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piroflip
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28 Jul 2011, 6:49 am

As if my AS didn't cause me enough problems I also suffer from extreme tiredness (CFS).
I work full time and am too drained to pursue hobbies when I get home from the office.
An AS friend of mine also feels exhausted all of the time too.

Is there a link?



hurtloam
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28 Jul 2011, 7:18 am

Interestingly enough this very thought was behind my other post about emotional stress linked to physical pain. I was trying to see if there was a link without mentioning the CFS.

I was diagnosed with CFS over 10 years ago and I have noticed that I feel more pain when stressed. I am tired all of the time at the moment. I had a form of therapy at one point which helped because the therapist made me discuss my emotions and even had to help me work out what my emotions actually are. That was a few years back. More stresses have come into my life since then and I don't seem to be able to cope with out help. I know other people with CFS and they all seem to be like me, people who stress easily and people who can often be negative when problems occur. (I'm not saying everyone with AS is negative btw, but those with AS have often been bullied and made to feel worthless and have been beaten down into a negative pattern of thinking)

Learning about AS made me wonder if there is a link. For example I often hear CFS sufferers refer to brain fuzz and AS people also talk about fuzzy brains due to sensory overload etc

I'm sorry, I am very tired today, I don't know if what I am writing makes any sense.

I wonder if any doctors have researched a possible link.



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28 Jul 2011, 7:22 am

I don't know if there is a link but I'm unfortunate enough to have both CFS and IBS on top of my AS. The days when I feel well are few and far between.

The problem when you suffer from so many ailments is that people assume it's hypochondria and don't treat me seriously.



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28 Jul 2011, 7:55 am

I can see someone with AS working full time easily being misdiagnosed with CFS--chronic fatigue syndrome.

The misdiagnosis assumes that there is no reason for the fatigue. But, we all know that "easy" social activities in the office are in fact a big source of stress for someone with Aspergers. So, in fact, the source of the stress is obvious to those on Wrong Planet, but not necessarily to a NT--even one with a high degree of medical expertise.

The ideal solution is to somehow change your job so there is less social interaction.



piroflip
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28 Jul 2011, 8:35 am

What I have discovered is that large meals make my CFS many times worse.
Eating a huge meal when I get home sends me into a semi-coma.
I don't even have the mental energy to go into the kitchen and grab my caffiene tablets.
In any case it isn't so much a sleepy tiredness or a muscle tiredness; I just feel totally drained.

As for changing my job?
Well I work with two nice guys and have been there for over twenty years.

I have forgotten what it feels like to be totally awake it's been so long.
I don't remember feeling like this as a youngster.
The very worst thing that one can do is start going to bed earlier or napping.
This only leads to a merry-go-round that is very difficult to get off.
How do i know? Lol

As for IBS; I have suffered a little but cured it completly by chewing for longer.
Problem solved.



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28 Jul 2011, 8:56 am

I think I know what you mean, although I wasn't diagnosed with CFS either and I'm sure I wouldn't qualify for one. Healthy diet and chewing well what you eat can help. Also, I would recommend regular sport activities like running, swimming, fitness, cycling, dance and so on. Even a little walk can be a huge help when done regularly. I think a had mild IBS in the past too.

I can see how a busy job burdened with many social interactions can exhaust anyone, let alone an autistic.


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nemorosa
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28 Jul 2011, 9:02 am

piroflip wrote:
As for IBS; I have suffered a little but cured it completly by chewing for longer.
Problem solved.


If only it were so easy. I've suffered for 20 years now (it first became an issue in my late teens/ early 20's) and have gradually improved by identifying the problem foods and other triggers. Even so I can still be caught out now and again which will bring me low for days, which can also trigger more CFS (and vice versa).



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28 Jul 2011, 9:06 am

OJani wrote:
Also, I would recommend regular sport activities like running, swimming, fitness, cycling, dance and so on. Even a little walk can be a huge help when done regularly.


The problem with CFS is that exercising beyond your normal 'baseline' level can bring on all the symptoms of CFS by itself leaving you feeling totally wretched for days.

Like with my IBS my general tolerance has improved over the years by adjusting my lifestyle, but I have to be extremely careful about unduly exerting myself.



piroflip
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28 Jul 2011, 9:08 am

OJani wrote:
I think I know what you mean, although I wasn't diagnosed with CFS either and I'm sure I wouldn't qualify for one. Healthy diet and chewing well what you eat can help. Also, I would recommend regular sport activities like running, swimming, fitness, cycling, dance and so on. Even a little walk can be a huge help when done regularly. I think a had mild IBS in the past too.

I can see how a busy job burdened with many social interactions can exhaust anyone, let alone an autistic.


Yes; I fully agree.
I bought myself a mountain bike just over a year ago and it has certainly helped.
The best part is that I really enjoy it too.



piroflip
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28 Jul 2011, 9:11 am

nemorosa wrote:
piroflip wrote:
As for IBS; I have suffered a little but cured it completly by chewing for longer.
Problem solved.


If only it were so easy. I've suffered for 20 years now (it first became an issue in my late teens/ early 20's) and have gradually improved by identifying the problem foods and other triggers. Even so I can still be caught out now and again which will bring me low for days, which can also trigger more CFS (and vice versa).


