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mysterious_misfit
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23 May 2008, 1:05 pm

Have you had a siezure? I read that one in four people with an ASD will have siezures. The book said sometimes they are real grand mal siezures, but sometimes all it looks like is mood swings. I have had a few instances of having a sudden change in my perception of reality that lasts 10 to 15 seconds. I wonder if they are siezures?



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23 May 2008, 1:08 pm

mysterious_misfit wrote:
I have had a few instances of having a sudden change in my perception of reality that lasts 10 to 15 seconds.


can you elaborate?



mysterious_misfit
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23 May 2008, 1:17 pm

The first time was when I was a teenager. I was sitting on the couch, watching TV with my family, when all of the sudden it was like the whole universe is unreal. Like the whole world was suddenly like I was watching a movie. I knew I was real, but everything else just went unreal. Also I could see all the texture of the paint on the walls, even though it was just ordinary flat wall paint. Every little bump was all of the sudden 'in my face'. It's kind of like people become paper dolls and everything is only two dimensional. After a few seconds, everything went back to normal. It also happened one time in school, and one time just a couple of weeks ago. Each time is really only 10 to 15 seconds or so. It's very strange.



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23 May 2008, 2:05 pm

mysterious_misfit wrote:
The first time was when I was a teenager. I was sitting on the couch, watching TV with my family, when all of the sudden it was like the whole universe is unreal. Like the whole world was suddenly like I was watching a movie. I knew I was real, but everything else just went unreal. Also I could see all the texture of the paint on the walls, even though it was just ordinary flat wall paint. Every little bump was all of the sudden 'in my face'. It's kind of like people become paper dolls and everything is only two dimensional. After a few seconds, everything went back to normal. It also happened one time in school, and one time just a couple of weeks ago. Each time is really only 10 to 15 seconds or so. It's very strange.


I have siezures that last couples seconds to couple minutes, called simple partial siezures. This site might help you... http://www.epilepsy.com/epilepsy/seizure_simplepartial


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Sorenna
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23 May 2008, 2:43 pm

I had one, I am sure- but at the ER they just were like, "Oh it's just psych." But it wasn't.



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23 May 2008, 2:50 pm

mysterious_misfit wrote:
Have you had a siezure? I read that one in four people with an ASD will have siezures. The book said sometimes they are real grand mal siezures, but sometimes all it looks like is mood swings. I have had a few instances of having a sudden change in my perception of reality that lasts 10 to 15 seconds. I wonder if they are siezures?

that could be something like 'zoning out' or [not sure if am spelling this right] depersonalization,and not seizures,but get a neuro appointment to get an EEG test done [where they glue loads of wires to head,feels nasty and smells nasty when the stuff goes on],and as long as the symptoms happen during it,it will say if it's a seizure or not.
am was told by old autism speech therapist that zoning out is very common in people with autism [which would include as,pddnos and the others to].


as for seizures,am only get them during most meltdowns [grand mal/tonic clonic type] now whereas when younger [from toddler age] am had them randomly until they gave am epilim,one of the neuros am see at hope hospital for meltdown stuff said they should never have put am on epilim as it's known to cause seizures in females,it also helped to ruin teeth along with dental fluorosis [from binge eating tooth paste] as back then it wasnt sugar free.

anyway,if it turns out that do have seizures,am recommend trying tegretol ret*d [long release tegretol] if it works with own form,it doesnt have the same extreme of side effects as normal tegretol does [halucinations,hearing speeding up and slowing down,pitch changing etc] and it does not cut off quick like normal tegretol does.


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23 May 2008, 5:56 pm

Also sounds like a dissociative thing called, I think, derealization. It's almost always described in terms like 'looking at a movie' or 'through a window'. Noticing/seeing every little bump also points at a your input filters temporarily

You weren't just tired/exhausted? Any major events recently?



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23 May 2008, 6:14 pm

Thanks for the responses. I definitely will not be medicating myself for it. It's only happened a few times in my life, certainly not enough to impact my quality of life.

