Please help our family!! !!

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He has SEVERE Developmental Delay's & Autism as well as Receptive Language delays, Fine Motor delays, Gross Motor Delays, He gets Occupational therapy on his eating, speech, and Physical Therapy. They say his speech is a significant communication disorder, he has Gait, significant delays in cognitive, socialization, gross motor and daily living skills, as well as sensory integration difficulties. Also his one toe sits on top of the other and his two little toes sit almost sideways. He is 5 and only tests at a 9 month level.

He also has Aplasia cutis congenita. He has poor motor skills. He will always be special Ed and never be able to ride a bike or drive or live oon his own and will alway need medicine and therapy and assisted living. His enamel on his teeth did not form properly and he had two teethed capped, one filled and the rest sealed, while under gas. He had to have this surgery at Duke. One doctor said he has floppy ears, a big head and forehead and small in chin and not normal looking. We appreciate any prayers or advice you can send our way.

We are selling EVERYTHING we own to pay for his surgery he needed and the bills are behind, we need a lot for his continued care as well. We were told his speech most likely will Vanish by the age of 6 that he will not be able to form ANY social bonds not even with his special needs sister. That he may not be able to react to pain- like if someone hurt him, he will not be able to scream or cry and tell someone that someone is burning him or pulling his hair or hitting him, he can not even tell us if there is a pebble in his shoe. That he may not be able to read, that something so trivial like switching where he sits in the car or at the dinner table can lead to a tantrum for HOURS. That there is NO cure and he will ONLY get worse.

That most children with Autism get homeschooled, because there is so much teasing and making fun of in school and people not fully understanding the whole spectrum. That a autistic child will cost a family, 4 times a normal Childs cost, so if you have a family of 4 like us, you are really supporting a family of 7, however we have two special needs children so our family of 4 is really a family of 10 on 1 income ( which we already see that with supplements and diapers and 6-8 pediasures a day and therapy and learning boards and videos and aids, he is supose to have Wheat and Guten and cane sugar free foods that are all organic, he doesn't because we can't afford them). That he will likely will never get into a lasting relationship or marriage. That when we us, his parents pass statistics show 85% of Autistic children end up in a state ward, and 11% commit suicide as they were the only people they could bond with, and 4% yes ONLY 4% live on there own but in like a group home situation and work. Our son is considered moderate to severe and does fall in these categories. Just knowing he will not bond with his special needs sister ( speech delays half her age ), or just knowing he will loose his speech, the little he has, or just knowing when he can not tell anyone when he is hurting, or just knowing he will cost us so much and we will always be in poverty, or just to know he will never know love or marry or have a healthy child, or just knowing he will be made fun of in school or even at the dentist by that unbehaved child he is 2 1/2 times his age, is enough to drive me OVER THE ROOF and OFF THE DEEP END, but to tell me when my husband and I die he will be in a state ward or maybe commit suicide BREAKS MY HEART SO MUCH that I have NO IDEA at this point what to do....

My husband says they pretty much tell him to work his butt off to make as much as he can to support our son and be away from him morning till night every day and give him the best care, but someone put it away also for his future care for when he is gone, but then not to die working yourself to death or our son will commit suicide....... My daughter should be okay with therapy and time, my son Autism has NO CURE. I BEG GOD TO PLEASE HEAL MY CHILDREN especially MY SON, PLEASE GIVE MY DAUGHTER A BROTHER, PLEASE GIVE MY HUSBAND AND I STRENGTH TO DEAL WITH THIS........... PLEASE, I WILL DO ANYTHING!! !! ! PLEASE!! !! !! !! !! !! !! !! !! !!

We ask God daily to just let our son be healthy and normal. We are taking ONE day at a time, we are selling EVERYTHING we have for his surgery bills and therapies, and the bills are falling behind, once everything is gone I don't know what we will do, live in a box maybe with no therapy for our son, no help for him, we are doing all possible, we sold our couch months ago and were sitting on the floor, until we found one with cat damage we could get free.

PLEASE ANYONE, ANYTHING, PLEASE, EVEN IF IT IS JUST PRAYER....WE ARE AT YOUR MERCY FOR OUR SON! I really don't know what else to say, my husband and I list things together, we list all we can handle for the current week or situation, we are listing everything we own really, everything you all dont want is going to the local pawn shops and consigments, actually we are getting ready to have a yard sale for the first time ever in September, so if your local stop on by and meet us. I have been out of work 31/2 years caring for the children and I don't know where are next meals are coming from. Our home may get forclosed.

PLEASE HELP US AND GOD BLESS YOU!! !!

I'm so sorry that no-one here will be able to help you.

But I know the goodhearted folks at the Autism Speaks, Generation Rescue, Evidence of Harm, and other like-minded message boards will be more than generous!

http://www.autismspeaks.org/community/forums/index.php
http://groups.yahoo.com/group/EOHarm/
http://www.ageofautism.com/
http://www.safeminds.org/
http://www.tacanow.org/
http://a-champ.org/

Oh come on dkmnow she's panicking don't dismiss her just because she's panicking
And those stats she quoted probably on apply to LFA
I don't agree with the costs thing and here is why
Your Daughter HFA if I am correct will likely recover to be a semi-"normal" girl
True your son is unlikely to "recover" and maybe he will never speak
but Aplasia cutis congenitais usually minor is it more serious in your case
occupational therapy should eventually be provided by the school if you have a good district and some states have programs designed to help children like your son

Unfortunately dkmnow may be right and you may be better off going somewhere else to talk about your son
however talking about your daughter (if I am right about HFA) is within the usual range of activity here

I smell a troll.

Would you like me to pick it apart?

Okay

SURE! I started to kind of smell one also!

pick it apart that would be too nice I think.
Why lie about things like that troll up there has?! No sympathy from me!

Let's all be nice just in case her story is true.

Now you mentioned Duke, right? I assume you have been receiving services from CDSA since your son was born right? I do know they have a sliding scale so that families with low or no income don't have to pay. I also know that the Durham school district has programs set up to help your son, and those are also free. I am sorry to hear about the Aplasia cutis congenita, is that what he is having surgery for? Do you have health insurance? Is there any way you can get medicare or apply for individual health coverage? Can you get a payment plan with Duke?

You should also check out TEACCH, they offer excellent services for those on the spectrum.

And don't give up hope for your son. Many children are given scary prognosis's when they are young but surprise everyone later on. There are many people who are considered "low functioning" that did talk as children, that even post here.

You don't know that it will only get worse. I don't know whether it will get better or worse for you, but there IS HOPE that things will get better for you and your son.

I don't think you are correct that most children with autism are homeschooled. Are you homeschooling him right now? You seem under pressure, I suggest for your sake and your son's, you let the school district take care of him during the day so you can rest and relax. I think your head is about to explode.

Enough statistics to choke a horse? What's the agenda here?

"Also his one toe sits on top of the other and his two little toes sit almost sideways. He is 5 and only tests at a 9 month level."

She's worried about his toes?

"One doctor said he has floppy ears, a big head and forehead and small in chin and not normal looking."

You need a doctor for this observation? And so what? I put this right next to toes.

In one breath she's talking about special ed and the next telling us about how most autistics get home schooled? I don't know where in the world she lives but last I knew home schools are nice but not everyone can do it. But her general tone is saying something totally different then getting an education at all. She's all hyperventilating over future care and doesn't know where the next meal is coming from, humm, strange, very strange.

Teeth. Hell people are even known to have survived till they got their adult teeth in and hang on...some don't have any at all. It does happen you know, sheezus give me a f*****g break. Seems to me I had mine out and damned grateful and should have done it years ago. Duke? They're smarter then that.

"That there is NO cure and he will ONLY get worse."

Now who the hell does that sound like? You need a road map to their site?


Shall I go on? It's got plenty more.

It's apparent she can still afford candy bars and caffeine. Now, if she'd like to discuss what she really has in mind, I'm willing. But play the troll game? Actually I like it, but this one isn't very good at it.

Sorry lady about your condition, I'm looking for a cure.

I wonder what that ones IP number is.

SO, did you see postpaleo's post? I don't think he lied at all, and he did a good job!

No postpaleo didn't, the thread starter, the mum whose son is so bad. I mean if one was that bad would they be alive???? Also other things give her away.

Troll confirmed and banned.

There are too many of them these days...

O.K. We all know of my "Internet ineptness" so I'm going to ask another stupid question
WHY would someone write all that, for what purpose? To "stir things up?" And how do you find out if its a "Troll?" I'm just trying to understand what would motivate someone to invest that much time BSing people with such an emotional lament. I'm curious as to the "Why" of it all.

its disgusting that anyone can make that up,only to make those who really do need help not get the trust they deserve when they post how desperate they are.

one word,
money