neuro gave me new label and said interesting stuff...

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Age1600
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03 Sep 2008, 2:36 pm

So my new neurologist calls back and tells me, i have moderate functioning skills, which include my stimming, my sensory issues, my self injurious, my verbal iq being not high, my self help skills, my way of thinking, along with my socializing behavior is of a 5 year old, during my most strongest thinking moments, its of a 14 year old, but my mind as an autistic is high functioning, how i interact is high functioning, how i can speak, sometimes even very well is high functioning, the fact i can have a boyfriend and can drive is high functioning. My obvious need a strict routine, obivously have no care for socializing, obvious stimming, obvious sensory issues, obvious need for assistance, and obvious communication problems that would all fit you in the criteria for classic autism. He said the only symptoms i see that is not classic though is how you can give eye contact, how you can have a conversation and can handle many social situations. It seems those traits you learned to adapt as you grew older.

He said the difference between high functioning autism and aspergers is the obvious, people around you can see, he said somebody with aspergers you can't always notice their sensory issues, or that their stimming, or the fact that they need assistance, while somebody with high functioning autism is more noticable when displaying autistic traits which i found interesting. He said but overall differences between aspergers and HFA are not much different, except people with aspergers seem more prone to socializing but are very misunderstood to how to, and people with autism seem more prone to ignore the social situations and rather don't care for why they dont understand. He also some people would say people with autism have more severe sensory issues, and more noticable stimming, which i tend to agree with, but other doctors will not see a difference there. The language delay doesn't always pertain to HFA, a lot of people diagnosis children with aspergers even though they have a language delay and diagnosis children with autism but high functioning even though they didn't have a language delay.

He said overall your defintely on the spectrum, more on the lower end due to your skills but with your high functioning personality you can just about pass for an NT at times which would put you right in the middle. Considering all of that, i'm not going to put high or moderate functioning because your neither, theres times your high, moderate, and low, so i'm going to put down "functioning autistic disorder"!

Isnt that weird? I never ever heard of that one hahaha, but i found it interesting on what the said was the difference between aspergers and HFA. Anyways so yep there ya have it, i aint high or mod or low lol, im just functioning lol. I kinda love that label the best, because i consider myself high functioning because how i am, but with my moderate skills and my low functioning times, it was hard to explain to ppl, because some ppl saw my really high functioning side, and some saw my really low functioning side, it was soo confusing! What does everybody think of what my neurologist said? especially with how he said language delay doesnt always divide HFA and Aspergers?


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UndercoverAlien
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03 Sep 2008, 2:40 pm

grats with your label but whats verbal iq? :roll:



Age1600
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03 Sep 2008, 2:41 pm

UndercoverAlien wrote:
grats with your label but whats verbal iq? :roll:


verbal iq is like how well u speak, how well u can keep ur language, how well ur can communicate verbally without a problem. I still use the PECS system, and sign language to help me communicate, so my verbal iq is not the highest. Hope that helps alittle.


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03 Sep 2008, 2:44 pm

im not so very good at talking



ProtossX
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03 Sep 2008, 2:46 pm

did you tell your doctor that your good at typing an talking to people on forums an that you are very NT on the internet? if so what would he say about that you think?



Age1600
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03 Sep 2008, 2:48 pm

UndercoverAlien wrote:
im not so very good at talking


maybe u have a lower verbal iq, who knows. i dont stay verbal long, i can talk very good for awhile then im completely nonverbal for the rest of the day. i also do a lot of echolalia or one worders basically have the language skills of a toddler most of the time, like for instance when i want ppl to leave me alone, i usually push them away and say bye now or u bye lol. I dont always speak in complete sentences either.


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Age1600
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03 Sep 2008, 2:49 pm

ProtossX wrote:
did you tell your doctor that your good at typing an talking to people on forums an that you are very NT on the internet? if so what would he say about that you think?


I dont know but thats a very good question i see him again in a week and half, so ill bring that up to him haha, but thanks for reminding me!


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03 Sep 2008, 2:50 pm

ProtossX wrote:
did you tell your doctor that your good at typing an talking to people on forums an that you are very NT on the internet? if so what would he say about that you think?


lulz. Even "low-functioning" autistics can act 'normal' on the internet. Thought they might phrase things oddly (then again I do that sometimes)


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03 Sep 2008, 2:53 pm

Every dr is going to throw their own dx at you. My psych insists I don't have AS only because of my social skills being quite good AND the fact that I did have a significant language delay, but I definitely do not have classic autism either.. so therefore PDD-NOS. But if I went to another, he may say the same thing as your dr did and dx me with mild AS or something. I am almost to the point of not caring about what label it is because one dr is going to say one thing and another will say the complete opposite, I just know I am mildly under the spectrum, somewhere...


