Anyone who thinks their life will end due to noise?

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Pileated woodpecker
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17 Nov 2020, 7:53 pm

Local government set me up to fail... I don't think I'm a prophet for predicting this would happen before I even moved in, but they forced me in anyway, as clearly they want me to either end myself or others... this is happening in the worst possible time too, and no one is helping me (got just one acquaintance who's offering to talk to them, but often isn't available, and it's not exactly possible to set up appointments... local government isn't even responding to emails, of course... why would they ever, that'd be solving the problems they created...)



Joe90
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17 Nov 2020, 8:08 pm

I can empathise how you feel about the noise.


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17 Nov 2020, 8:10 pm

I have never encountered noise over 130 decibels, but noise can cause fatal sleeplessness. In a similar situation, I hit the road, and set up in a better place.



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Pileated woodpecker
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17 Nov 2020, 8:45 pm

I used to go elsewhere too in the past when I had such problems... but can't now without risking being infected, of course... this is what makes it the worst case scenario... I think I'll phone emergency police, if the 'casual' number doesn't care, then why should I care if I use the emergency number? (and I don't mean death by sleeplessness... I mean this could get so worse I'd feel like I can do nothing else except end either myself or the source of noise, but I'm afraid of both... the panic, though, has a life of its own...)



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17 Nov 2020, 10:02 pm

I called 911 when I was upset by noise being created illegally. Because I seemed to be over-reacting, I was forced to move out.
Remote areas are safe from both noise and infection.



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18 Nov 2020, 8:26 am

Soft ear plugs have helped me. Ear irritation can be minimized with a Q-tip and mineral oil.



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18 Nov 2020, 8:34 am

No but I feel the same about my own phobia, dogs will kill me. They leap on people, knock them over then start licking which will lead to biting which will lead to eating... They do it with kids so why not a small adult?

At this point, I think that's what's going on. As much as my light sensitivity is absolutely and unbearably painful, I don't think light will kill me.

I empathise with you cos phobias are horrible. I avoid dogs as much as I can.

If not dogs then another phobia will kill me such as being stabbed somehow which is why I hate needles. Or I'll fall to my death on the ice and crack my skull open.


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18 Nov 2020, 12:50 pm

^^ A dog does not lick to taste you, but to kiss you. If they knock you down, it is in play. A dog intent on attack behaves quite differently, and bares its teeth.
Even bears are usually safe, just wanting to be left alone. Unfortunately, if you panic, any animal may consider you dangerous and defend itself. See if you can make friends with a calm, old dog, and work your way down to playing with puppies.
Dogs are not put off by AS - your odds of "speaking their language" are better than if you are good with people. I visit a farm where the dogs usually put up a big fuss over visitors, but when I arrive, even their fur stays flat.



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18 Nov 2020, 1:13 pm

I totally relate. And it's not a phobia. I fear for my own life expectancy because of the neurological pounding that I am forced to endure 24/7 from noise.


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18 Nov 2020, 1:30 pm

Yes, I fully understand this. I am a auditory hypersensitive person too.

Among the population of people with ASD, it is fairly common to find people who have sensory impairment symptoms, with auditory hypersensitivity and inability to filter out auditory information when in an environment that has more than one auditory sound source.

These sensory abnormalities are caused by damage to the areas of the brain that deal with sensory information and are permanent.

I have had extensive trouble all my life with places to live with many of the properties that I have lived in having no or very little soundproofing combined with one or more noisy neighbours.

I presently live in a property that is also next to a noisy neighbour.

I have spent the last 4 years writing to people in my local government, as well as the social housing provider whom i rent the flat from and approximately 2 months ago, the social housing provider agreed to fit sound proofing.

This was good as i has spent 2 years of poor sleep due to my circumstances living in the same flat over an old lady who spends all her waking hours watching TV at extremely high volume, so loud, this combined with extremely poor sound proofing qualities of the property that i live in, as well as suffering from a sleep disorder that makes me need 12 hours of sleep a day has caused me to have interrupted sleep on a daily basis and no where to relax (as i can constantly hear the crap on the TV that the old lady watches at top volume).