Your Doctor will (may) have told you to eat a high fibre diet.
Whatever you do DON'T.
It's the worst possible thing an IBS sufferer can do.
Ditch the bran and the veg and the wholemeal bread and the brown rice.
They are making things far worse.



piroflip
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28 Jul 2011, 9:19 am

nemorosa wrote:
OJani wrote:
Also, I would recommend regular sport activities like running, swimming, fitness, cycling, dance and so on. Even a little walk can be a huge help when done regularly.


The problem with CFS is that exercising beyond your normal 'baseline' level can bring on all the symptoms of CFS by itself leaving you feeling totally wretched for days.

Like with my IBS my general tolerance has improved over the years by adjusting my lifestyle, but I have to be extremely careful about unduly exerting myself.


Yes you're correct.
For many years I tried (and failed) to jog my way out of the problem.
I would always progress and then go backwards for weeks.
My mountain bike has proved the ideal solution though.



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28 Jul 2011, 9:23 am

piroflip wrote:
Your Doctor will (may) have told you to eat a high fibre diet.
Whatever you do DON'T.
It's the worst possible thing an IBS sufferer can do.
Ditch the bran and the veg and the wholemeal bread and the brown rice.
They are making things far worse.


Oh yes, I realised long ago about the dangers of a high fibre diet! Like most other people though I initially followed the standard advice. The very idea of a bowl of muesli fills me with horror :eew:

Incidently, I'm pretty sure I've identified the cause of my CFS; about 10 years ago I had shingles (nasty in itself but that's another story) and almost immediately after I started to suffer from CFS. I believe the current medical thinking is that the trigger is viral, though whether some people are more susceptible remains to be seen.



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28 Jul 2011, 10:54 am

I recently thought I had CFS as I was ALWAYS tired. I had trouble staying awake in class, at work, and--yikes--when I was driving. I had almost crashed my car numerous time as a result. I have erratic sleep habits. I always stay up until about 4 or 5 and then sleep until noon or later. With school, I stay up almost as late, only I have to wake up much earlier. But I have been doing that my entire life (in school) and I have never had these fatigue problems. Anyway, I went to the doctor, explained my sleep habits, was also given a blood test and was diagnosed with anemia instead. I had been taking iron pills and the fatigue went away, then I sort of let that slip out of my routine and I am fatigued again, so I guess it is time to re-add them.


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28 Jul 2011, 11:27 am

littlelily613 wrote:
I recently thought I had CFS as I was ALWAYS tired. I had trouble staying awake in class, at work, and--yikes--when I was driving. I had almost crashed my car numerous time as a result. I have erratic sleep habits. I always stay up until about 4 or 5 and then sleep until noon or later. With school, I stay up almost as late, only I have to wake up much earlier. But I have been doing that my entire life (in school) and I have never had these fatigue problems. Anyway, I went to the doctor, explained my sleep habits, was also given a blood test and was diagnosed with anemia instead. I had been taking iron pills and the fatigue went away, then I sort of let that slip out of my routine and I am fatigued again, so I guess it is time to re-add them.


Glad you find the cause of your fatigue. It's worth mentioning that despite the name the issues with CFS are much more than simply tiredness.



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28 Jul 2011, 1:05 pm

I could probably be diagnosed with CFS, but for me it's due to a combination of depression and being ill-equipped to deal with the necessary tasks of daily living. I've worked through the depression (it's pretty mild most of the time, not at the level I'd need medication), but yeah it seems likely that things that drain mental and physical energy (whether it's depression, or doing lots of household tasks that push you to the edge, or something else) could trigger this kind of thing. Also in my case, I had a time where I had to deal with high levels of stress for a prolonged period of time, to where it became normal to be physically and emotionally stressed constantly, while still pushing through to put myself through those days. Since then, I have a significantly lower threshold for stress before I just start falling apart, or shutting down, or something. So CFS-type problems follow from that, too.


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28 Jul 2011, 1:28 pm

BTDT wrote:
I can see someone with AS working full time easily being misdiagnosed with CFS--chronic fatigue syndrome.

The misdiagnosis assumes that there is no reason for the fatigue. But, we all know that "easy" social activities in the office are in fact a big source of stress for someone with Aspergers. So, in fact, the source of the stress is obvious to those on Wrong Planet, but not necessarily to a NT--even one with a high degree of medical expertise.

The ideal solution is to somehow change your job so there is less social interaction.


There is a lot more to a CFS diagnosis than chronic fatigue. The name is at least as much of a trivializing misnomer as "attention deficit hyperactivity disorder."

The criteria are:

Quote:
1. Unexplained, persistent fatigue that's not due to ongoing exertion, isn't substantially relieved by rest, is of new onset (not lifelong) and results in a significant reduction in previous levels of activity.

2. Four or more of the following symptoms are present for six months or more:
Impaired memory or concentration
Postexertional malaise (extreme, prolonged exhaustion and sickness following physical or mental activity)
Unrefreshing sleep
Muscle pain
Multijoint pain without swelling or redness
Headaches of a new type or severity
Sore throat that's frequent or recurring
Tender cervical or axillary lymph nodes


Symptoms in general listed here:

http://www.cdc.gov/cfs/general/symptoms/index.html

It's probably better named "myalgic encephalomyelitis".