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03 Sep 2008, 2:57 pm

lionesss wrote:
Every dr is going to throw their own dx at you. My psych insists I don't have AS only because of my social skills being quite good AND the fact that I did have a significant language delay, but I definitely do not have classic autism either.. so therefore PDD-NOS. But if I went to another, he may say the same thing as your dr did and dx me with mild AS or something. I am almost to the point of not caring about what label it is because one dr is going to say one thing and another will say the complete opposite, I just know I am mildly under the spectrum, somewhere...


Yea all that matters if that your on the spectrum, and your not as severely affected as some, thats all, i would just call urself autistic, and if somebody asks whats ur diagnosis or label just say i'm mildly on the spectrum. Hope this helps alittle!


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03 Sep 2008, 2:59 pm

Warsie wrote:
ProtossX wrote:
did you tell your doctor that your good at typing an talking to people on forums an that you are very NT on the internet? if so what would he say about that you think?


lulz. Even "low-functioning" autistics can act 'normal' on the internet. Thought they might phrase things oddly (then again I do that sometimes)


haha yea have u ever talked to droopy on the AS msg boards or anywhere else, shes severely autistic and dang can she type amazingly. It just goes to show u ppl say autistics can do this or that, but its not true at all.


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03 Sep 2008, 3:01 pm

Age1600 wrote:
lionesss wrote:
Every dr is going to throw their own dx at you. My psych insists I don't have AS only because of my social skills being quite good AND the fact that I did have a significant language delay, but I definitely do not have classic autism either.. so therefore PDD-NOS. But if I went to another, he may say the same thing as your dr did and dx me with mild AS or something. I am almost to the point of not caring about what label it is because one dr is going to say one thing and another will say the complete opposite, I just know I am mildly under the spectrum, somewhere...


Yea all that matters if that your on the spectrum, and your not as severely affected as some, thats all, i would just call urself autistic, and if somebody asks whats ur diagnosis or label just say i'm mildly on the spectrum. Hope this helps alittle!


A lot easier than PDD-NOS, and besides there is less explaining


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03 Sep 2008, 3:04 pm

Age1600 wrote:
haha yea have u ever talked to droopy on the AS msg boards or anywhere else, shes severely autistic and dang can she type amazingly. It just goes to show u ppl say autistics can do this or that, but its not true at all.


hnn...no, but thx

Quote:
maybe u have a lower verbal iq, who knows. i dont stay verbal long, i can talk very good for awhile then im completely nonverbal for the rest of the day. i also do a lot of echolalia or one worders basically have the language skills of a toddler most of the time, like for instance when i want ppl to leave me alone, i usually push them away and say bye now or u bye lol. I dont always speak in complete sentences either.


heh...heh..heh.
http://www.youtube.com/watch?v=K0HSD_i2DvA


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03 Sep 2008, 3:22 pm

I like your neurologists veiw on it. :) I sometimes think that maybe everyone with an ASD is better called 'autistic' and people can find out for themselves how we function (I go from seeming normal to being oblivious to everything and nearly getting hit by cars). But his ideas seem to give the catagories some proper meanings.

I found a website recently with a 'translation' of the diagnostic criteria for autism and it does not require language delay. I actually meet their interpretation of the criteria for autism (if I go by what I was like as a small child) and I think of myself as an undiagnosed Aspie or even only Asperger's traits! 8O Annoyingly, I can't find that website now. If I find it again, I'll post it here. I remember I fit the criteria because I did echolalia when I was little, although I learned to speak at the normal age.
It's really annoying that I can't find that webpage because the way they translated the bit that's the same for Asperger's Syndrome was different from how I interpreted it. With what I thought it meant, I'm not AS, but with their intepretation, I am.



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03 Sep 2008, 4:27 pm

I would find the simple word thing a hell of a lot more simpler to understand than that of an NT ...
Simplicity, therefore you are superior.

There is not point in using a huge amount of words to say the simplest thing that can be better said with just a few select but precisely chosen words.

I personally just love to use all the words I can, apparently, the better words are longer than the standard and better fitting than that a NT would use.

Still waiting for my diagnosis 8O



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03 Sep 2008, 5:11 pm

Words are usless. For a trained 'professional' to be impressed that you are 'able' to make eye contact is ridiculous. We all learn, adapt.



Last edited by Jenk on 05 Sep 2008, 12:29 pm, edited 3 times in total.