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2ukenkerl
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07 Dec 2008, 8:41 am

Well, I have been saying DOCTORS ARE OFTEN IDIOTS, etc... This video shows two kids diagnosed with autism. One was sentenced, by his doctor, to a life at the mental level of an 18month old! They don't give a VALID example as to why they were diagnosed, but STILL... Anyway, a simple EEG identified the REAL problem that was easily treated by a drug. One child in 60 days, had his vocabulary increase from about 3 to 300 words!

http://www.youtube.com/watch?v=2rzle_p0YBo&NR=1

This proves what many, including me, have been saying all along. The idea of autism as a popular disorder, coupled with AS and HFA have caused a lot of false diagnoses to an already broadened list to overinflate numbers.

BTW it is clear to me that few, if any, here would have this precise problem, but I could see a LOT of people being misdiagnosed. What I would like to know is was there ANY other symptom to indicate that they had ANY chance of having autism. Given the one symptom they said, I would have GUESSED something like a seizure.



Dantac
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07 Dec 2008, 3:46 pm

give this doctor a nobel prize darnit.

8)



pandd
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07 Dec 2008, 3:58 pm

Does the 'REAL problem' have a name?



2ukenkerl
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07 Dec 2008, 5:49 pm

pandd wrote:
Does the 'REAL problem' have a name?


Yep, SEIZURE!! !! Of course, there ARE other things that could have been detected between the MRI and EEG. They are suggesting ADHD as another possible thing to test. But, in the video I linked to, they DO talk about seizures. ONE kid zoned out, and the other made facial contortions. They mentioned NO other symptom that would lead one to believe it was autism. The IDIOT doctors merely ASSUMED that there were two things similar with autism(neither was in diagnostic criteria), and so they must be autistic. The REALITY was that the symptom I mentioned was due to the seizure and the other(low to no apparent mental development) was an indirect consequence.

HECK, outside of a FEW things, I would wait until the child could talk or interact with others before trying to use behavior to diagnose autism like that. zoning out and facial expressions might serve as backup, but NOT as a primary reason to diagnose. And slow overall mental development is ALSO not a legitimate way to identify it.

BTW, this is obviously why I put quotes around autism in the title. They called it autism, and cured it, but it wasn't really autism.



ThisUserNameIsTaken
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07 Dec 2008, 6:55 pm

Misdiagnoses happen everywhere in medicine and psychology. Contrary to popular belief, doctors are people not gods, and they do make mistakes when making diagnoses. Even something as simple as a baby's gender can be incorrectly determined. You may be thinking "how ret*d do you have to be to not realize if a baby is a boy or a girl?" and if you are then you have to realize that gender is actually not so easy to determine in some cases. It is actually possible for a girl to be born with a scrotal sac and penis (ex: Congenital adrenal hyperplasia). It's possible for a boy to be born with a vaginal opening, internal testicles, and not develop a penis until he hits puberty (caused by a deficency in 5-alpha-reductase. The name for the condition is Spanish and literally translates to "penis at 12 years"). It's also possible for a boy to not have any sexual organs save for a pair of testicles (testicular feminizing syndrome). There are other conditions like these as well. So with all these possible conditions why should doctors assign babies a gender before doing a battery of tests to make sure that they don't have any of these syndromes? Well, the simple answer is that because the chances are so small that there's really no point. Most of these kids look unmistakably female or male so the doctor just calls them that way, and it's only later when other symptoms start showing up that the gender assignment is re-examined. I mean, if you were helping a woman give birth and you see the baby has a penis and scrotum are you going to say "ehhh...well it looks like a boy but I dunno..." or are you going to say "Congrats it's a boy!".

The reason why I just went through all that was to make a point: I don't think the doctors who diagnosed the kids in that video were idiots. I could be mistaken, but the video never says what they actually based their diagnosis off of, all it does is say what some of the problems the kids had and say that they were thought to be autistic. Autism typically isn't too hard to diagnose since the behaviors associated with it are usually pretty unmistakable. But like every other disorder, condition, syndrome, and disease out there there can be alternative explanations. The vast majority of the time though those alternatives aren't going to be the real diagnosis though and to test for them would be a waste of time and money. Hence the reason one of the doctors they interviewed was against the idea of giving every child suspected to have an ASD an MRI and EEG (MRI scans don't come cheap). Would it be great if we could test for every possible thing that might be wrong with a person to make sure that we're not giving them the wrong diagnosis? Of course. Is it feasible? Hell no.



sartresue
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07 Dec 2008, 7:33 pm

Not Rick Rolled topic

If it was not autism, how could it be cured? :?


