Page 1 of 2 [ 23 posts ]  Go to page 1, 2  Next

StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 31
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

11 Mar 2019, 5:38 am

Those of you who have seen my thread on going semi-verbal know that I've been allowing myself to forego speech in lieu of writing or AAC as needed. One reason I decided to do this was because very often, my ideas get "stuck" in my head and I can't get them out using words. I think in pictures, and as such, have to translate the thoughts in my head into words before I can convey them. Often times this translator gets "jammed", and I'm left hanging mid-sentence, picture clear as day in my mind, with zero idea of what my next word should be. I've noticed that when I get stuck on a word, I'll hold my breath, like I'm saving it for when I finally find the word I'm looking for. This wouldn't be a major concern, except that it can take anywhere from thirty seconds to a minute for me to pull the word out, and I'll just be sitting there not breathing the entire time!

Even when I have the words I want, I often speak very slowly, and pause after each word, so. It. Kind. Of..... Sounds like. This. I have no idea why this happens, because when I'm talking about my special interests, I can speak so fast that I trip over my words and people can't understand me. This issue seems to be getting worse with age. I've never been one to talk a lot; my whole life people have referred to me as "quiet" and "shy", and even as a kid I was fascinated by mutism and the idea that people could communicate without speaking, but these days producing words seems to be getting harder and harder. Do any of you experience these sorts of things? I'm going to ask my speech therapist about it in a couple of days, but I wondered how common this was in the otherwise-verbal autistic population.


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


renaeden
Veteran
Veteran

User avatar

Joined: 12 Jun 2005
Age: 47
Gender: Female
Posts: 2,317
Location: Western Australia

11 Mar 2019, 6:22 am

Yep, I have the whole translating from pictures to words thing. I've always thought of it too, as a gate between my brain and my mouth. Usually it's open and I have little trouble speaking. But sometimes in situations such as trying to describe a memory, the gate is open only a little, or sometimes completely shut. It's really frustrating at those times.



EzraS
Veteran
Veteran

User avatar

Joined: 24 Sep 2013
Gender: Male
Posts: 27,828
Location: Twin Peaks

11 Mar 2019, 6:46 am

Not being able to translate thoughts into words is the crux of nonverbal autism. Some people don't understand how I can be articulate in writing and yet not able to converse verbally. But of course typing slowly taking my time is a lot different.

But I have always been able to manage by making gestures and texting to get by. And occasionally using ACC.

I don't know what to say about becoming more nonverbal later on in adulthood. Like what exactly the neurological cause would be.

Part of my issue is starting out with classic severe nonverbal autism. But also my dyspraxia affects my speech. And then there's also the psychological aspect of selective mutism.



Joe90
Veteran
Veteran

User avatar

Joined: 23 Feb 2010
Gender: Female
Posts: 26,492
Location: UK

11 Mar 2019, 6:47 am

I often have difficulties explaining things. My vocabulary isn't very good, I tend to use easy words. But even when typing here I can't always explain myself. That's why I sometimes don't reply back to my threads, because if I feel outsmarted or something, I find it difficult to get my point across.


_________________
Female


Edna3362
Veteran
Veteran

User avatar

Joined: 29 Oct 2011
Gender: Female
Posts: 12,545
Location: ᜆᜄᜎᜓᜄ᜔

11 Mar 2019, 8:54 am

Yes, in more ways than one, and not just about speech. Just verbal in general, both spoken and written.

In my case it goes like this;
Temporarily forgetting the word, chose not to attempt to go for it and make recall much later on.
Forgetting the word and play reckless -- disregarding the outcomes; the confusions and possible misunderstandings.
Or, neither -- because even if I did find the word, how well am I going to use it even if I do have all the time in the world to get it right?
Do recall the words, yet use it recklessly. It's like gambling really.
Or, do have the words, yet ending up playing cautious and decided not to say it until either I'm certain enough or become reckless enough to use those words and how it is conveyed.


_________________
Gained Number Post Count (1).
Lose Time (n).

Lose more time here - Updates at least once a week.


IstominFan
Veteran
Veteran

Joined: 25 Nov 2016
Age: 59
Gender: Female
Posts: 11,114
Location: Santa Maria, CA.

11 Mar 2019, 8:58 am

I have a good vocabulary, but I tend to get brain freeze. I will forget the precise word I want to use. Sometimes, the word I use is similar in meaning, but not quite accurate.



kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

11 Mar 2019, 9:06 am

A very similar thing happens to me.

I have a GRE-level vocabulary----but I sometimes can't pronounce certain words I know well in my mind.



