Is there a Status to your diagnosis ?

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My idea of the question
All DX are equal in status, no one is "better" or 'worse' 44%  44%  [ 8 ]
yes, the more NT like you are the higher your status 17%  17%  [ 3 ]
I have never heard/saw/thought of such a thing 17%  17%  [ 3 ]
there wasn't a choice for my opinion, I will write it below 22%  22%  [ 4 ]
Total votes : 18

sinsboldly
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03 Feb 2008, 12:57 am

Is there a status in different diagnosis on the spectrum?

I am starting to wonder if there is some STATUS about where one DX ranks in the spectrum. Is there one classification deemed better or worse over the other? What STATUS does a HFA or an AS or PDD-NOS or a just plain A has on the scale? is there a Caste System in the medical diagnosis?

Is someone of a certain status in the hierarchy if you are one thing or another?

Merle



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03 Feb 2008, 1:04 am

I've wondered this, too.

If I had to guess (not my opinion, just from what I've heard), the order would be (from "worst" to "best"):

LFA/Rett's-----------MFA---------------------PDD-NOS----------HFA--Asperger's

Of course, there would be variety with all of them.


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03 Feb 2008, 1:05 am

Well, I am a 3/4 on my ability to cope with my spectrum deficientices (or whatever)

1/4 being rainman-kinda not so self functioning.
1 whole being Bill gates ect-very functional.

But no, nothing like you said. And sometimes I think I am more 1/2. I couldn't live in a group home, but.....there are times one would be benificial.


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03 Feb 2008, 1:24 am

All DXes are equal in status, in that there is no status. Differing qualities do not a quantifiable scale make.



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03 Feb 2008, 3:06 am

I went with the all are equal. I probably have crossed that line a few times, but I think I stay pretty much with it's important to someone and I have no real right to judge them according to some DX or no DX. Probably where I cross the line is trying to get someone to understand what the hell is going on. I suspect it might come across as a one sided deal.


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03 Feb 2008, 3:18 am

"Officially", it's (from worst to best):

Autistic disorder
Atypical autism (PDD-NOS)
Asperger's disorder
Atypical Asperger's (PDD-NOS)

Autistic disorder is worst due to greater deficits in cognitive ability, as well as extremely poor verbal skills in the worst cases; some cases overlap with Asperger's and they're then effectively the same disorder. This is generally based on one's ability to function in society; someone who has AD, has mental retardation (70%), and cannot communicate verbally (18-40%), will have no chance to function in society (barring outliers); the same individual with AD/AS who doesn't have mental retardation, and who can communicate adequately as an adult, will have a chance to function in society, albeit, with much great difficulty than "normal" people, and special allowances will need to be made [in the majority of cases].

The social impairment of all of the above is roughly equal in severity; it's the bits and pieces added on that separate them all.



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03 Feb 2008, 5:28 am

Danielismyname wrote:
"Officially", it's (from worst to best):

Autistic disorder
Atypical autism (PDD-NOS)
Asperger's disorder
Atypical Asperger's (PDD-NOS)


Untrue.

Even by normal standards (which I don't use)... PDD-NOS is also used for people who are unable to complete enough activities to get an autism diagnosis, because they do so few things in general. I knew an autistic person who got that diagnosis for that reason -- she did not do enough activities in general at all, to be able to do repetitive activities (or any more repetitive than what she was able to do in general), or to show interest in things (likewise), etc.

And lots of people with "autistic disorder" can function in the world better than lots of people with "Asperger's disorder".

There's really nothing linear like this. It doesn't work in the real world, even if you were drawing a line from "most able to function like an NT" to "least able to function like an NT" it wouldn't be drawn the way you've drawn it.


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03 Feb 2008, 5:30 am

As for my own vote, I said all are equal.

But there should be another thing on there, which is the thing where people think it gives someone more status the further from NT they are. Like people who think that the opinions of people who seem closest to NT count the least.

I've always called the two extremes on this, "HFAer than thou" and "LFAer than thou" respectively, both of them annoy the crap out of me.


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Danielismyname
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03 Feb 2008, 6:21 am

PDD-NOS equates to someone who doesn't meet the full criteria of a specific PDD, but there's clearly a social impairment with communication difficulties or an all encompassing interest.