Nonetheless, the soundproofing is fitted now and the volume of the sound that i can hear is a lot less, but it is still there, so i am still aggravated by it, but on a lesser scale. I appear to be managing at the mo.

Before the soundproofing was fitted however, I was getting to the stage that i would become psychotic due to lack of rest and lack of quality sleep. I had meltdowns regularly, perhaps once a week, with one of the latest ones I broke a knuckle punching a solid wall. I think that i was getting to the stage that i was going to hurt someone or myself.

So i appreciate what you are saying.

May I recommend a plan of action for you. You will need to contact a occupational therapist, who can make a sensory profile for you.

The occupational therapist should also recommend some devices to use while out and about (but not as a permanent solution). Ear plugs, noise cancelling headphones etc.

Ear Plugs that block out sound to a certain level can be brought from an audiologist.
These are superior to any that you will buy from a chemist.

The Audiologist will make a mould of your ear and send the mould off to the manufacturer.
The manufacturers are also able to make sports or musician ear plugs too, that turn down environmental noise by 30 db, which may be useful for wearing in normal noisy environments.

Ear Plugs and headphones are not recommended to use on a permanent basis and in fact, if you do use them on a permanent basis will make you more hypersensitive to sound.

An Audiologist is also able to do a hearing test for you, which they can use to ascertain how tolerant to sound you are, as well as testing for any hearing loss.

I had one of these which proved that i was hypersensitive across the frequency range.

The next stage is to contacting someone in your government to ask about medical adaptations or disabled facilities grants. In the UK for example, the government had a fund to cover disabled facilities.

In some countries there are organisations that provide specialist and in some cases supported housing especially designed for people with ASD.

So you would have to use the internet to research this.
Some of the national autism charities may also be able to point you in the right direction.

A few years ago, there used to be a charity that provided grants for things such as medical adaptations.
This charity was called ARC, but I do not think it exists anymore.

While you wait to try and get somewhere and are in distress.
Consider going to the Doctor to explain how you feel and how your condition and circumstances are presently effecting you.

The doctor may be able to help with working out a solution

If you get really distressed, go to your local A+E, as it would be better to be admitted into hospital and
get supported, and getting in the system (getting a case / social worker, although not every one gets one of these),
as this may also support your case for such an application.

Hope that helps/



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18 Nov 2020, 1:38 pm

Quote:
Among the population of people with ASD, it is fairly common to find people who have sensory impairment symptoms, with auditory hypersensitivity and inability to filter out auditory information when in an environment that has more than one auditory sound source.


This is what I have. I find it so hard to ignore certain noises. Everyone gets annoyed by certain noises to an extent, but there are just some noises that I cannot stand and I cannot keep up a charade of pretending to ignore it.
That is why I'll have a huge problem with having a crying baby or toddler put next to me on a long plane flight. I know they're just babies and don't know how to be quiet but that clichéd logic doesn't magically cure my inability to filter out certain unpleasant sensory information, especially if it's right next to me and I've got to look calm the whole time.
It seems that you are only allowed to have an inability to filter out certain sensory information if the person making the noise can control it.


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18 Nov 2020, 1:58 pm

Thank you so much. I really appreciate your help very much.
I have spent what seems like thousands of dollars on what seems like every earplug in existence. I also just got a grant that bought me $400 Bose noise cancellation ear muffs. They are the best available. The grant also denied replacing the windows in my house and car with sound reducing windows which sucks. But I can apply again for that in two years. They only buy you one adaptive item every two years and this year they got me the bose ear muffs. I like the ear muffs very much be just like with ever other ear plug or muff, they don't keep deep bass out because that comes in through the bones in the base of your skull and there is nothing in existence that we know of to keep that out and that is what I am most sensitive to. Even if it's so quiet that it's undetectable to others, I will still have meltdowns and sometimes go into sensory overload shock. But what I have found is that sometimes ear plugs or muffs will make the bass frequencies much worse and much more pronounced because they are dampening other sounds. So for me that can be very very bad.