AceofPens
Velociraptor
Velociraptor

User avatar

Joined: 8 Jun 2017
Gender: Female
Posts: 439
Location: United States

11 Mar 2019, 9:38 am

My words get stuck during a shutdown or extreme burnout, but not for the reason you describe. I'm extremely verbally-minded. When I read, my mind produces very few images, and my thoughts are typically all verbal, unless I'm being consciously immersive. I guess the way to describe my difficulty speaking on rare occasions would be that there is a pipe through which verbal thoughts are filtered to my mouth and the pipe feels "clogged." My verbal train of thought becomes backed up, too, and the processes that are typically fluid become painfully slow.

Oh - a good way to describe it would be when you're writing an essay, and you know there's a word in your memory for this meaning you have in your head, but it won't come to the front of your mind. You sit there staring at the page, trying to tease the memory loose without success. You're sure that it's there, and it's the most frustrating thing being unable to pull it forward. For me, going semi-nonverbal is that feeling, but for every word I have to speak. It's exhausting but quite uncommon apart from deep shutdowns.


_________________
I have not the kind affections of a pigeon. - Ralph Waldo Emerson


kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

11 Mar 2019, 10:02 am

^^Yep. That happens to me, too.



DanielW
Veteran
Veteran

User avatar

Joined: 17 Jan 2019
Age: 35
Gender: Male
Posts: 1,873
Location: PNW USA

11 Mar 2019, 10:40 am

StarTrekker wrote:
Those of you who have seen my thread on going semi-verbal know that I've been allowing myself to forego speech in lieu of writing or AAC as needed. One reason I decided to do this was because very often, my ideas get "stuck" in my head and I can't get them out using words. I think in pictures, and as such, have to translate the thoughts in my head into words before I can convey them. Often times this translator gets "jammed", and I'm left hanging mid-sentence, picture clear as day in my mind, with zero idea of what my next word should be. I've noticed that when I get stuck on a word, I'll hold my breath, like I'm saving it for when I finally find the word I'm looking for. This wouldn't be a major concern, except that it can take anywhere from thirty seconds to a minute for me to pull the word out, and I'll just be sitting there not breathing the entire time!

Even when I have the words I want, I often speak very slowly, and pause after each word, so. It. Kind. Of..... Sounds like. This. I have no idea why this happens, because when I'm talking about my special interests, I can speak so fast that I trip over my words and people can't understand me. This issue seems to be getting worse with age. I've never been one to talk a lot; my whole life people have referred to me as "quiet" and "shy", and even as a kid I was fascinated by mutism and the idea that people could communicate without speaking, but these days producing words seems to be getting harder and harder. Do any of you experience these sorts of things? I'm going to ask my speech therapist about it in a couple of days, but I wondered how common this was in the otherwise-verbal autistic population.


I feel the same...I often try to show people what I am trying to say in pictures. Its frustrating to not be able to convey the emotion.

It feels to me like trying to translate what I feel/want to say into a language that just has no words for that.



JD12345
Toucan
Toucan

Joined: 30 Jan 2019
Age: 30
Gender: Male
Posts: 287

11 Mar 2019, 2:18 pm

Yes, when I attempt to tell a longish story or joke in person, it tends to create a 'amateur juggling' effect in my mind, where I will trip over my words and generally sound rather incoherent. I can also suffer from stuttering; there was an occasion in primary school when the teacher asked pairs of students to take part in a mental arithmetic contest at the front of the classroom - she would ask us to give the answer to a sum ("six times seven" for example) and whoever got it first won a point. I did pretty badly at it due to the answer not properly coming out of my mouth, even though my brain knew the answer almost instantly.



StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 31
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

11 Mar 2019, 3:00 pm

EzraS wrote:
Not being able to translate thoughts into words is the crux of nonverbal autism. Some people don't understand how I can be articulate in writing and yet not able to converse verbally. But of course typing slowly taking my time is a lot different.

But I have always been able to manage by making gestures and texting to get by. And occasionally using ACC.

I don't know what to say about becoming more nonverbal later on in adulthood. Like what exactly the neurological cause would be.

Part of my issue is starting out with classic severe nonverbal autism. But also my dyspraxia affects my speech. And then there's also the psychological aspect of selective mutism.


This describes my experience precisely. Like Kraftie, I have a very strong vocabulary, in the 98-99th percentile. The trouble is sifting through and finding the precise word I want. Like IstominFan and Daniel, I either can only find vaguely inaccurate synonyms for what I'm trying to say, or I see my pictures and feel like I'm trying to define an ethereal word like "the" or "an". Very simple words, but almost impossible to describe their meaning. I have a much easier time accessing my vocabulary when I'm writing, perhaps because written words are sort of like pictures in their own right; they have shape and structure in the way that spoken words don't. It's all very odd.

