IsabellaLinton wrote:
I would need exactly what you described, skibum. Total sensory deprivation with darkness, no noise or smell, and no sensation except my chosen stims. I'm glad you had that opportunity to decompress.
Me too. It made such a difference. You and I are so alike, I love that.
I have been advocating and pushing for legislation to provide that sort of respite for HFAs. The kind that we we really need like flower gardens and dark sensory controlled rooms. You can't imagine how hard it is to convince the people in charge to provide these simple inexpensive solutions and to provide funding for us to use them. There is plenty of finding and plenty of respite for caregivers to dump their loved ones into so that they can get a break. And I understand the need and importance of that and I am not knocking it at all, I actually greatly support that. But on the other hand, those of us who live like I do, and many of you are in the same boat, have a great need as well and the respite we need could make the difference in whether some of us live or die. But for some reason, no one thinks that it is important.
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"I'm bad and that's good. I'll never be good and that's not bad. There's no one I'd rather be than me."
Wreck It Ralph