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Reasearch: Quarter of teens with autism may be undiagnosed.

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Fnord
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06 Oct 2023, 6:58 pm

UPI Health News
Oct. 6, 2023-10-06 / 2:02 PM
Research suggests nearly a quarter of teens with autism may be undiagnosed

A recent study found that 1 in 55 kids in the four New Jersey counties had autism, but one-quarter were undiagnosed until this study took place. As many as 1 in 4 teens with autism may be undiagnosed, new research suggests.

"Autism is much more prevalent than people assume," said lead researcher Walter Zahorodny, an associate professor at Rutgers New Jersey Medical School in Newark.

The new study is significant, he said, because it's the first population-based public health look at the prevalence of autism in teens.

For the study, his team reviewed school and health records of close to 4,900 16-year-olds living in four northern New Jersey counties in 2014. The initial review found 1,365 cases that merited a closer look


Read the full, unedited article  HERE 


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SharonB
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06 Oct 2023, 9:32 pm

They mention higher number than expected in children and adolescents, but still not "scaring" folks by suggesting so for adults. (I believe a study in the UK did?)

Yep. Just yep. Next year we can count by daughter in the undiagnosed teenager lot, despite our attempts. I've posted (perhaps ad nauseum) that I've tried to have my daughter diagnosed -at age 8 (DX: expressive and sensory disorders) and age 12 (DX: general neurodiversity). I was in therapy at those ages, but of course misdiagnoses for me those years... and in my 20s... and 30s... until my late 40s. I tried to explain to the evaluator that one does not become Autistic under stress, one is Autistic, so the fact that I've kept my daughter's life low stress (and more manageable) doesn't mean she's less Autistic. Ah, well.



MuddRM
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07 Oct 2023, 12:22 am

SharonB wrote:
They mention higher number than expected in children and adolescents, but still not "scaring" folks by suggesting so for adults. (I believe a study in the UK did?)

Yep. Just yep. Next year we can count by daughter in the undiagnosed teenager lot, despite our attempts. I've posted (perhaps ad nauseum) that I've tried to have my daughter diagnosed -at age 8 (DX: expressive and sensory disorders) and age 12 (DX: general neurodiversity). I was in therapy at those ages, but of course misdiagnoses for me those years... and in my 20s... and 30s... until my late 40s. I tried to explain to the evaluator that one does not become Autistic under stress, one is Autistic, so the fact that I've kept my daughter's life low stress (and more manageable) doesn't mean she's less Autistic. Ah, well.


Ya know what? They’re better off undiagnosed, since diagnosis leads the general public into more ignorance and hate.



SharonB
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07 Oct 2023, 5:21 pm

Yes, the stigma and/or ignorance and/or hostility towards those with differences is still pervasive. I have friends who are frustrated they can't "mask" (meet expectations, for various reasons) and were diagnosed. I have friends who can "mask" (meet expectations, for various reason) and are frustrated they can't get diagnosed. Grass is greener on the other side? I wish the world were kinder. I wish that wishing the world were kinder wasn't considered naive.



naturalplastic
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07 Oct 2023, 10:58 pm

MuddRM wrote:
SharonB wrote:
They mention higher number than expected in children and adolescents, but still not "scaring" folks by suggesting so for adults. (I believe a study in the UK did?)

Yep. Just yep. Next year we can count by daughter in the undiagnosed teenager lot, despite our attempts. I've posted (perhaps ad nauseum) that I've tried to have my daughter diagnosed -at age 8 (DX: expressive and sensory disorders) and age 12 (DX: general neurodiversity). I was in therapy at those ages, but of course misdiagnoses for me those years... and in my 20s... and 30s... until my late 40s. I tried to explain to the evaluator that one does not become Autistic under stress, one is Autistic, so the fact that I've kept my daughter's life low stress (and more manageable) doesn't mean she's less Autistic. Ah, well.


Ya know what? They’re better off undiagnosed, since diagnosis leads the general public into more ignorance and hate.

I dont follow your logic. How does diagnosis add to "ingorance and hate"?

If you're autistic then your peers are gonna hate you regardless of whether you're diagnosed or not.



Fnord
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07 Oct 2023, 10:59 pm

naturalplastic wrote:
If you're autistic then your peers are gonna hate you regardless of whether you're diagnosed or not.
Quoted for emphasis.

People hated me for over five decades before I was officially diagnosed.

It is not the diagnosis that inspires hate, it is the behavior.


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SharonB
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08 Oct 2023, 8:55 am

naturalplastic wrote:
I dont follow your logic. How does diagnosis add to "ingorance and hate"?

All that was about being different, with or without diagnosis. That said there are biases attached to "Autism" such that disclosing or having a person deduce it can trigger those. For me if I see another person who appears Autistic (or discloses), to start I am open to who they are as a person and feel compassion (positive bias). Someone else might think to start, "oh, she's Autistic! She's probably can't see non-verbal clues, is rigid, has tantrums and is selfish" (negative bias). I've disclosed to three medical doctors - one took it in stride (good doctor), one became reserved and closed (I hadn't changed; their bias was triggered) and one used it against me (ironically she was an Autism evaluator).