Quote:
Pervasive Developmental Disorder Not Otherwise Specified (Including Atypical Autism)

This category should be used when there is a severe and pervasive impairment in the development of reciprocal social interaction associated with impairment in either verbal or nonverbal communication skills or with the presence of stereotyped behavior, interests, and activities, but the criteria are not met for a specific Pervasive Developmental Disorder, Schizophrenia, Schizotypal Personality Disorder, or Avoidant Personality Disorder. For example, this category includes "atypical autism" - presentations that do not meet the criteria for Autistic Disorder because of late age onset, atypical symptomatology, or subthreshold symptomatology, or all of these.


If you do a search, all of the clinical sites will tell you that autistic disorder is lower down on the spectrum (many of the sites anyway); AS is higher up, these are generalizations, but they seem to hold true for the majority (outcome research for example).



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03 Feb 2008, 8:55 am

I picked the last option, that my view isn't represented in the poll.

I don't have a diagnosis and I don't think much of them. Not to belittle those who think they're interesting, but that's my opinion. If people benefit from them, great, but it seems to me that a lot of times they limit people more than they liberate them. "How things should be" (according to the experts) becomes more important than "how things are", and people's thinking is hampered.

But for those who think the structure and the predictability of the literature is comforting, all diagnoses are equally valuable. I guess.



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03 Feb 2008, 9:04 am

I say all equal, I really hate how they give labels, like aspergers, autistic disorder, and the weird pddnos label, which could be severe or mild. I think when everything gets lumped into Autism Spectrum Disorder, and either will be high functioning, moderate functioning, or low functioning, it will be much easier, think!


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anbuend
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03 Feb 2008, 9:37 am

Danielismyname wrote:
PDD-NOS equates to someone who doesn't meet the full criteria of a specific PDD, but there's clearly a social impairment with communication difficulties or an all encompassing interest.

Quote:
Pervasive Developmental Disorder Not Otherwise Specified (Including Atypical Autism)

This category should be used when there is a severe and pervasive impairment in the development of reciprocal social interaction associated with impairment in either verbal or nonverbal communication skills or with the presence of stereotyped behavior, interests, and activities, but the criteria are not met for a specific Pervasive Developmental Disorder, Schizophrenia, Schizotypal Personality Disorder, or Avoidant Personality Disorder. For example, this category includes "atypical autism" - presentations that do not meet the criteria for Autistic Disorder because of late age onset, atypical symptomatology, or subthreshold symptomatology, or all of these.


If you do a search, all of the clinical sites will tell you that autistic disorder is lower down on the spectrum (many of the sites anyway); AS is higher up, these are generalizations, but they seem to hold true for the majority (outcome research for example).


Except that the ICD lists atypical autism (which is the non-DSM equivalent of PDD-NOS) as "Atypical autism arises most often in profoundly ret*d individuals whose very low level of functioning provides little scope for exhibition of the specific deviant behaviours required for the diagnosis of autism," and that's considered there the most common form (whereas the DSM doesn't list what's common and what isn't).


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Danielismyname
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03 Feb 2008, 9:54 am

anbuend, thanks for that.

And concerning my subjective opinion on "status", they're all just disorders/labels that one fits into, one label can have more/more severe symptoms than the other, but that just means one has more/more severe symptoms to me, nothing more.

'I'm more OCD than you!' doesn't sound like something to be happy about, and neither does less (you've still got it).



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03 Feb 2008, 10:17 am

There is definitely a heirachy[?] to ASD,it's also something that affects the disability spectrum in general, there was a long thread about this on ouch a while back.
WPers who are classically autistic are often not even recognised here [and else where],various users have said-'aspergers shouldn't be lumped in with autism,don't want to be associated with autistics',partly not even noticing or ignoring that they are already associating and being 'lumped with' with autistics [classic and pddnos] on here,and partly using the same old stereotypes of classic autism that ASDers complain about the hardcore pro curists using.
There is no one best or worst ASD,to assume are better than another person for having a different label is just as petty as those who say they're better than NTs.
There is no best and worst in autism,only different.


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03 Feb 2008, 11:25 am

Rett syndrome. . .CDD. . .LFA. . .MFA. . .HFA. . .PDD-NOS. . .AS. . .NLD

Labels like this are unfortunate but necessary when applying for services or trying to get
NTs to understand how AS and Kanner autism are related.


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03 Feb 2008, 11:59 am

I've thought of it but I really don't know.


I got offended when people found me more low functioning than I was because MOST people (though not me) seem to think that the higher functioning you are, the higher your status.


Sometimes I've thought it was the other way around but now I know that it depends, everyone is an INDIVIDUAL, but still, there might be a trend so far in the statistics.