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philosopherBoi
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07 Dec 2008, 7:42 pm

This is not the first disorder to appear to be autism but is not autism look at Rett Syndrome.



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07 Dec 2008, 7:50 pm

As someone who had both those scans done BEFORE diagnosis, I feel I must add a pertinent point...

NEITHER of these tests takes place under normal everyday conditions. Any result MUST take into account the fact that you are being stuffed into a giant magnetic tube, or wearing a rubber hairnet and having lights flashed at you at an epilepsy-inducing rate. If I was freaked out by this, aged 23, then how is a child going to be affected?


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07 Dec 2008, 7:59 pm

...And unfortunatly, I doubt that all 'autistics' are really epileptics instead. Just a limited few. :?


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07 Dec 2008, 8:36 pm

Dantac wrote:
give this doctor a nobel prize darnit.



Seconded. It's about time someone figured out that behavior alone should not be the basis for labeling someone with what is widely viewed as a tragic disease, which only causes more problems for those who have something else entirely. Too many are misdiagnosed and suffer the consequences as a result. That is what happened to me with my social anxiety disorder, for which I never got the treatment I needed and I'm still paying the price as a result.

I'm quite disgusted with the other quack who said these test are not recommended. He can just go take a ____ up the ____ as far as I'm concerned. He just wants to maintain the status quo so he can profit from the suffering of others. And I don't want to hear about the cost, either. Conducting those tests more than payed for itself since those kids can now grow up to be productive members of society instead of having to go through life as burdens on society.


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07 Dec 2008, 11:34 pm

They didn't cure those kid's problems, they treated them. They were put on medication and are doing better. They are not cured. Without them, they will be back to nonverbal again.


Put it this way, if a schizophrenic got treated and were put on medication, their symptoms are gone and they are normal again. But are they cured or recovered? No. What would happen if they stop taking their medicine, the symptoms come back. I am sure they still have their moments even though they are on medication. This is a mild case or borderline case I am talking about.



2ukenkerl
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08 Dec 2008, 12:45 am

ThisUserNameIsTaken wrote:
Misdiagnoses happen everywhere in medicine and psychology. Contrary to popular belief, doctors are people not gods, and they do make mistakes when making diagnoses. Even something as simple as a baby's gender can be incorrectly determined. You may be thinking "how ret*d do you have to be to not realize if a baby is a boy or a girl?" and if you are then you have to realize that gender is actually not so easy to determine in some cases. It is actually possible for a girl to be born with a scrotal sac and penis (ex: Congenital adrenal hyperplasia). It's possible for a boy to be born with a vaginal opening, internal testicles, and not develop a penis until he hits puberty (caused by a deficency in 5-alpha-reductase. The name for the condition is Spanish and literally translates to "penis at 12 years"). It's also possible for a boy to not have any sexual organs save for a pair of testicles (testicular feminizing syndrome).


Actually, such a male(with TFS) will generally look like a FEMALE. I haven't heard about the female looking like a male(though a male hit with the 5ar deficiency at the wrong time WILL look somewhat female and maybe somewhat male. It turns out that testosterone does NOT make a fetus look male. DHT does. Without 5ar, the testosterone won't become DHT).

ThisUserNameIsTaken wrote:
There are other conditions like these as well. So with all these possible conditions why should doctors assign babies a gender before doing a battery of tests to make sure that they don't have any of these syndromes? Well, the simple answer is that because the chances are so small that there's really no point.


ACTUALLY, the chances have increased *********************A LOT******************! Ever hear of avodart or propecia? They have a VAGUE warning about how women shouldn't even TOUCH the tablets, because it can cause birth defects! Ever wonder WHAT the birth defects are? YEP! It can create that 5ar deficiency! The male babies can come out deformed!

