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CaptainMac
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10 Mar 2008, 3:41 pm

My mom told me there is supposedly a link between certain dietary problems and AS, so I thought I'd "ask the masses" about this.

I cannot eat popcorn, pizza, anything that's too fried (lightly fried stuff doesn't phase me much), or french fries. Pizza makes me nauseous and the others give me stomach pains.

None of these phased me until I was 21 years old (except popcorn, which first struck at age 7).

Any connections here?



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10 Mar 2008, 3:46 pm

Probably a link, most people on the spectrum have very restricted diets, or are very picky eaters. I know I'm one of them as well haha.


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10 Mar 2008, 3:46 pm

My only dietary problem is with milk. No other. :shrug:


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KimJ
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10 Mar 2008, 4:13 pm

That sounds like a gall bladder problem. I've had that since high school, it's not as severe these days. I couldn't go anywhere without having to use the restroom. I've always had hyperactive bowels, but fried foods and whole (fresh) dairy are like TNT for me.



CaptainMac
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10 Mar 2008, 4:17 pm

My mom got her gall bladder removed in her 30s, maybe it's genetic?



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10 Mar 2008, 11:56 pm

I have dietary problems, as well. If I see food, I eat it. :O)


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mikibacsi1124
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11 Mar 2008, 12:00 am

^Ditto.

I used to be a very picky eater as a kid, but not so much anymore.



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11 Mar 2008, 7:20 am

Lol. I'm known around my office as "The wild woman", "The girl who eats bugs for dinner", "Tarzanna", "Bush lady" etc interchangeably... I will pretty much eat anything, and HAVE eaten all manner of odd things.

As a child, I lived on chips... that was it. Funny how things change!

I can't eat egg though, and I can only handle a very small amount of dairy (like a bit of milk in my tea or butter on my bread, which I only eat occasionally anyway). That said, yoghurt I'm fine on (apparently it doesn't affect lactose interolence anyway). I instinctively avoid gluten foods anyway... bread, wheat, etc, so only have a limited intake of them.

Anything else though... yum!


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Today, 5:35 pm

KimJ wrote:
That sounds like a gall bladder problem. I've had that since high school, it's not as severe these days. I couldn't go anywhere without having to use the restroom. I've always had hyperactive bowels, but fried foods and whole (fresh) dairy are like TNT for me.


I had my gall bladder removed in July.

On the last Thursday of June, I went to my my sister-in-law's birthday party in a nearby town. After leaving the party, I stopped at a local grocery store to see what they might have that I can't get here. One thing that I got there was a brand of summer sausage I had not seen before.

I had never had any issues with summer sausage before, but I ate some of it that night. The next morning, Friday, I was experiencing a lot of pain in my abdomen. I had been having a problem with that sort of thing for about a month, but it always went away after a few hours.

This time, the pain didn't subside. I finally went to the emergency room on Friday where they diagnosed it as the gall bladder. The pain slowly subsided and was tolerable by Monday morning. I went to the doctor and he referred me to a surgeon in a big city about a hundred miles away. I got an appointment for the 5th of July and went to see him and he scheduled me for surgery on the 15th of July.

By a few days before the 15th, I was feeling quite normal and wondered if I could perhaps skip the surgery and deal with it with my diet. After a lot of searching on the internet, I saw that the gold standard was to have it removed and so I had the surgery.

A few days later, I was talking to someone I know who is about 12 years older than me and he told me about having gall bladder problems while working as a cowboy on a ranch in his 20s. He didn't want to go through the surgery and so he deal with it by diet.

About 10 or 15 years later, he had to have emergency surgery to have it removed. Along with the gall bladder, they had to take part of his liver and part of his pancreas as well. I told my doctor about that and he started shivering at the thought.


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Today, 5:37 pm

CaptainMac wrote:
My mom got her gall bladder removed in her 30s, maybe it's genetic?


I read somewhere that gall bladder surgery is the most common surgery there is. I hadn't realized it, but I found that a lot of people I know have had it. I wouldn't be surprised if the numbers were approaching 50% of people my age and older.


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Today, 5:43 pm

After the gall bladder surgery, I didn't experience too many issues.

However, there is one that does bother me. I used to forget to eat for two or three days at a time. Usually after two or three days I would start to get miserable headaches and would have to eat.

After my gall bladder surgery, if I forget to eat for one day or even just don't eat enough, I'll have a brief diarrhea diarrhea the next morning that hits me almost instantly.

In the surgery, they apparently just dump bile from your liver into your intestines. I wonder if the bile, without anything to work on, builds up until it causes a brief diarrhea.

I have a colonoscopy coming up in a bit more than a week. For that, no eating the day before. I'm not looking forward to this even though I have had no problems with colonoscopies previously.


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Today, 7:29 pm

I thought the dietary issues related to AS is either gustatory sensory processing issues or particular digestive sensitivity issues like certain food allergies, or stuff like having celiac disease or related to enzymes like lactose intolerance...


The former is something I still deal with.
It's still the same reaction, still the same habits. I still have a kid's palette.

The latter, I don't actually have. I only got them worse since puberty, then starting to disappear over time.
And just became way less severe all the sudden as soon as I'm no longer suffocated by pent up emotions and figuring out some of my hormonal issues.
Common AS related gut issues don't work like that.

And I hadn't truly changed my diet at all.

Only change that seems similar to the OP is me consuming too much pork belly...
Literally nothing else, not in any different dishes of pork nor in any different oily dishes.

And I was told it's mostly because of my rising cholesterol...
And also told me that it's common with aging -- losing tolerance for consuming oily and fatty foods; not related to AS.

Lastly, knowing my family history...
I won't be surprised if it's related to metabolic issues related to diabetes, or something either linked to the liver or gallbladder.
None of them are autistic, nor particularly neurodivergent.


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