Are autistic personality tests reliable?

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firemonkey
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05 Mar 2020, 11:31 am

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Autism has been a subject of ever increasing interest over the last 20 years. It has been the subject of popular TV shows, novels and numerous studies looking at everything from sensory experiences to mental health in autism. As a result, there is a growing need for efficient and reliable ways to measure autism levels.

The most popular way of doing this is by using questionnaires of autism personality traits. There are several tests available, in which participants are asked to rate how much they agree with statements like “I find it easy to work out what someone is thinking or feeling just by looking at their face” and “I find it difficult to work out people’s intentions”.


https://theconversation.com/are-autisti ... ble-132995



Fnord
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05 Mar 2020, 11:38 am

firemonkey wrote:
Are autistic personality tests reliable?
If you mean on-line autistic personality tests, then the answer is "maybe", at best. While they may indicate some autistic tendencies, most seem to be heavily skewed (biased) toward rendering a positive result.

If instead you are referring to the tests given by appropriately-trained and licensed mental-health professionals, then the answer is "most likely", at the very least.



firemonkey
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05 Mar 2020, 11:54 am

They may or may not be skewed towards rendering a positive result. If many of the online tests are verbatim copies of professional tests , then it may just be that a lay person answering such tests is going to say yes or no to a question when a clinician would answer the opposite about the person .

Tests like the RDOS which are not verbatim copies of clinical tests are undoubtedly more problematic . Then you have the myriad of 'Playbuzz' level tests .



skibum
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05 Mar 2020, 12:04 pm

the online tests are not meant to be diagnostic. They are just meant to give you an indication as to whether or not you should consider pursuing further and more accurate testing from an official source.


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firemonkey
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05 Mar 2020, 12:19 pm

I actually hummed and hawed for several years after doing such tests before I was officially tested . The actual assessment ,especially the ADOS , raised points I hadn't considered . It was far more informative than any online test could be .



Fnord
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05 Mar 2020, 12:20 pm

skibum wrote:
the online tests are not meant to be diagnostic. They are just meant to give you an indication as to whether or not you should consider pursuing further and more accurate testing from an official source.
And many of these "tests" just happen to have ads on the results page for diagnostic and therapy services for autistics ... amazing, isn't it?



skibum
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05 Mar 2020, 12:28 pm

Fnord wrote:
skibum wrote:
the online tests are not meant to be diagnostic. They are just meant to give you an indication as to whether or not you should consider pursuing further and more accurate testing from an official source.
And many of these "tests" just happen to have ads on the results page for diagnostic and therapy services for autistics ... amazing, isn't it?
That is funny. I never actually knew that because my laptop had really good ad blockers when I did them.


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IsabellaLinton
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05 Mar 2020, 3:34 pm

The standard AQ test with 50 questions was used in my assessment. The doctor read me the questions verbally. They were in a different order than the online version but exactly the same questions. I got 49/50 both online and in person. I still don't know which one is my "one" difference.

Is this the RDOS ?

Image

I got 191/200 and 19/200.

I didn't notice the exact RDOS during my clinical assessment but many of its questions or topics were covered during my other assessment activities.


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aquafelix
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06 Mar 2020, 5:12 am

The gold standard of autism assessment has a mountain of research that shows it is is reliable. That standard is the combination of the Autism Diagnostic Observation Schedule, Second Edition (ADOS-2) and the The Autism Diagnostic Interview-Revised (ADI-R).

Anything you can access online to test yourself for autism is not as reliable, kind of like a toy compared to the serous tradesman's tools that are the ADOS-2 and ADI-R which are only accessible to trained health care professionals, typically a psychologist. Any test accessible to the public including the AQ and Aspie Quiz are mostly designed to be "screeners" to identify the presence and pattern of autistic traits from someone's self report, so they are only as good as a persons self insight. They are useful as a first stage to identify someone as having autistic traits, but they were never designed to be used on their own to diagnose autism with reliability.



firemonkey
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06 Mar 2020, 6:01 am

I think the same could be said for developmental and mental health tests in general . They are,I think, there to give you an idea as to whether to pursue things further with a health professional . In that sense they can serve a useful purpose .



aquafelix
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06 Mar 2020, 7:37 am

firemonkey wrote:
I think the same could be said for developmental and mental health tests in general . They are,I think, there to give you an idea as to whether to pursue things further with a health professional . In that sense they can serve a useful purpose .

Yes, that true, but autism assessment is a bit different as the ADOS-2 really does have an effective monopoly in the field as an observational test for autism and there are no real serious alternatives. IQ testing by comparison has many different tests by different publishers that all do the same basic thing. Eg; Weschler, Staford Binet, Woodcock Johnson, Differential Ability Scales. IQ testing has a longer history though. Maybe in 20 years time their may be be more diversity in autism tests.



naturalplastic
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06 Mar 2020, 2:46 pm

That "Aspie Quiz" is very popular on this site.

The OP himself has his scores from that test on his window.

Definitely not a substitute for the real deal: the battery of tests given to you face to face by a professional.

As long as you don't take the results too seriously there is no harm in taking it. Makes the sponge wet, and makes you want to learn more if you suspect about yourself.

I don't know if they are "biased" one way or the other. I always got an ambiguous result ("you could be either NT or neurodiverse"), or even get "you're probably NT", but was later officially dxd as aspie. But they definitely are not accurate.



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06 Mar 2020, 2:50 pm

The book Autism in Heels claimed that that the professional tests she looked at were gender biased. Boys are more likely to be interested in trains than girls.

Toys have been gendered and girls steered away from toys that are popular with boys. And vice versa.
http://lettoysbetoys.org.uk/do-girls-love-trains/
Abbie felt ready for a ‘real model train set’ which she could build, drive and create scenery for, so they sat down together to view the options on the Toys R Us website. Says Kim, “All well and good until she noticed we hadn’t clicked the ‘girl’ selection at the side. Dutifully I clicked and lo and behold, the two more expensive options, more suited to her age group, disappeared, including the one she had her eye on.



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06 Mar 2020, 3:11 pm

IsabellaLinton wrote:
... Is this the RDOS? ...
Here's mine:

Your neurodiverse (Aspie) score: 150 of 200
Your neurotypical (non-autistic) score: 61 of 200
You are very likely neurodiverse (Aspie)


Image



firemonkey
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06 Mar 2020, 3:21 pm

naturalplastic wrote:
That "Aspie Quiz" is very popular on this site.

The OP himself has his scores from that test on his window.

Definitely not a substitute for the real deal: the battery of tests given to you face to face by a professional.

As long as you don't take the results too seriously there is no harm in taking it. Makes the sponge wet, and makes you want to learn more if you suspect about yourself.

I don't know if they are "biased" one way or the other. I always got an ambiguous result ("you could be either NT or neurodiverse"), or even get "you're probably NT", but was later officially dxd as aspie. But they definitely are not accurate.


I may be being a little silly but I think the options available as answers can make quite a difference . By that I mean yes/no ; never/sometimes/always etc . When it comes to answering such tests I prefer a Likert scale approach .



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06 Mar 2020, 6:12 pm

lol yes! ^ ^ :heart:

Fnordie Simpson!!


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