Autism Speaks Forum To Close

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HarryWilliams
Pileated woodpecker

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09 Aug 2008, 5:59 am

Autism Speaks forum is to close at the end of the month. The forum, which has become a battle-ground for pro and anti-cure groups has become unmanageble, with repeated flame-wars, and numerous postings advertising supposed new treatments and cures. Most recently a formal complaint was made to the University of Kentucky about the promotion on the forum of a new and untested chelation "food suppliment", created by their researchers as an industrial decontaminent.

marieclaire
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Joined: 17 Jul 2008
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09 Aug 2008, 6:09 am

oh, thanks Harry for the update re. Autism Speaks.
If there are problems with the forum, they are acting responsibly by closing it.
I tend to think that forum has fair and active moderation, well, from what I have seen anyway.

Also Autism speaks forum, is a forum connected to a larger organisation. I imagine they have to take a lot care in regard to what treatment strategies are promoted on their website.

HarryWilliams
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09 Aug 2008, 6:33 am

I think they underestimated the level of moderation required. When there's a mod on duty, things are fine; but as far as I can tell, they only have one, for an hour or so a day.

sgrannel
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09 Aug 2008, 6:39 am

Talk of curing autism is strictly hypothetical anyway, or involves quackery that doesn't really do anything.

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2ukenkerl
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09 Aug 2008, 6:53 am

marieclaire wrote:

They AREN'T acting responsibly. The responsible thing to do would be to shut EVERYTHING down! What they are doing is CENSORSHIP! They are shuting down the FORUM, because it doesn't represent their biased view. It is 100% SELF SERVING!

HarryWilliams
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09 Aug 2008, 7:09 am

They've set up a social network site at www.autismspeaksnetwork.ning.com and the forum members are heading over...

psmaster
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09 Aug 2008, 10:34 am

YAY! I live in Kentucky and made a few formal complaints to UK! I am glad the Autism Speaks forum is shutting down, that will mean that people will have to write to the organization directly!

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alex
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09 Aug 2008, 11:06 am

HarryWilliams wrote:

They've set up a social network site at www.autismspeaksnetwork.ning.com and the forum members are heading over...

Tell all the anti-cure people they can come to WP. The others can come too if they don't attack anti-cure members of WP but I wouldn't put that past em.

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HarryWilliams
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09 Aug 2008, 12:55 pm

I'll mosey on over an extend the invitation...

Callista
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09 Aug 2008, 9:07 pm

There's no social network for actual autistic people!

...typical.

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spudnik
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09 Aug 2008, 9:27 pm

I heard Facebook is going open source, so maybe something like that could be started for WP eventually.

anbuend
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09 Aug 2008, 10:30 pm

autistics.org actually started one recently, but after getting hacked we've had to rebuild a bit.

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Warsie
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10 Aug 2008, 3:49 am

anbuend wrote:

autistics.org actually started one recently, but after getting hacked we've had to rebuild a bit.

Details? What happened? Who hit you, do you have IPs and the like?

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Warsie
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10 Aug 2008, 3:50 am

Callista wrote:

There's no social network for actual autistic people!

...typical.

huh? There's WrongPlanet and AspiesForFreedom

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Mw99
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10 Aug 2008, 1:33 pm

Aspies for Freedom from what?

alex
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10 Aug 2008, 2:40 pm

yeah wrong planet is a social networking site. we're adding more social features too

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