ThisUserNameIsTaken wrote:
Most of these kids look unmistakably female or male so the doctor just calls them that way, and it's only later when other symptoms start showing up that the gender assignment is re-examined. I mean, if you were helping a woman give birth and you see the baby has a penis and scrotum are you going to say "ehhh...well it looks like a boy but I dunno..." or are you going to say "Congrats it's a boy!".


I think it is safe to say that, if it looks like a boy, it is a boy. It is the GIRLS where you don't know. HECK, they even had this thing on HOUSE! A woman that NEVER had acne, NEVER had a period, etc.... Something was wrong, so they suspected ovarian cancer! They checked and found that the ovaries WEREN'T enlarged because of cancer, but were SMALLER. The person had TESTICALS where the ovaries should have been. When a fetus becomes male, the DHT makes the cord on the adrenals grow longer, and they follow a path out through the area that in a female would become the vagina, etc.... If the fetus doesn't react to the DHT, the adrenals stay right where they are, just like they do in females.

ThisUserNameIsTaken wrote:
The reason why I just went through all that was to make a point: I don't think the doctors who diagnosed the kids in that video were idiots. I could be mistaken, but the video never says what they actually based their diagnosis off of, all it does is say what some of the problems the kids had and say that they were thought to be autistic.


Like I said, the symptoms they gave are NOT necessarily autistic, and shouldn't be primary criteria.

ThisUserNameIsTaken wrote:
Autism typically isn't too hard to diagnose since the behaviors associated with it are usually pretty unmistakable. But like every other disorder, condition, syndrome, and disease out there there can be alternative explanations. The vast majority of the time though those alternatives aren't going to be the real diagnosis though and to test for them would be a waste of time and money. Hence the reason one of the doctors they interviewed was against the idea of giving every child suspected to have an ASD an MRI and EEG (MRI scans don't come cheap). Would it be great if we could test for every possible thing that might be wrong with a person to make sure that we're not giving them the wrong diagnosis? Of course. Is it feasible? Hell no.


Well, some possible causes aren't even known yet. But you can't say "Well, we won't check, so we will just say autism".



pandd
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08 Dec 2008, 1:06 am

2ukenkerl wrote:
pandd wrote:
Does the 'REAL problem' have a name?


Yep, SEIZURE!! !! Of course, there ARE other things that could have been detected between the MRI and EEG. They are suggesting ADHD as another possible thing to test. But, in the video I linked to, they DO talk about seizures. ONE kid zoned out, and the other made facial contortions. They mentioned NO other symptom that would lead one to believe it was autism. The IDIOT doctors merely ASSUMED that there were two things similar with autism(neither was in diagnostic criteria), and so they must be autistic. The REALITY was that the symptom I mentioned was due to the seizure and the other(low to no apparent mental development) was an indirect consequence.

HECK, outside of a FEW things, I would wait until the child could talk or interact with others before trying to use behavior to diagnose autism like that. zoning out and facial expressions might serve as backup, but NOT as a primary reason to diagnose. And slow overall mental development is ALSO not a legitimate way to identify it.

BTW, this is obviously why I put quotes around autism in the title. They called it autism, and cured it, but it wasn't really autism.

Thanks for the brief summary. It makes the contents of the thread more accessible to those of us whose slow dial-up connections that make the hour + it takes to download even a few minutes of streaming footage more trouble than viewing the footage is worth.



NextFact
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08 Dec 2008, 8:41 am

can you type without typing every other word in caps?



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08 Dec 2008, 9:41 am

NextFact wrote:
can you type without typing every other word in caps?


I oNcE hAd A ScRiPt WhErE aLtErNaTe LeTtErS wErE iN cApS. Be ThAnKfUl He IsNt UsInG ThAt. WoUlDnT ThAt Be AnNoYiNg?


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08 Dec 2008, 9:56 am

There are many people, myself included, that believe Jenny McCarthy's son never had autism either. He had been to doctor after doctor that had diagnosed him with epilepsy, but Jenny didn't stop until she found a single neurologist who diagnosed him with autism after spending 20 minutes with him.

You can actually read the story on her own website. http://www.generationrescue.org/evan.html