I'll have to look into 'zoning out' and derealization. It's exactly like looking at a movie.



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23 May 2008, 6:18 pm

That article on simple partial seizure is interesting, because I once had something that I've since described as a panic attack. But it started off with a really strong smell of what I thought was diesel fuel. I was only young at the time. Many panic attacks I had were either triggered b a real life smell or one that only I can smell.

Recently I was on some drug called aricept for my cognitive problems also used to treat Alzheimer's. I was getting lots a brain zaps. Not the short sharp ones you get when waking up, but quite stormy. The consultant told me I could up weeks before the recommended time. IThe room started spinning. I was having difficulty keeping my eyes open. I kept on going under and moving rapidly through hallucinations with really high pitched noises. Then I would appear to come out of it but really I was still unconscious in some other room. Then that room would start spinning. This repeated many times over times and I had to fight hard to try and get myself out of it. Even when I regained consciousness it was really hard to stop myself going under. I couldn't keep my eyes lids open I literally had to prize them open with my fingers, and my eyes were like sand paper from not blinking.



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23 May 2008, 6:40 pm

mysterious_misfit wrote:
I have had a few instances of having a sudden change in my perception of reality that lasts 10 to 15 seconds.


I've had that happen before. It's a kind of weird feeling isn't it, like you're not quite conscious. That's the best way I know how to describe it.

I've never had a seizure but when I was 3, I had a cat scan done (forget why) and they found a spot on my brain that people with epilepsy have. They also found that one side of my brain is thicker than the other.


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23 May 2008, 7:32 pm

I had my first seizure when I was 24 and in graduate school. Luckily, I only had one other in 1998 and it wasn't as severe as the one in 1989. I haven't had any since and am okay as long as I take my medication.



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23 May 2008, 10:07 pm

i am epileptic and i had my first official seizure at 22. i was typing at my desk at work and i started to feel fuzzy and hot. i then went unconscious. when i woke up everyone was looking at me and the ambulance people were there.

i say official because i had a similar experience when i was taking an exam at tafe but everyone thought i just fainted and the ambulance wasn't called.

i have not had anymore since they put me on medication. they are beginning to reduce my dose now :)



brat
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24 May 2008, 12:11 am

KingdomOfRats wrote:
that could be something like 'zoning out' or [not sure if am spelling this right] .


yeah, except that when a person is "zoning out" it is a very. very minor form of a seizure. I have a physic teacher tell us that. so....



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24 May 2008, 9:26 am

brat wrote:
KingdomOfRats wrote:
that could be something like 'zoning out' or [not sure if am spelling this right] .


yeah, except that when a person is "zoning out" it is a very. very minor form of a seizure. I have a physic teacher tell us that. so....


It *could* be, but not necessarily. The type of seizure you are referring to is "petit mal," and is characterized by staring, maybe some repetitive motor mannerisms like lip-smacking or rapid blinking, and lack of consciousness. So there is a difference between just zoning out into your own thoughts, and actually losing consciousness for a brief period of time.



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24 May 2008, 9:41 am

Posted this elsewhere but it might be interesting to someone.

When mine hit I was under major stress, but was also taking fish oil, ginko, and SAM-e. One day I could feel like black ink going across the right side of my brain and then I froze up. Something happened. Since then it has happened more than once.

Once it happened when I was doing EMDR, which can trigger seizures.

But I could not get a referal to a Neuro because Medicaid likes to kill off poor people. I could not find a dr to take the Medicaid.

Besides, I would not take seizure medication anyway. I am horribly sensitive to meds, even Prozac- or especially that poison.



jamescampbell
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24 May 2008, 6:24 pm

i have it cause the symtoms apparently that i have are:

vague longing or yearning

feeling separate or disconnectedness from others

altered consciousness

feelings of disembodiment or observing yourself from afar


crying or laughing for no apparent reason