Writing has allowed me to express ideas related to the trauma that led me to be diagnosed with PTSD, which my brain physically refused to let me speak. My mouth and tongue would become essentially paralyzed and nonfunctional whenever I tried to bring certain topics up, but writing things down has enabled me to start making more progress in therapy, because I can now communicate things I couldn't before. Anyone who tries to tell me that speech is a "superior" form of communication over writing, AAC or sign language can go jump in a lake.


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


epilanthanomai
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 1 Mar 2019
Gender: Female
Posts: 59
Location: Atlanta

11 Mar 2019, 3:57 pm

This definitely happens to me. Sometimes I'll just be chatting along at a mile a minute on a topic I'm very familiar with and then a word just... isn't there. I know I know the word--heck, I was probably using it recently--but it isn't available to me at that moment. I pause for a moment, and sometimes I find it. Other times I have to rephrase awkwardly around it to keep moving.

I think I don't so much do the slow-talking-with-lots-of-pauses from the initial post, though. I only notice that when I'm trying to explain a genuinely complex concept precisely in a context I haven't really thought through before.



FallingDownMan
Deinonychus
Deinonychus

User avatar

Joined: 27 May 2013
Age: 58
Gender: Male
Posts: 383

11 Mar 2019, 6:02 pm

StarTrekker wrote:
Those of you who have seen my thread on going semi-verbal know that I've been allowing myself to forego speech in lieu of writing or AAC as needed. One reason I decided to do this was because very often, my ideas get "stuck" in my head and I can't get them out using words. I think in pictures, and as such, have to translate the thoughts in my head into words before I can convey them. Often times this translator gets "jammed", and I'm left hanging mid-sentence, picture clear as day in my mind, with zero idea of what my next word should be. I've noticed that when I get stuck on a word, I'll hold my breath, like I'm saving it for when I finally find the word I'm looking for. This wouldn't be a major concern, except that it can take anywhere from thirty seconds to a minute for me to pull the word out, and I'll just be sitting there not breathing the entire time!

Even when I have the words I want, I often speak very slowly, and pause after each word, so. It. Kind. Of..... Sounds like. This. I have no idea why this happens, because when I'm talking about my special interests, I can speak so fast that I trip over my words and people can't understand me. This issue seems to be getting worse with age. I've never been one to talk a lot; my whole life people have referred to me as "quiet" and "shy", and even as a kid I was fascinated by mutism and the idea that people could communicate without speaking, but these days producing words seems to be getting harder and harder. Do any of you experience these sorts of things? I'm going to ask my speech therapist about it in a couple of days, but I wondered how common this was in the otherwise-verbal autistic population.


I think that the reason it "seems" to be getting worse with age is that stress/anxiety levels go up with age. For me, the more stressed/anxious I become the harder translating those images into words becomes. The more anxious I am the more prominent the pictures in my head become.

At the end of my marriage, I would have periods where my speaking abilities started to resemble those of somebody with brain damage. Now that I've accepted the divorce, the only time I become semi-verbal is when I have to ask a stranger a question.


_________________
I finally found an avatar.


starcats
Veteran
Veteran

User avatar

Joined: 30 Aug 2017
Age: 47
Gender: Female
Posts: 531

11 Mar 2019, 10:00 pm

Yes, this sounds a lot like me. I can write much more easily than I can speak because then I have the time to translate the pictures in my head into words. I only have fluent conversations out loud if I've had the conversation before, or if I anticipated it and practiced ahead of time.



Knofskia
Veteran
Veteran

User avatar

Joined: 20 Jul 2012
Gender: Female
Posts: 552
Location: Michigan

11 Mar 2019, 10:23 pm

I do not think in pictures - in fact, I am aphantasic (I cannot see pictures in my mind at all). I am a logical thinker (that is, mathematical thinker who thinks in patterns and systems). I still need to translate my thoughts into words though. And that translation is slow and constantly glitching. Writing, instead of speaking, helps to keep the translation in sight because it will not stay in mind when I get stuck on a word.


_________________
31st of July, 2013
Diagnosed: Autism Spectrum Disorder, Auditory-Verbal Processing Speed Disorder, and Visual-Motor Processing Speed Disorder.

Weak Emerging Social Communicator (The Social Thinking-­Social Communication Profile by Michelle Garcia Winner, Pamela Crooke and Stephanie Madrigal)

"I am silently correcting your grammar." :lol: