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FranzOren
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10 Sep 2020, 11:32 am

Should we change the criteria for Autism Spectrum disorder?


In order to have diagnosis of ASD you need to have traits of part of ASD for four months, after 12 months of age and if traits are gone after more than four months you are developmentally delayed.





In order to qualify for diagnosis of Pervasive Developmental Disorder, symptoms must be present for four months right before the age of one.



Autism can be diagnosed at age through 0-3 years of age, but moderate to milder form of Autism can be diagnosed at the age of 4+



According to Wikipedia a chronic condition is a health condition or disease that is persistent or otherwise long-lasting in its effects or a disease that comes with time. The term chronic is often applied when the course of the disease lasts for more than three months.



Even if symptoms of Autism is gone, you are still considered to have history of developmental delay, because the traits of ASD lasted for more than three months.





Use Your Words Carefully: What Is a Chronic Disease?
(https://www.ncbi.nlm.nih.gov/pmc/articl ... e%20months).


To make it even more broad and most with Broad Autism Phenotype should have some form of ASD diagnosis

Fun fact:


You can have some kind of rare form of Pervasive Developmental Disorder or even undiagnosed Atypical Autism


Even 'baby sibs' without autism show delays in first year | Spectrum | Autism Research News (https://www.spectrumnews.org/news/even- ... irst-year/)





Symptoms of ASD for four months before the age of one:

1. Not respond to their name by 12 months of age
2. Not point at objects to show interest (point at an airplane flying over) by 14 months
3. Not play “pretend” games (pretend to “feed” a doll) by 18 months
4. Avoid eye contact and want to be alone
5. Have trouble understanding other people’s feelings or talking about their own feelings
6. Have delayed speech and language skills
7. Repeat words or phrases over and over (echolalia)
8. Give unrelated answers to questions
9. Get upset by minor changes
10. Have obsessive interests
11. Flap their hands, rock their body, or spin in circles
12. Have unusual reactions to the way things sound, smell, taste, look, or feel
13. Does not respond to name by 12 months of age
14. Avoids eye-contact
15. Prefers to play alone
16. Does not share interests with others
17. Only interacts to achieve a desired goal
18. Has flat or inappropriate facial expressions
19. Does not understand personal space boundaries
20. Avoids or resists physical contact
21. Is not comforted by others during distress
22. Delayed speech and language skills
23. Repeats words or phrases over and over (echolalia)
24. Reverses pronouns (e.g., says “you” instead of “I”)
25. Gives unrelated answers to questions
26. Does not point or respond to pointing
27. Uses few or no gestures (e.g., does not wave goodbye)
28. Talks in a flat, robot-like, or sing-song voice
29. Does not pretend in play (e.g., does not pretend to “feed” a doll)
30. Does not understand jokes, sarcasm, or teasing
31. Lines up toys or other objects
32. Plays with toys the same way every time
33. Likes parts of objects (e.g., wheels)
34. Is very organized
35. Gets upset by minor changes
36. Has obsessive interests
37. Has to follow certain routines
38. Flaps hands, rocks body, or spins self in circles
39. Hyperactivity (very active)
40. Impulsivity (acting without thinking)
41. Short attention span
42. Aggression
43. Causing self injury
44. Temper tantrums
45. Unusual eating and sleeping habits
46. Unusual mood or emotional reactions
47. Lack of fear or more fear than expected
48. Unusual reactions to the way things sound, smell, taste, look, or feel



Pieplup
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11 Sep 2020, 2:40 pm

I don't see any problem with the current criteria.


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robotrecall
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11 Sep 2020, 2:44 pm

Pieplup wrote:
I don't see any problem with the current criteria.

I don't either. I prefer it that it would have levels truthfully. My twin sister is level 3 and I'm level 1.



Joe90
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11 Sep 2020, 3:45 pm

What does 'Symptoms of ASD for four months before the age of one' mean? Does it mean all those symptoms listed are supposed to be present in 6-month-old babies?