A lot of people mistakenly think that I am afraid of the noise or that it only affects me if it is loud. That is not the case at all. My brain can't process the noise. I am not afraid of it at all. So I can't process it no matter what volume it is, even if it's incredibly soft. This sensitivity is more of a frequency sensitivity.

I also hear what I think might be the global hum and it is often constant and deafening for months and months at a time. And that seems to be constant no matter where I am. Some people think it's tinnitus but I have tinnitus and I have had that since early childhood so I do know the difference. The hum I am hearing is not internal.

So like you mentioned, I don't sleep. I can't and that really concerns me. I will eventually crash from exhaustion and fall asleep at that point but I am not able to sleep on a circadian rhythm or to sleep regularly at all and it's very rare that I get enough deep sleep cycles. That becomes very dangerous over time.

The only relief I have found is to play my soothing soft music through headsets literally 24/7 or to play nature sounds. The problem is that I am concerned about having Bluetooth or even wired headsets and speakers in my head literally 24/7 and even having to try to sleep with the speaker against my head while it's charging. I also have to keep my phone charging all night on my night table because if the charge runs out, I no longer have my safe sounds and my safe music and I cannot tolerate the noises coming from outside. I also find ear plugs and muffs excruciatingly physically painful to wear especially against the cartilage of my ears. So it's really hard. I either have to tolerate the immense pain of wearing these things all the time and be concerned about having these electronics on my head all the time or I have to have meltdowns and go into sensory overload shock which can land me in the emergency room.

And even with my music, I still hear the hum. So I NEVER EVER have quiet. This really affects every area of my life and my physical and mental health. It has made me deteriorate a lot neurologically over the decades as well to the point where I am so disabled that I am no longer able to work at all.

We do have ARC here. It stands for Agency for ret*d Citizens. I have not found them to be very helpful at all with anything I need. Although they did point me in the right direction to be able to get a diagnosis. I also have social workers and Mental Health case workers and therapists. I did a little OT last year but found that it did not help me at all either. I know for sure that my life span is being severely compromised but audible sensory sensitivities and by the self entitlement of people around me. It's a darned shame.

But thank you again for your post. I relate so well to you and your struggle.


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18 Nov 2020, 2:01 pm

Joe90 wrote:
Quote:
Among the population of people with ASD, it is fairly common to find people who have sensory impairment symptoms, with auditory hypersensitivity and inability to filter out auditory information when in an environment that has more than one auditory sound source.


This is what I have. I find it so hard to ignore certain noises. Everyone gets annoyed by certain noises to an extent, but there are just some noises that I cannot stand and I cannot keep up a charade of pretending to ignore it.
That is why I'll have a huge problem with having a crying baby or toddler put next to me on a long plane flight. I know they're just babies and don't know how to be quiet but that clichéd logic doesn't magically cure my inability to filter out certain unpleasant sensory information, especially if it's right next to me and I've got to look calm the whole time.
It seems that you are only allowed to have an inability to filter out certain sensory information if the person making the noise can control it.


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18 Nov 2020, 2:02 pm

frikin website lost my post response to you Joe

Sometimes this site makes me have significant frustration meltdowns like right now.


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18 Nov 2020, 2:03 pm

I was telling you how much I totally relate to you with the crying baby thing


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18 Nov 2020, 2:22 pm

Dear_one wrote:
^^ A dog does not lick to taste you, but to kiss you. If they knock you down, it is in play. A dog intent on attack behaves quite differently, and bares its teeth.
Even bears are usually safe, just wanting to be left alone. Unfortunately, if you panic, any animal may consider you dangerous and defend itself. See if you can make friends with a calm, old dog, and work your way down to playing with puppies.
Dogs are not put off by AS - your odds of "speaking their language" are better than if you are good with people. I visit a farm where the dogs usually put up a big fuss over visitors, but when I arrive, even their fur stays flat.


Dogs have hated me since I was a kid.

It's always the ones bred & trained to be vicious that are worst.

My best chances are staying away from such dogs.

I get on well with dogs which are bred & trained to help people or mongrels who have always been well looked after pets and come from mixtures of similar dogs to the ones bred to help people.


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