help, I learned that it’s my body and my life, and I don’t have to live up to anyone’s expectations but my own. I’ve been much happier since I started incorporating that truth into the way I live.


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


DanielW
Veteran
Veteran

User avatar

Joined: 17 Jan 2019
Age: 36
Gender: Male
Posts: 1,873
Location: PNW USA

19 Feb 2019, 4:33 pm

StarTrekker wrote:
Yep, it took me a long time, but with a lot of help, I learned that it’s my body and my life, and I don’t have to live up to anyone’s expectations but my own. I’ve been much happier since I started incorporating that truth into the way I live.


I thank you for sharing that...You've given me something to think about. I would be nice to have some control of my condition rather than be at the mercy of it. :-)



StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 32
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

19 Feb 2019, 5:12 pm

DanielW wrote:
StarTrekker wrote:
Yep, it took me a long time, but with a lot of help, I learned that it’s my body and my life, and I don’t have to live up to anyone’s expectations but my own. I’ve been much happier since I started incorporating that truth into the way I live.


I thank you for sharing that...You've given me something to think about. I would be nice to have some control of my condition rather than be at the mercy of it. :-)


It absolutely is!


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 32
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

20 Feb 2019, 3:16 pm

I went to social skills group today with my new pink boogie board, it was fantastic. The group leaders didn't bat an eye and all I had to do was write my responses and give the board to them. It cut out the anxiety of trying to figure out when I could jump in to the conversation and I contributed more to this group than I ever have before. I feel amazing and I'm so excited to go to speech therapy this afternoon and try it out there.


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


DanielW
Veteran
Veteran

User avatar

Joined: 17 Jan 2019
Age: 36
Gender: Male
Posts: 1,873
Location: PNW USA

20 Feb 2019, 4:36 pm

StarTrekker wrote:
I went to social skills group today with my new pink boogie board, it was fantastic. The group leaders didn't bat an eye and all I had to do was write my responses and give the board to them. It cut out the anxiety of trying to figure out when I could jump in to the conversation and I contributed more to this group than I ever have before. I feel amazing and I'm so excited to go to speech therapy this afternoon and try it out there.


That's fantastic! I really appreciate hearing your experiences with semi-verbalisim