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FranzOren
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11 Sep 2020, 4:19 pm

It's mostly after 12 months of age, but it can b a possibility



Joe90
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11 Sep 2020, 6:32 pm

Quote:
Avoid eye contact and want to be alone

Never the case for me - I made eye contact and loved the company of other children and actually hated being alone
Quote:
Have trouble understanding other people’s feelings or talking about their own feelings

I could talk about my feelings and I didn't have much trouble understanding other people's feelings, but I wasn't very good at responding to their feelings
Quote:
Have delayed speech and language skills

Nope, I wasn't delayed with either
Quote:
Repeat words or phrases over and over (echolalia)

I don't remember doing this as a small child (or ever)
Quote:
Give unrelated answers to questions

Maybe
Quote:
Get upset by minor changes

Got upset by some changes at school (not so much at home), but it was mostly because of the bell (long story, I'll explain in a new thread if anyone wants me to)
Quote:
Have obsessive interests

I didn't start having obsessive interests until I was 11, then I don't seem to have any more since I was 24
Quote:
Flap their hands, rock their body, or spin in circles

Both my parents say that I never did any of these stims, and I don't remember doing them either
Quote:
Have unusual reactions to the way things sound, smell, taste, look, or feel

The only thing I was sensitive to was certain loud noises like dogs barking
Quote:
Prefers to play alone

Apparently I wanted to play on my own when I first started school but it was rather out of character for me because I liked playing with my peers before I started school and after the first few months of starting school and always
Quote:
Does not share interests with others

I was usually into the things other kids were into, although I struggled to keep up with trends after I hot puberty
Quote:
Only interacts to achieve a desired goal

I don't think my social interactions was this narrow, as I liked talking to people and being interested in them.
Quote:
Has flat or inappropriate facial expressions

I think I did when I was anxious, I looked rather dazed
Quote:
Does not understand personal space boundaries

I think I had this symptom
Quote:
Avoids or resists physical contact

I've never had a problem with being touched as a child, in fact I used to actually seek it, like asking other female children to play with my hair (which they liked doing)
Quote:
Is not comforted by others during distress

I often (and still do now) seemed reassurance and comfort from people when stressed or worried, and I expressed it by crying
Quote:
Repeats words or phrases over and over (echolalia)

I did do this in my head a lot but not out loud
Quote:
Reverses pronouns (e.g., says “you” instead of “I”)

I don't remember doing this
Quote:
Uses few or no gestures (e.g., does not wave goodbye)

I've seen me as a baby in videos and I seemed rather socially aware according to my age
Quote:
Talks in a flat, robot-like, or sing-song voice

I don't know if I did or not
Quote:
Does not pretend in play (e.g., does not pretend to “feed” a doll)

I did pretend in play all the time and I had a huge imagination
Quote:
Does not understand jokes, sarcasm, or teasing

I wasn't very good at reacting to jokes or teasing as a child, and I'd take it as bullying even when they weren't
Quote:
Lines up toys or other objects

My parents say that I never did this with my toys
Quote:
Plays with toys the same way every time

I don't think I did this
Quote:
Likes parts of objects (e.g., wheels)

I did not have this symptom
Quote:
. Is very organized

I was the opposite - very messy and had trouble with time management
Quote:
Has to follow certain routines

I wasn't vivid in any routine following but I think I preferred some routine, but I think this got more pronounced as I got older
Quote:
Hyperactivity (very active)

I was a very hyperactive child but I've also been diagnosed with ADHD
Quote:
Impulsivity (acting without thinking)

I've also always had this but again I thought it was more of a typical ADHD symptom
Quote:
Short attention span

Again I have always had short attention span which seems to have gotten worse as I've got older but I thought it was to do with ADHD
Quote:
Aggression

I was prone to temper tantrums when I was a child, and as a teen and a younger adult they turned into outbursts
Quote:
Causing self injury

No I don't think I have injured myself as I've always been afraid of pain
Quote:
Unusual eating and sleeping habits

I was quite a fussy eater but I heard that is common in children. I don't know what it means by 'unusual sleeping habits'
Quote:
Unusual mood or emotional reactions

I've always had this, until I went on antidepressants
Quote:
Lack of fear or more fear than expected

I don't lack fear but I do have more fear than expected, like my fear of vomiting and fear of pain, to the point where I become avoidant (but isn't that what fears are all about???)

Some of these have been listed twice. I don't think this is a very accurate list of ASD symptoms to be honest, at least not for children and especially babies under a year old.


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11 Sep 2020, 6:42 pm

Joe90 wrote:
What does 'Symptoms of ASD for four months before the age of one' mean? Does it mean all those symptoms listed are supposed to be present in 6-month-old babies?

I thought it was for 1 year old babies, not 6-month old babies. But, my twin sister and I got diagnosed when we were 4.



FranzOren
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11 Sep 2020, 7:56 pm

From my early to late childhood, adolescence and adulthood, I had developmentally delayed milestones, social anxiety, thought disorder, paranoid ideation, derealization, transient psychosis, grandiosity, callous and unemotional traits, disregard for others' feelings, excessive need for admiration, or social isolation and often unconventional beliefs.

I had delusions that aliens exist on earth when I was three years old and had imaginary friends that caused me great distress in daily life.


I am now better than before at reading or understanding emotions, facial cues and body languages, but I still have developmentally delayed social-emotional reciprocity and I still talk about things that fits my specific subjects of interest, often manifesting as a borderline obsession with a few areas and/or hobbies.

Ever since I was a little child, I would have severe defects in social communication, both verbal and noneverbal cues, used to have lack of social skills, had bizarre interests, borderline intellectual functioning, psychosis, sensory issues, psychological issues and sometimes would have self-injurious behaviors, but it was rare.




My symptoms from my early childhood included:

1. Intellectual disability (an IQ of 69 or below).
2. Impaired social communications or interactions, bizarre behavior, and lack of social or emotional reciprocity.
3. Delusional interests and bizarre behaviors.
4. Sleep problems, aggressiveness, and self-injurious behavior are also possible frequent occurrences
5. Lack of eye contact, inadequate body language and a lack of emotional or physical response to others' behaviors and emotions.
6. Lack of communication (both oral communication – i.e. nonverbal autism – and body language), Repetitive use of words or phrases, and lack of imaginative play skills.
7. Respond only to very direct external social interaction from others.
8. Severe deficits in communication skills (verbal and nonverbal), inflexibility of behavior, extreme difficulty coping with change, and extreme difficulty with shifting focus and attention. Individuals with level 3 autism would initiate very limited amounts of social interactions and would respond only to direct social approaches from others.




My symptoms of developmental delay from my late childhood included:

● Difficulty in social interaction, often due to issues with nonverbal communication
● Specific subjects of interest, often manifesting as a borderline obsession with a few areas and/or hobbies
● IQ can vary, but is generally higher than average
● Suppressed and/or difficulty expressing emotions




My symptoms of developmental delay from early to late adolescence and adulthood included:

It is common for individuals with PDD-NOS to have more intact social skills and a lower level of intellectual deficit than individuals with other PDDs.[2] Characteristics of many individuals with PDD-NOS are:

● Communication difficulties (e.g., using and understanding language)[6]
● Difficulty with social behavior
● Difficulty with changes in routines or environments
● Uneven skill development (strengths in some areas and delays in others) # I used to have thay problem
● Unusual play with toys and other objects
● Repetitive body movements or behavior patterns
● Preoccupation with fantasy, such as imaginary friends in childhood


I used to have profound developmental disorders from my early childhood.



It got milder, because I had IEP plans and meetings.

When I was 0-8 years old, I had some symptoms of Profound Developmental Disorder.

When I was 9-10 years old, I had some symptoms of Asperger's Syndrome.

When I was 11-19 years old, I had some symptoms of PDD-NOS.


Now I feel like I have Learning Disorders, with a Broad Autism Phenotype.
.




Social-emotional reciprocity is the back and forth interaction that takes place in communication. We take a social approach in having conversations with others, and we share our interests in our conversations with others



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12 Sep 2020, 1:47 am

When I was 0-4 years old I was practically NT.

When I was 4 and a half I was autistic for a few months at school.

When I was 4-5 I had some sort of panic/anxiety disorder that resulted in frequent tantrums or panic attacks at school.

When I was 6-7 I seemed like an NT with social anxiety and dyslexia (I was behind on my reading, writing and maths).

When I was 8-12 I was Asperger's and ADHD (diagnosed with Asperger's at 8 ).

When I was 12-15 I was rather autistic again (on and off).

When I was 16-24 I was an emotional wreck, having frequent rage outbursts, anxiety, depression and self-pity.

When I was 24-present I am anxious and my ADHD seems worse but my Asperger's seems better.

I wonder if I'll temporarily go more autistic again when I hit menopause.....?


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13 Sep 2020, 4:15 pm

You still have history of developmental delay, even if the symptoms changed or is gone